The thing that is worrying me most is the delay in getting to see a rheumatologist. This worries me for two reasons. Firstly, how much damage is being done while I wait? The number of finger joints visibly affected is increasing at a rate of one per month... and I'm running out of fingers. What about the damage I can't see? Secondly, I can't see any way of continuing to work until I get treatment. I'm on annual leave at the moment but next Wednesday I'll have to make a decision. I can self certificate for one week but then I need a doctor's note but unfortunately my GP "doesn't recognise fatigue as being a symptom of RA." Will I have to take unpaid leave (which I can't afford to do)?
There have been times when I have started worrying after lunch and I have found it really useful to be able to tell myself to "leave it alone." But then what do I think about? What did I think about before the RA symptoms began? I'm glad I've taken steps to stop this condition taking over my life or I think I'd lose my old self completely. I made a real effort to do a stand up comedy gig this week (not my job, just a hobby). The effort needed has totally wrecked me but it has been worth it just to keep in touch with the old me and to have something to think and talk about other than RA.
How is the programme working for you? No worrying after lunchtime - it's the law!