So many meds: Hi all, I'm trying not to get discouraged... - NRAS

NRAS

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So many meds

Hammit39 profile image
9 Replies

Hi all, I'm trying not to get discouraged but I have been on methotrexate, hydroxycloroquin, and humeria all at once since my RA diagnosis 8 mths ago. They are not working- doctor agrees. My hands are getting worse and I am having a foot fusion done next month. I feel like parts of me are just dropping off and I am so scared of ending up in a wheelchair. I am switching to Embril and wanted to know what others have experienced with this newer injection. Hoping this is the medication that at least slows this disease down. Thank you!

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Hammit39 profile image
Hammit39
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helenlw7 profile image
helenlw7

I was on Enbrel between 2008 and 2018, and for most of that time it was like a miracle drug, enabling me to keep working as a Reception teacher, lots of sitting on small chairs and the floor. I took it alongside methotrexate. I didn’t have any side effects. I hope it works for you.

Hammit39 profile image
Hammit39 in reply to helenlw7

Thank you!

Neonkittie17 profile image
Neonkittie17

I hope Enbrel works for you. Good luck for the foot fusion and it certainly is possible to come back from this difficult time and progress on a new med. If you’re going to have the original Enbrel/Etanercept it was first used in the UK in 2000 so it’s not new as such, but think you might mean you’re going to have one of its biosimilars? I hope you’re soon feeling much better and after your foot op and new med is working. 🙏The first year after diagnosis can be very hard to even come to terms with having RA. I’m glad your rheumy has decided for another med.

Hammit39 profile image
Hammit39 in reply to Neonkittie17

Thank you!

Neonkittie17 profile image
Neonkittie17 in reply to Hammit39

🩷

J1707- profile image
J1707-

hang on in there . There is not one med or concoction fits all. The problem is it takes time . 8 years in and 9 drugs later I think I’ve found the right mix 🤞🏻9 weeks in on this mix and ( I’m scared to say it) but I think this is it . I’m barely using my aids to walk . I do realise I will have bad days but it’s the best I’ve been since diagnosis .I’m happier and starting to enjoy life again.

Hammit39 profile image
Hammit39 in reply to J1707-

I'm so glad you are doing better!

Gillian15649 profile image
Gillian15649

I have been on Etranercept ( Enbrel at the beginning and now Benepali biosimilar) with MTX injections for more than 18 years. It has worked for me very well and I hope it is the right drug for you

Hammit39 profile image
Hammit39 in reply to Gillian15649

Thank you

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