I haven't written on here for ages - however, I have been keeping on the sidelines reading about everyones trials and tribulations.
I haven't been that good for the last few months with constant pain in what seems every possible small joint in my body and struggling with taking methotexate. In the end I had to sop it altogether as constant oral thrush and tongue swelling along with sickness and stomach upset! So as I'm sure you can all imagine feeling quite low about the whole situation.
Yesterday though I attended my rheumy clinic and saw a wonderful doctor.
She took time to explain things to me - of which she has now diagnosed psoriatic arthritis, amongst other symptoms, due to my toe nails discolouring, ridging and now starting to lift from nail bed (however, no rash at the moment!).
She also explained that although I'm in terrible pain, why I do not have an awful lot of visible swelling. This is apparantly because the tendons / ligaments are being attacked at the point where they attach to the bone. Hence the swelling remains more internal within the the tissue sheath than showing externally. This she demonstrated by using ultra sound that showed the internal swelling as red on the monitor of which I had in shoulders, elbows, knees and ankles. But have discovered through experience can move about on a daily basis !
I came away from appointment with new meds, being leflunomide (would love to hear others experience with this one) and having had one of the general all over steriod injections.
Seeing an understanding doctor who genuinly appears to care makes all the difference. I came away feeling a little more positive that in time the pain will be under control, meds will not cause intolerable side effects and the future can look positive again.
Back to see the same doctor in 6 weeks, so again great as last appointment gap was 4 months which in my opinion is much too long for any inflammatory arthritis condition as so much can happen in that period of time.
Would love to hear others experiences with psoriatic arthritis especially if you haven't as yet got psoriasis like me.
However, hugs to all and thinking about everyone who suffers from inflammatory arthritis.