A bit of background before my questions - In the past 38 years, sinc having Glandular Fever at 16, GPs/Consultants have queried that I had MS, ME/Chronic Fatigue, Fibromyalgia, Underactive Thyroid to name but a few conditions!
A lymph node biopsy of permanantly swollen glands in neck 2 years ago was 'inconclusive', despite bloods showing inflammation/infection. Around the same time I was told I had Lichen Sclerosis, (Dermatologist said he was 100% sure), and then on the next visit he told I didn't have that!
However, the conditons I HAVE been diagnosed with over about the last 4/5 years are : Mixed Connective Tissue Disease, Morphea Scleroderma, (biopsy 'confirmed' apparantly), Raynaud's Phenomenon, Fibromyalgia & Osteoarthritis, (told I require 2 hip replacements), and was just told a couple of days ago that my latest flare-up might be Polymyalgia Rheumatica!
"It's 'normal' to just keep getting more and more auto-immune diseases/rheumatology issues," I was told very matter of factly by the GP I saw, (which I've read quite a few times too,actually). An ESR blood test can confirm Polymyalgia Rheumatica....but she wasn't willing to do it as she said "it was done last year"!
My Soft Tissue/Lupus Nurse at the Rheumatology Clinic had recently told me to ask my GP surgery to do Thyroid Functions Tests and ESR/CRP blood tests - so I made a complaint yesterday, and these tests are being done next week.
My questions - 1) How many of you have unfortunately just kept getting more and more conditions? 2) Does everyone have issues with unsatisfactory medical care? Also, 3) Is there anyone who has Morphea Scleroderma which has gone on to become full-blown Scleroderma, affecting organs, etc?