Hi all, I've not written much lately as to be honest I've been concentrating on my diet and fitness. I do look in regularly but find I don't really have the concentration to get too involved. I'm thinking this may be down to the methotrexate as I used to like nothing better than a good blog. Anyway today I've got my follow up with the specialist nurse so I'm compiling a little list of questions which I'm hoping she won't be too busy to cover. For the most part I think the methotrexate is helping. I'm not in the excrutiating pain that I was before treatment and just have some mild stiffness in my fingers and wrist and ocasional hip and foot discomfort. I'm still shedding hair but no noticeable baldness...thank God! Also still geting troublesome sores in my nostrils. My ESR was at 28 when measured last week. At my last visit I was given a steroid injection and advised that my methotrexate may need increasing at this visit. I'm wondering why I'm on monotherapy rather than combination so I'm going to ask about this. I'm also wondering what expectation should be. As I'm tolerating 15mg mtx really well I wonder if it's best to leave well alone or are the ESR and niggles an indication that damage is still taking place.? I think my fear is that the dose will increase and I'll have awful side effects and be worse off. I'm also going to ask for referrral to a podiatrist as I've been informed I have flat feet but this has not been addressed. Also I've read often on here that other people are sent for xrays or scans at the beginning of treatment but this has not been done and I wonder why? So my appointment is at 2.30 today and it'll be interesting to see how I get on with my concerns. I usually feel so hurried that I don't get chance to ask questions but I'll do my best. One last point...I was diagnosed by the rheumatologist but every appointment since has been with the nurse. Is this normal and how often should we expect/hope to be followed up by the consultant?
I hope you are all well and thanks for the chance to get my thoughts together. At least I can use this as the basis for my list now lol.