A global group of rheumatologists are conducting a study to understand the long term safety of COVID-19 vaccines. If you are above 18 and have an autoimmune disease, please spare 5 minutes for this survey to help researchers answer this question. Do ask your healthy friends and family members to take part as well, to allow comparisons.
Your participation is really important.
Thanks done. Would be interested in outcome.
Done - although it was irritating doing it on a phone as it kept jumping around on the screen; maybe designed to be done on tablets/laptops?
Yes I had the same problem
Same. I gave up.
Me too on my tablet. Shame
I too gave uo when i couldn't get the date in so i gave up. xxxx
Just been to the GP about a vaccine or virus rash.
Done 👍
Doesn’t give an option to put in 5th vaccine and that was the one I had a reaction to, so pointless. It also jumped about so I gave up.
DATE ENTRY TIPyou have to put full year in ie 2021 not just 21.
Gave up on first page when it didn't give the option of 5 vaccinations, which, judging by the posts here, many of us have had
I've given up - I filled it in so far and then it kept going back to the beginning of the page - and yes i had filled everything in correctly.
Done,!
Gave up after not being able to add 5 vaccine .
Was easy on iPad. The date entry nearly threw me but you just put in the date then scroll down to next Q. It prompts you if you have missed something.
Completed with no probs, on iPad
Completed-very interested in outcome
Would love to take part but I couldn't complete it, it just kept jumping back to the previous dates, gave up in the end.
I found this but when you put in date you needed to do 2021/22 it did not accept two digits. Hope this helps😊
I was using the calendar input and it was really difficult - and irritating!
I thought so too! If the want people to participate they should make it easy! I’m not as computer savvy as I would like to be🤩
I gave up. The questions were very poorly worded. I didn't know if it meant did I have side effects after seven days or did I catch covid at some point at least seven days after (it says "symptoms" but the list on next page sounded like side effects from vaccine rather than covid, I found it hard to know). The layout of the questionnaire I found hard to use and I could click back to edit the previous page when the subsequent questions made it clear I'd misunderstood the previous one. When it said are my symptoms of (RA) worse after second vaccine did it mean shortly after or at any point ever after that date? My RA wasn't stable before the vaccine anyway and has continued to be unstable. I had to give up as I really didn't understand what the questions were asking and of the multiple choice questions several didn't have an option for my particular answer!
Hi there,
We have shared feedback from this survey with the developers. If you would like clarification on anything to do with this survey or study, please feel free to contact the researcher team at covadstudy@gmail.com
Best wishes,
Aribah😊
Hi Aribah-NRASI completed this survey although, as others have commented the Survey Monkey platform was not always easy to navigate. Moreover some questions were a bit ambiguous and could be interpreted in different ways.
I developed RA after being vaccinated with Pfizer cov19 , began treatment with methotrexate and steroids after second Pfizer cov19 vac and had a flare resulting in diagnosis of IBS and as yet undiagnosed (awaiting mri) spondiloarthropathy, after third Pfizer cov19.
This was difficult to explain in the survey but, I feel, pertinent to vaccine development.
I would be interested to know where to find out how this data is being used. Is there a link to the research site? Who is the point of contact for the research project?
Rapid survey regarding 3rd primary dose of COVID vaccine
So...which Covid-19 vaccine?🤔
Covid 19 booster and pneumonia vaccine 
RA - 2nd COVID-19 Vaccine
Covid 19 Vaccine antibody results 
