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Sarilumab
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Help for PMR relapse?
a bs tr ac t
Sarilumab
for Relapse of Polymyalgia Rheumatica during Glucocorticoid Taper
a bs tr ac t
Sarilumab
for Relapse of Polymyalgia Rheumatica during Glucocorticoid Taper
Karenjaninaz
in
PMRGCAuk
2 months ago
Kevzara (Sarilumab) article in todays Daily Mail about woman with PMR
Sarilumab
(Kevzara) is mentioned as possibly being released by NICE for PMR patients next year. I’m not sure how accurate that is.
Sarilumab
(Kevzara) is mentioned as possibly being released by NICE for PMR patients next year. I’m not sure how accurate that is.
Tiggy70
in
PMRGCAuk
30 days ago
actemra, kevzara, tocillizumab, sarilumab
Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of actemra, kevzara, tocillizumab and
sarilumab
as medications for PMR. In stead of prednisolone/ prednison. Thanks Dorset lady. may I ask to add comments re. methotrexate too….
Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of actemra, kevzara, tocillizumab and
sarilumab
as medications for PMR. In stead of prednisolone/ prednison. Thanks Dorset lady. may I ask to add comments re. methotrexate too….
Kaaswinkel72
in
PMRGCAuk
3 months ago
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sarilumab & methotrexate question
Hi, I am on both methotrexate and
sarilumab
injections but had to pause them because of an infection. Can anyone tell me whether it is ok to take them at the same time when I resume treatment? Thanks for any advice
Hi, I am on both methotrexate and
sarilumab
injections but had to pause them because of an infection. Can anyone tell me whether it is ok to take them at the same time when I resume treatment? Thanks for any advice
Firion
in
NRAS
5 months ago
Tapering Steroids
I've been managing on 15mg per day and tried to cut down last week to 10mg but the pain was too much, I've injected again with
Sarilumab
this week so thought I would give it another go.
I've been managing on 15mg per day and tried to cut down last week to 10mg but the pain was too much, I've injected again with
Sarilumab
this week so thought I would give it another go.
3LittleBirds2
in
NRAS
3 months ago
10 year PMR anniversary! A new drug for me called Etanercept being advised.
Kevzara (
Sarilumab
) IL-6 blocker was discussed by my Rheumatologist after the Leflunomide trial.
Kevzara (
Sarilumab
) IL-6 blocker was discussed by my Rheumatologist after the Leflunomide trial.
MC60
in
PMRGCAuk
6 months ago
Stopping Kevzara
I have had to stop my
Sarilumab
jabs, yet again, because my white cells have dropped again. I have been off the drug for over three weeks now and have heard nothing since my last blood test. I expected to feel gradually worse without it but I don't.
I have had to stop my
Sarilumab
jabs, yet again, because my white cells have dropped again. I have been off the drug for over three weeks now and have heard nothing since my last blood test. I expected to feel gradually worse without it but I don't.
tazman3
in
NRAS
7 months ago
Sarilumab/Kevzera
I will be starting
Sarilumab
in the near future, I have searched for posts regarding this drug, but I would be interested to hear from anyone who had experience of it, the injecting doesn't worry me as I've done it before with Embrel. Many Thanks
I will be starting
Sarilumab
in the near future, I have searched for posts regarding this drug, but I would be interested to hear from anyone who had experience of it, the injecting doesn't worry me as I've done it before with Embrel. Many Thanks
3LittleBirds2
in
NRAS
10 months ago
sarilumab
There was a short piece in the BMJ last week on PMR tapering with
sarilumab
which I thought might be of interest. I am afraid it is not a very good photograph, I am not the best at taking photos!
There was a short piece in the BMJ last week on PMR tapering with
sarilumab
which I thought might be of interest. I am afraid it is not a very good photograph, I am not the best at taking photos!
piglette
in
PMRGCAuk
11 months ago
Cost of tocilizumab (2)
So, my next step is to explore the possibility of moving to
sarilumab
, another IL-6 inhibitor, but that’s unlikely as I don’t think it’s been licensed for GCA yet. Unless anyone knows any different?
So, my next step is to explore the possibility of moving to
sarilumab
, another IL-6 inhibitor, but that’s unlikely as I don’t think it’s been licensed for GCA yet. Unless anyone knows any different?
Duncoding
in
PMRGCAuk
9 months ago
"Scientists achieve breakthrough in treating 'neglected' polymyalgia rheumatica" - that's the headline but don't get too excited ...
utm_source=news_medical_newsletter&utm_medium=email&utm_campaign=rheumatology_newsletter_3_november_2023 The study is using
sarilumab
, aka Kevzara - not the first study, I'm sure Dublin did a pilot study, but the SAPHYR study is bigger.
utm_source=news_medical_newsletter&utm_medium=email&utm_campaign=rheumatology_newsletter_3_november_2023 The study is using
sarilumab
, aka Kevzara - not the first study, I'm sure Dublin did a pilot study, but the SAPHYR study is bigger.
