have just seen the Food Hospital programme which included dietary advice to a young woman with RA. I'm fairly certain that even if I did not have RA (or something similar, still do not know) then the following thoughts would have gone through my head: 'That's appalling!' 'I've heard of Rheumatoid Arthritis but didn't know it did that!' 'Why isn't there more noise made about it?' etc.
I've no desire to over-identify with my disease and proclaim about it from the rooftops just for the hell of it but I'm sure there is a greater degree of ignorance about RA's dreadful consequences than there is about many other chronic & relatively common diseases.
Why the silence? Maybe because, as was mentioned in the programme, it is because RA is most common in the 40 - 70 age group. Not the noisiest of age groups & quite a few of us (not all, of course) are out of the workforce one way or another so the apparently all-important economic impact is at least lessened. But the suffering and cost to the health service are huge. (I believe the NHS makes a rod for its own back every time it delays or dithers and allows health problems to become more entrenched or complex.)
I'd suggest that referral times could do with a bit of campaigning pressure as could access to anti-TNFs. Or is this happening already? If I eventually get a positive RA diagnosis then campaign I will, whether that means joining an existing campaign or starting a new one.