Knee flare tedium : These are my What3Words for the day... - NRAS

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Knee flare tedium

Fluffontoast profile image
4 Replies

These are my What3Words for the day. In January my rheumy took me off meds because of side effects and to see if the RA would just go away, because I'm seronegative and sometimes it does apparently. Not in my case as its all creeping back. Emailed the rheumy nurse to find out what they're going to put me on next. Didn't want any advice here, just having a small moan. Hope that's OK! Lots of love to you all xxx

Was going to say have a good weekend but it's only Monday...sigh...

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Fluffontoast
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hazelcats profile image
hazelcats

Gah Fluff. I know it feels never ending the search to get meds right. Its hard to stay patient when we are desperate for it to just give us a break.Can nurses give a steroid shot in the meantime just to tide you over until meds are sorted and kick in?? Sending a gentle hug your way.

Fluffontoast profile image
Fluffontoast in reply tohazelcats

They said I can take oral steroids but I'm waiting it out until they get back to me. The painkillers are helping

stbernhard profile image
stbernhard

I hope rheumatology get back to you soon. In my experience, if I don't chase them, nothing happens for a long time. Good luck and I hope you get better quickly once you are back on medication.

GrannieD profile image
GrannieD

HI I’m in the same situation, stopped medication due to on going symptoms, not even sure if it was side effects, now I’m not taking anything and Rheumatologist says I could be in remission. I wish I could believe him, but I don’t. I wish you well and hope you get something sorted soon.

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