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Sarilumab
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sarilumab
There was a short piece in the BMJ last week on PMR tapering with
sarilumab
which I thought might be of interest. I am afraid it is not a very good photograph, I am not the best at taking photos!
There was a short piece in the BMJ last week on PMR tapering with
sarilumab
which I thought might be of interest. I am afraid it is not a very good photograph, I am not the best at taking photos!
piglette
in
PMRGCAuk
5 months ago
Sarilumab/Kevzera
I will be starting
Sarilumab
in the near future, I have searched for posts regarding this drug, but I would be interested to hear from anyone who had experience of it, the injecting doesn't worry me as I've done it before with Embrel. Many Thanks
I will be starting
Sarilumab
in the near future, I have searched for posts regarding this drug, but I would be interested to hear from anyone who had experience of it, the injecting doesn't worry me as I've done it before with Embrel. Many Thanks
3LittleBirds2
in
NRAS
4 months ago
10 year PMR anniversary! A new drug for me called Etanercept being advised.
Kevzara (
Sarilumab
) IL-6 blocker was discussed by my Rheumatologist after the Leflunomide trial.
Kevzara (
Sarilumab
) IL-6 blocker was discussed by my Rheumatologist after the Leflunomide trial.
MC60
in
PMRGCAuk
4 days ago
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Stopping Kevzara
I have had to stop my
Sarilumab
jabs, yet again, because my white cells have dropped again. I have been off the drug for over three weeks now and have heard nothing since my last blood test. I expected to feel gradually worse without it but I don't.
I have had to stop my
Sarilumab
jabs, yet again, because my white cells have dropped again. I have been off the drug for over three weeks now and have heard nothing since my last blood test. I expected to feel gradually worse without it but I don't.
tazman3
in
NRAS
1 month ago
Cost of tocilizumab (2)
So, my next step is to explore the possibility of moving to
sarilumab
, another IL-6 inhibitor, but that’s unlikely as I don’t think it’s been licensed for GCA yet. Unless anyone knows any different?
So, my next step is to explore the possibility of moving to
sarilumab
, another IL-6 inhibitor, but that’s unlikely as I don’t think it’s been licensed for GCA yet. Unless anyone knows any different?
Duncoding
in
PMRGCAuk
3 months ago
Side effects of Leflunomide?
Having been on
Sarilumab
since March 2022, the effects started to wane and my Rheumy thinks I have developed antibodies to it. So he has added Leflunomide on top, since April 2023.
Having been on
Sarilumab
since March 2022, the effects started to wane and my Rheumy thinks I have developed antibodies to it. So he has added Leflunomide on top, since April 2023.
DenMum
in
NRAS
6 months ago
Steroids _ I hate them!
Two years ago I started
Sarilumab
SC injection once a fortnight which appears to be working . I really want to come off prednisolone, to try and get some weight off.
Two years ago I started
Sarilumab
SC injection once a fortnight which appears to be working . I really want to come off prednisolone, to try and get some weight off.
rubybelle12
in
LUPUS UK
6 months ago
"Scientists achieve breakthrough in treating 'neglected' polymyalgia rheumatica" - that's the headline but don't get too excited ...
utm_source=news_medical_newsletter&utm_medium=email&utm_campaign=rheumatology_newsletter_3_november_2023 The study is using
sarilumab
, aka Kevzara - not the first study, I'm sure Dublin did a pilot study, but the SAPHYR study is bigger.
utm_source=news_medical_newsletter&utm_medium=email&utm_campaign=rheumatology_newsletter_3_november_2023 The study is using
sarilumab
, aka Kevzara - not the first study, I'm sure Dublin did a pilot study, but the SAPHYR study is bigger.
PMRpro
Ambassador
in
PMRGCAuk
5 months ago
Weight Gain
I have been on
Sarilumab
for around a year and have gained a lot of abdominal fat. Is there a connection?
I have been on
Sarilumab
for around a year and have gained a lot of abdominal fat. Is there a connection?
tazman3
in
NRAS
10 months ago
Does RA exist in the hips?
RA was diagnosed 4 years ago and I am now on
Sarilumab
jabs. I had a terrible flare around 4 weeks ago and couldn't get through to Rheumatology by any means. The pain in my hips was like fire and I had no real sleep for 2 weeks. The pain was also in my my bottom and groin.
RA was diagnosed 4 years ago and I am now on
Sarilumab
jabs. I had a terrible flare around 4 weeks ago and couldn't get through to Rheumatology by any means. The pain in my hips was like fire and I had no real sleep for 2 weeks. The pain was also in my my bottom and groin.
tazman3
in
NRAS
5 months ago
Rheumy helpline not replied to me 😢
Hi all, I've had RA since 2018 and I've had a cocktail of drugs since then, but I've now been on
sarilumab
for around 2 years and was doing okish up until a few months ago. I've rang Rheumy helpline last Wednesday and we have to leave a message but still had no reply.