PMRpro
Ambassador
in
PMRGCAuk
11 months ago
Side effects of Leflunomide?
Having been on
Sarilumab
since March 2022, the effects started to wane and my Rheumy thinks I have developed antibodies to it. So he has added Leflunomide on top, since April 2023.
Having been on
Sarilumab
since March 2022, the effects started to wane and my Rheumy thinks I have developed antibodies to it. So he has added Leflunomide on top, since April 2023.
DenMum
in
NRAS
1 year ago
Steroids _ I hate them!
Two years ago I started
Sarilumab
SC injection once a fortnight which appears to be working . I really want to come off prednisolone, to try and get some weight off.
Two years ago I started
Sarilumab
SC injection once a fortnight which appears to be working . I really want to come off prednisolone, to try and get some weight off.
rubybelle12
in
LUPUS UK
1 year ago
Does RA exist in the hips?
RA was diagnosed 4 years ago and I am now on
Sarilumab
jabs. I had a terrible flare around 4 weeks ago and couldn't get through to Rheumatology by any means. The pain in my hips was like fire and I had no real sleep for 2 weeks. The pain was also in my my bottom and groin.
RA was diagnosed 4 years ago and I am now on
Sarilumab
jabs. I had a terrible flare around 4 weeks ago and couldn't get through to Rheumatology by any means. The pain in my hips was like fire and I had no real sleep for 2 weeks. The pain was also in my my bottom and groin.
tazman3
in
NRAS
11 months ago
Rheumy helpline not replied to me 😢
Hi all, I've had RA since 2018 and I've had a cocktail of drugs since then, but I've now been on
sarilumab
for around 2 years and was doing okish up until a few months ago. I've rang Rheumy helpline last Wednesday and we have to leave a message but still had no reply.
Hi all, I've had RA since 2018 and I've had a cocktail of drugs since then, but I've now been on
sarilumab
for around 2 years and was doing okish up until a few months ago. I've rang Rheumy helpline last Wednesday and we have to leave a message but still had no reply.
Natbat87
in
NRAS
1 year ago
Weight Gain
I have been on
Sarilumab
for around a year and have gained a lot of abdominal fat. Is there a connection?
I have been on
Sarilumab
for around a year and have gained a lot of abdominal fat. Is there a connection?
tazman3
in
NRAS
1 year ago
Leflunomide side effects
I've been on
Sarilumab
for just over a year. My bloods are very good but have had several bad flares. Just added Leflunomide v. low dose at present every other day. I'm itching everywhere even though I take antihistamine for hayfever. Worried the itching will increase as the dose is increased.
I've been on
Sarilumab
for just over a year. My bloods are very good but have had several bad flares. Just added Leflunomide v. low dose at present every other day. I'm itching everywhere even though I take antihistamine for hayfever. Worried the itching will increase as the dose is increased.
DenMum
in
NRAS
1 year ago
Finally...🥳
Anyway, yesterday I finally injected my first dose of Kevzera (
Sarilumab
) ..so hoping it brings some much needed relief soon and I can get off these oral steroids which I don't want to be taking for any longer than I need too..but they have helped a lot.
Anyway, yesterday I finally injected my first dose of Kevzera (
Sarilumab
) ..so hoping it brings some much needed relief soon and I can get off these oral steroids which I don't want to be taking for any longer than I need too..but they have helped a lot.
3LittleBirds2
in
NRAS
4 months ago
3 Year Anniversary!
Does anyone have an opinion on
sarilumab
? Recently approved in US for treatment of PMR. My rheumatologist suggested it to get off the prednisone. I am down to 1.5 mg per day. Going oh so slowly but not slowly enough for Rheumy! Always so appreciative of the advice and support of this forum.
Does anyone have an opinion on
sarilumab
? Recently approved in US for treatment of PMR. My rheumatologist suggested it to get off the prednisone. I am down to 1.5 mg per day. Going oh so slowly but not slowly enough for Rheumy! Always so appreciative of the advice and support of this forum.
kimsaunsc
in
PMRGCAuk
1 year ago
Update after Rheumy visit
two weeks He may do an aortic ultrasound if ESR does not come down He did tell me if my vision impairs to take 60 mg prednisone and call office right away Hes a seasoned NP, in a practice with 2 MDs but told me he seems to be the PMR/ GCA provider He gave me info on newly approved by FDA drug
Sarilumab
two weeks He may do an aortic ultrasound if ESR does not come down He did tell me if my vision impairs to take 60 mg prednisone and call office right away Hes a seasoned NP, in a practice with 2 MDs but told me he seems to be the PMR/ GCA provider He gave me info on newly approved by FDA drug
Sarilumab
GMA74
in
PMRGCAuk
1 year ago
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