Mtx and burning mouth: Been diagnosed with RA 3 years... - NRAS

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Mtx and burning mouth

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Been diagnosed with RA 3 years ago. Been on mtx but stopped dit about 2 months ago. Wanted to have further diagnosis. Unfortunately it was confirmed it is RA. Started mtx immediately, low dose. But sore burning mouth is back in full force. Please give advice how to deal with it

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10 Replies
helixhelix profile image
helixhelix

Are you on tablets or injections? As swapping to injections could help. Can you talk to your medical team?

I got this with lots of ulcers when first started it did go down after 6weeks. But talk to Rheumy team as you can get mouth sprays etc as well to help.

Joolief profile image
Joolief

I had a lot of ulcers too. I now take folic acid the day before and the day after my injection. I also use a sensodyne toothpaste without sodium lauryl sulphate in. Hope this helps

springcross profile image
springcross in reply toJoolief

Without SLS? Which one is that please.

Joolief profile image
Joolief in reply tospringcross

I’m not sure how to upload a photo onto here. It’s called sensodyne Daily Care Extra Fresh. It’s in a blue and white box/tube

springcross profile image
springcross in reply toJoolief

Many thanks for that.

Joolief profile image
Joolief in reply tospringcross

You’re welcome 😊 hope it helps

oldtimer profile image
oldtimer

I used a mouthwash to keep my mouth as clean as possible (any fragments of food may increase the acid level in the mouth as the enzymes break it down). I also used Orobase a gel which you can buy over the counter in chemists/pharmacies and sticks to moist surfaces.

And I swopped to injections and had folic acid six days a week.

I hope that it settles down for you. Is it affecting the rest of your gut at all, or just your mouth?

rab1874 profile image
rab1874

I was getting a lot off mouth ulcers when I first started mtx tablets 5 years ago , changed to injections and haven’t had much problems still get the odd one but not as bad xxx

R455 profile image
R455

I have problems with sore mouth, can not tolerate spicy food or any food with chillies in, am on MTX injected and folic acid six times a week. I have tried many different toothpastes but have eventually found one that does not set the mouth on fire. Tesco Pro Formula oral care complete sensitive. Small things do help.

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