Hi All - I write this in shock because my cousin who lives in France with her partner and young family has just emailed to tell me that she's just been diagnosed with Lyme's Disease. She is an actress/ performer, lives in rural France and runs a circus with her partner and 2 young kids so this must be pretty devastating for her. She tells me she has only got it mildly now because her immuno suppressants have been fighting it off for about 12 years they think.
She's no recollection of having been bitten by a tic which is how this bacterial disease is spread and knowing about what I've been going through recently she wanted to tell me that it is categorised as a type of RA because it has almost the same characteristics exactly but unlike the ai RA, Lymes does not respond well to steroids or to imuno supressant drugs - but rather is treated by attempts to boost the immune system with antibiotics etc.
She is sounding very brave and saying its a good excuse to catnap frequently at least but probably is pretty distraught. I haven't had much contact with her since we were younger until recently (apart from a rash of family funerals) because they had no broadband until this year and .. well you know how it is with cousins etc?!
I feel so bad for her because she lost her mum and several aunties to breast cancer over the past decade and her dad (my uncle) has recently suffered a stroke. She told me this news because she read an email to her dad saying I was on steroids currently and wanted me to ask for a check in case I have Lymes rather than RA or some other form of inflammatory arthritis because the steroids would be counter-productive. But I'm not very well travelled and have been completely freaked out by the idea of tics for years and anyway the Scottish tic is only just starting to carry Lymes I'm told - so I think it's highly unlikely - but for her sake I just thought I'd see if anyone else here has any experience of Lyme's Disease I wonder?