Cold and MTX chills

Does anyone else get this? At first I thought it was Raynauds but then I realised it's only been like this since I started MTX 14 months ago and the day after is often so bad that I have to go to bed with a hot water bottle. Do others notice this chilling effect with MTX or is it just me?

[Hidden]

Thanks - I've just been ridiculously cold lately - my knuckles go a dirty purple and I have to wear layers and layers even in the house with the fire lit and the heating on. Its being ridiculous! I always used to be so warm blooded. I wouldn't stop taking MTX for this reason but it would be useful to know if its the MTX or just my age/ post-menopausal stuff. X

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Funny kind of chilliness arrived with the RA for me, i.e. several years after the menopause. But I have no way of knowing if it is RA or mtx that does it. My feet get really cold, feels like the cold comes from the inside out if that makes any sense & bears no resemblance to 'ordinary' cold feet.

Luce x

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Yes that's exactly it Luce inside out deep chill like a fever on reverse - and I've always been the person in the family who people warm hands on but now mine are very rarely warm let alone hot. My consultant suggested it was secondary Raynauds or RA but I think its too coincidental that it gets worse the day after MTX. For ages I thought I was flaring then realised it was happening every Wednesday - but much worse recently I this winter spell and I am spending a fortune on warmer gloves, socks, thick hats and jumpers and thermal vests! Tildaxx x

[Rockpool60]

Hi Tilda. I get very cold too. Have gone from being a wee toughy wearing t-shirts in winter to wearing camisoles and layers on top. It seems to be especially bad on MTX day. Take care xxxx

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Thanks that's interesting to learn Rockpool. X

[selina]

not sure of connection with MTX but I have been told I have Reynaulds. Have been on sulfasalazine for approx 2 yrs & combined with MTX for approx 2yrs. It's very painful & distressing & even occurs in summer for no apparent reason. So seems to be linked to something other than cold.

How we do suffer!

[Hidden in reply to selina]

If yours is Raynauds Selina its probably more extreme than mine because my fingers do change colour a little but they have only gone completely white on a couple of occasions. I did find that I still felt very cold while holidaying in a warm, sunny Tuscany last year though. Tilda

[shirlthegirl]

Yes Tilda, I had this a few weeks ago after having my 3rd dose of MTX, and it wasn't nice at all,i spoke to my nurse at my doctors, who told me if it happens again to call the rheumatologist nurse, but the last couple of weeks i have not suffered with them, But i must admit i have been taking my MTX just before i go to sleep just encase it happens, remember i am on Amitripline, so i normal sleep very well, Take care X

[Hidden]

Ah well it must be the MTX then. I've put up with it for over a year now so guess its just a question of moving somewhere warmer one day! My husband would be delighted - maybe he's laid it all on as a ruse to persuade me to move (he's obsessed with warmth thee days!) x