Hi all, I've had RA since 2018 and I've had a cocktail of drugs since then, but I've now been on
sarilumab
for around 2 years and was doing okish up until a few months ago. I've rang Rheumy helpline last Wednesday and we have to leave a message but still had no reply.
Natbat87
in
NRAS
7 months ago
Leflunomide side effects
I've been on
Sarilumab
for just over a year. My bloods are very good but have had several bad flares. Just added Leflunomide v. low dose at present every other day. I'm itching everywhere even though I take antihistamine for hayfever. Worried the itching will increase as the dose is increased.
I've been on
Sarilumab
for just over a year. My bloods are very good but have had several bad flares. Just added Leflunomide v. low dose at present every other day. I'm itching everywhere even though I take antihistamine for hayfever. Worried the itching will increase as the dose is increased.
DenMum
in
NRAS
11 months ago
3 Year Anniversary!
Does anyone have an opinion on
sarilumab
? Recently approved in US for treatment of PMR. My rheumatologist suggested it to get off the prednisone. I am down to 1.5 mg per day. Going oh so slowly but not slowly enough for Rheumy! Always so appreciative of the advice and support of this forum.
Does anyone have an opinion on
sarilumab
? Recently approved in US for treatment of PMR. My rheumatologist suggested it to get off the prednisone. I am down to 1.5 mg per day. Going oh so slowly but not slowly enough for Rheumy! Always so appreciative of the advice and support of this forum.
kimsaunsc
in
PMRGCAuk
11 months ago
Update after Rheumy visit
two weeks He may do an aortic ultrasound if ESR does not come down He did tell me if my vision impairs to take 60 mg prednisone and call office right away Hes a seasoned NP, in a practice with 2 MDs but told me he seems to be the PMR/ GCA provider He gave me info on newly approved by FDA drug
Sarilumab
two weeks He may do an aortic ultrasound if ESR does not come down He did tell me if my vision impairs to take 60 mg prednisone and call office right away Hes a seasoned NP, in a practice with 2 MDs but told me he seems to be the PMR/ GCA provider He gave me info on newly approved by FDA drug
Sarilumab
GMA74
in
PMRGCAuk
10 months ago
Fatigue support?
I was diagnosed with seronegative RA back in 2017 and although initially the pain and swelling in the majority of my joints was the main problem (on 3 DMARDs then started on Biologic
Sarilumab
in 2019), over the years it’s the fatigue that has become the biggest challenge.
I was diagnosed with seronegative RA back in 2017 and although initially the pain and swelling in the majority of my joints was the main problem (on 3 DMARDs then started on Biologic
Sarilumab
in 2019), over the years it’s the fatigue that has become the biggest challenge.
Julied24
in
NRAS
11 months ago
Sarilumab 200mg SC
Has anyone been prescribed this drug for rheumatoid arthritis. Have you found it beneficial, did you have any side effects. Many thanks .
Has anyone been prescribed this drug for rheumatoid arthritis. Have you found it beneficial, did you have any side effects. Many thanks .
rubybelle12
in
LUPUS UK
1 year ago
KEVZARA® (SARILUMAB)
KEVZARA® (
SARILUMAB
) Thanks is advance 😊
KEVZARA® (
SARILUMAB
) Thanks is advance 😊
Capprice
in
PMRGCAuk
10 months ago
Does anyone have information about or has tried the biologic Sarilumab (Kevzara) for PMR?
Just heard about this biologic and a research study done involving PMR patients with favourable results (albeit a small sample size). The official Kevsara website says: "For adults with Polymyalgia Rheumatica (PMR) after corticosteroids have been used and did not work well, or when a slow decrease in
Just heard about this biologic and a research study done involving PMR patients with favourable results (albeit a small sample size). The official Kevsara website says: "For adults with Polymyalgia Rheumatica (PMR) after corticosteroids have been used and did not work well, or when a slow decrease in
PMRCanada
in
PMRGCAuk
1 year ago
Experiences with Sarilumab
Also, I understand how
Sarilumab
works blocking IL-6, but I'd really like to know how that blocking effects the working of the rest of the immune system. I've tried reading various papers but they descend into medical speak very quickly.
Also, I understand how
Sarilumab
works blocking IL-6, but I'd really like to know how that blocking effects the working of the rest of the immune system. I've tried reading various papers but they descend into medical speak very quickly.
DenMum
in
NRAS
1 year ago
Biologics to treat PMR
I found this from the US in Feb 2023: KEVZARA® (
SARILUMAB
) APPROVED BY FDA AS FIRST AND ONLY BIOLOGIC INDICATED FOR PATIENTS WITH POLYMYALGIA RHEUMATICA Three times more patients treated with Kevzara achieved sustained remission compared to placebo in Phase 3 trial.
I found this from the US in Feb 2023: KEVZARA® (
SARILUMAB
) APPROVED BY FDA AS FIRST AND ONLY BIOLOGIC INDICATED FOR PATIENTS WITH POLYMYALGIA RHEUMATICA Three times more patients treated with Kevzara achieved sustained remission compared to placebo in Phase 3 trial.
HelenDaisy
in
PMRGCAuk
8 months ago
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