Here is the link to the survey: bit.ly/CovidCare2021
As we’ve just marked a year since the first lockdown, NRAS is supporting a survey from Cambridge University to see how people with autoimmune rheumatic diseases like RA and lupus , have coped over the year, changes to care, views on telemedicine etc. We are also looking at the impact of online peer groups like our NRAS virtual groups as well as online communities on HealthUnlocked and Facebook. You do not need to be a member of an online group to participate in the survey as you can skip those questions if they don’t apply to you.
This study has been requested by rheumatologists and policy makers to help plan changes in care, policies and understand the patient-views, so is a great chance to get your voices heard!
The lead researcher, Melanie Sloan, and several of the research team have lupus or another autoimmune rheumatic disease so they understand and empathise with how life has been during this pandemic when living with a rheumatic disease. Please do read the information at the beginning of the survey and contact Melanie if you have any questions on firstname.lastname@example.org
The survey is open to everyone over 18 and from every country if you have one of the disease types listed or are on the diagnostic journey.