I rang the drs this morning after the phone call from my rheumy team. The dr said i am anaemic and i need treatment and he was contacting the drs to sort out the right treatment and he said he would send me a letter as well. Well i rang the drs this morning and surprise surprise he had already contacted the surgery and treatment is being organised today. It makes you wonder if one section of the hospital can work like that why can't other dept can do the same.
I fell pretty rubbish today.xxxx
I was diagnosed with anaemia from bloods taken at my last rheumatologist appointment. I had mentioned I felt fatigued so she ordered more tests than just the methotrexate ones. I needed iron tablets, which I started on Monday. I hope you’re feeling a bit better soon.
fingers crossed you start treatment quickly and it gives you a boost
Hope it perks you up soon Sylvi although s9meone I know has just had an infusion and they said it would be two weeks before she noticed mych of a difference. Good luck.
Thank you darling.xxx
I have been anaemic on and off for 10 plus years, and my GP now marks it down as my new ‘NORMAL’ and OK when reporting this to me. GP did screen my iron and B12 levels in February and both were high and did not require topping up. It appears I have ‘Anaemia of Chronic Disease’ and will be treated with a blood transfusion if it falls below a critical level!!!!!!!
This is a nightmare as it is far from ‘normal’ for me as I am exhausted all the time, never mind the added fatigue from the RA and fibro, but looking at me I look the picture of a healthy 60 plus individual, and again some friends and family do not understand that I cannot do everything I would like to be able to do (often the day to day necessities, etc), very true the term ‘hidden disabilities’.
Sylvi, hope they find the cause and appropriate treatment is activated, anaemia is not a ‘walk in the park’ or ‘normal’ (take note GP’s and stop saying this, when there is no identifiable cause - they should try doing a day’s work when not enough oxygen circulating round the body)!!!!!!!!!
Blimey darling you are in the wars. I have been borderline anaemic for a long while and this is the first time I have needed iron tablets since I have had ra. Your right I like you I have ra and fibro as well as the fatigue. Since I have had the heart surgery I couldn't breathe and I didn't know why as I have struggled to breathe and now I know. I have been getting worse and add to that I am having problems with my right hip now. I just can't win. Xxxxx
Hope you are feeling better soon Sylvi but at least there is some progress
Get well soon Sylvi! I found the iron tablets worked fairly quickly. I have been on them for about 5 months now. I had borderline ferritin levels for a couple of blood tests.
But I was also told I had anemia of chronic disease which is low red blood cells. As braecon talks about. It’s not much fun.
I’m really pleased that you found someone in the hospital to act on information quickly x
It's horrible feeling rubbish. I hope your medication kicks in quickly and you feel better soon. Sending you lots of hugs.
So sorry to hear you're having a rubbish day, sending you 🫂🫂
Oh sylvi that’s a bit pants for you. I hope the treatment makes you feel much better very quickly. I’m pleased it was picked up and dealt with quickly that’s a bonus. I noticed my haemoglobin is the opposite of low and my red cell count is always high for a woman my last FBC has a note on saying follow up required please read but has anyone contacted me NOPE 👎. I did have to see GP as Ive developed a chest infection which I didn’t have at the time of the blood test but I don’t have the energy to chase up rheumy but I will have something to say when I eventually speak to someone, once again it’s been missed 🙄. Anyway hope you feel better soon.
I do hope you do get sufficient energy to speak to the rheumy nurse or your doctor so that the chest infection can be treated. This problem when you are told that "someone" will come back to you and doesnt is so very frustrating and hurtful too (experiencing similar problems myself) you are then left with this "nobody cares" feeling and after all it is YOUR health and you should get answers. So thats my rant dealt with too. Make a cuppa and know that others are out in this world that care and that we try to support one another.🌹☕💐
Hello Sylvi, just to let you know i have had iron infusion and it worked very quickly. Hope you get one very soon you will feel much better then.
Hello Sylvi ✨🌻
It’s been a minute since I’ve been on here. I could write a book on anemia. I have suffered from different forms of it since my 20s when I ran 100 mile weeks and suffered from “Runner’s anemia” caused by foot strike hemolysis (breaking of blood cells causing iron/hemoglobin loss).
I have had 3 iron infusions (1000 mg iron dextran- InFed) since 2018. My last one was a month ago. My ferritin had been down to 4 (nl= 50-150ng/mL) and my hemoglobin was 11.2 (nl=12-16 gm/dL woman). My labs 2.5 weeks later brought my ferritin up to 165, so it is working well. I have repeat blood tests on order for every 3-6 months. My doc left it up to my discretion, if I start to feel symptoms reappear.
I have tried every type of tablets and drops but they don’t seem to work/work consistently enough. This is probably a gut inflammation issue (autoimmune/autoimflammatory)that causes absorption issues. Part and parcel I guess. I hope your treatment plan comes together soon. Anemia can make you feel so tired , ill and achy. It can also be quite insidious. .I hope you are feeling much better very soon. 💐✨💕
Dee
Thank you Dee i doo hope you have some good luck with your health. xxxx
Well thank you all for your lovely answers. I know it don't sound right to say this, but i am glad i am not alone. I have no idea how long i am going to be on the as on my NHS repeat ap they are on the repeat so we will see. I was surprised at how efficient it was from the time the dr at rheumy rang me on Thursday to getting them yesterday which is more than i can say about the x-ray dept at the diagnostic centre down the hospital. Thank you all for your lovely comments. xxxx
hope you feel better soon 🤞🏻
hi Sylvi, I was prescribed iron tablets when diagnosed with Stills ‘’79 and took them until I wean off the steroids etc by about ‘84. I don’t eat meat so deliberately look for iron rich foods these days, sadly wine isn’t one of them 😉
It’s no surprise to me that departments operate in isolation. Last year I got an appointment for a colonoscopy quicker than I could get one to see a GP!
Hope you’re both well
Hi sylvi,
I hope you do not have to wait too long and that it works quickly for you. Wishing you a good weekend (storms permitting). Gentle hugs🌹☕
Pain in my shoulders 
