Well i am so fed up today that i could cry. My ra/fibro ia giving me more than my fair share of pain. Seen my pschyio this morning and he was pleased with my progress on my knee. He did look at my finger joint and my ankle that keeps swelling and he is of the opinion that it is all ra. My breathing is crap as well today. I think i will never be better than i am at the moment.
I have taken my daughter down to the hospital to the day procedures ward for a small op and we are waiting to pick her up. That will be later today. I suppose i am bit worried about her as well so i suppose that won't my overall mood,but its the pain all over thats getting me down more than anything and yes i'm ready to cry. I'm sure tomorrow will be different,i blooming well hope so. I don't want too many days feeling like this i can tell you. My bloods showed that there was more inflammation so i can't expect anything else.
I hope you are all with less pain than i am in at the moment..... Sylvi..xxx
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sylvi
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Oh that's awful!! So sorry to hear you are having a bad pain day and really hope that tomorrow is a better one for you. Gentle hugs and lots of thoughts coming your way.
Just a qick note to say that things will definately feel better soon, i promise!, thats what keeps us going isn't it...hope and what is around the corner.
I Know how that feels,i can truly sympathise with you on that score. xx
Sylvi,
Sorry to hear your not good and on top of that your daughter having an op today as well. I am sure that a lot of your pain is stress through worry of your daughter hopefully when you collect her and see that she is ok you will start to feel better.
Georje,i know my fibro is rough,my fingers are like sausages from the ra. It is only a minor op my daughter is having, she is worried about the results more than the op. I had it done a few years ago,but my daughter had to be put out as she froze,get my drift. I am not depressed just tired and in pain as my inflammation markers have risen again so thats not helping.i am at the drs.tomorrow so i'll ask him about my ra/fibro. I also have cystitis too i think. xx
Hi Sylivi Hope you feeling little better now, and I can empathize . As I also ache everywhere , my neck is on fire and my hands feel like been runover with a tank . My doc has worries that I am depressed due to the other problems that seem to appearing for other things . And the tiredness is horrid . So really hope you feel a bit better . Would it be too much to ask for holidays to somewhere warm when weather like it is to be put on prescription lol well no harm in dreaming .....Hope daughter ok too. us mums do worry not matter how old they are ...xx
Hi Sylvi - sorry coming late to your bad day but I really hope things have got a bit easier over the day maybe and that things do improve for you very soon. Lots of love - Tilda xx
Afternoon ladies,i still ache,but i am resting. I don't feel like i want to cry so much now. My knuckles ache like hell and typing i suppose doesn't help,but this is my lifeline to the outside world. I understand that i'm not alone with being in pain. I do think the weather has a lot to do with it.
Sylvi are you only taking MTX for your RA? If so I wonder why they don't suggest getting you onto other DMARDs with it now or anti-tnfs? Forgive me if there's a good reason and I've forgotten it. Tilda xx
Tilda i take sulpha,pregabalin,mtx slow release tramadol as well as ordinary tramadol and paracetamol. There is not much more they can give me is there. Tilda you wouldn't forget anything. I am seeing the specialist next month so i'll see what he says.
We have just been and fetched my daughter from the hospital so she is home safe and well. My wrists ache as well now. I think they should just put me in a hole and cover me up!!!!! ha ha titter yee not. xx
I don't think a hole would suit you at all Sylvi - and we'd all have to come and dig you out so think of all the pain that would generate?!
I'd forgotten or failed to be aware that you are on Sulpha but I was really thinking of the Biologics for you. Well maybe the rheumy will suggest that next time you see him in a month. Tilda xx
Have you not read about the Biologic drugs that people have to go on if the DMARDs aren't working well enough? Anti-TNF is the other name for them and they are drugs such as Humira, Enbrel and Cimzia. Maybe it's because of your fibro that you are in so much pain but I don't think that affects the hands and you did say your nurse said it was RA so it must be quite aggressive for you. I would imagine you would qualify - why don't you read up about them on this site and then ask your rheumy if you move on to them perhaps?
Glad it's a bit easier this afternoon as sounds like a rotten day. But don't give up believing that you'll get better than you are now, and it's great that there's good progress on your knee. Have a nice warm evening. Pollyx
Summer what have you been doing. I know you have been through a good spell,because you were working. What has happened? sending you cyber hugs to help you overcome the exhaustion. Love sylvi.xxx
This is my first time - or possibly not, as I can't remember if I've ever done so - leaving a comment, but I read the posts on the site frequently.
I find your posts very helpful to others, and you have a wonderful sense of humor.
I hope your good humor comes through for you during this awful time and brings relief of some sort.
Gentle hugs with healing thoughts and compassion being sent your way.
Terri
P.S. No hole. I'd feel compelled to come help the others dig you out, and I can't afford a plane ticket - we all know about the costs of living with RA.
Sylvi, I live in the USA, California specifically. I moved to Costa Rica in 2006 - with a move back to California in 2008-2009 when my RA hit hard - and then back to Costa Rica for a little more than a year. Unfortunately I had to return to California because I could not get treatment for my RA in Costa Rica (I was also having a hard time being away from my children).
I hope today is finding you in better way and that things only improve. Terri xx "o" (gentle hug).
Morning Terril, here in the uk it is 3am in the morning,i think that tells you everything. I have been down since 1am. my right hand is not very good and i tend to ache all down my right side.
You also seem to be having a hard time of it at the moment don't you. Am sending you gentle hugs. Sylvi.xx
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Son was tested for RA today
well farewell everyone I don't have RA
I feel so lucky
