Why? because when I read some of the blogs on here I think about my circumstance and think how things are better for me.
Some of you girls and boys have a terrible time with work issues, I am an ortho nurse and everyone at work is brilliant, I suppose because they understand the illness better than a lay person they know that I can struggle with some things and they all help me as much as possible, if I'm tired they let me take on the lighter work loads or let me sit in the office to catch p on paper work. Though we are really busy and heavy and I work hard the are always mindful of me. I have a fantastic rheumatology nursing team that are available on the phone for advise and who don't mind if I pop down to see them (and that goes for any of their patients), Appointments with the rheumies are few and far between as there are only 2 of them but they are really good as well. My Gp's are brilliant too. Many people on here talk about the psychological effect their diagnosis has had on them, I was relieved to have the diagnosis, i had suspected that I had it for a year or so, but I suppose because of my background it didn't scare me, I have worked with patients with severe RA and horrendous deformities (from the days when there was no effective treatments) and whilst I know there is a chance of deformity, it will never be like those poor souls, one of my patients from my very first ward Mrs E, was born in the early 1890's, and she had the most horrendous deformities but she was kind and patient and bore her infirmity with such courage, she had a horrid sinus going from her back right into her spine from her RA and infection, we packed it every day with a foot of ribbon gauze, I always think of her when I am feeling down and it makes me feel a bit braver, She was a real role model for me at the tome and even more so now!
Be brave all you RA warriors, cos warriors is the right word, I think of you all and prayer for us all every day
Carol xx