Hi i am new member from the midlands of uk. Have had ... - NRAS

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Hi i am new member from the midlands of uk. Have had RA for about 6 years. Retired x

Taichigirl profile image
14 Replies

Have had R for about 6 yeats & been ok on MTX but now have included Hydroxychloraquine & hoping it helps. I have been hapoy to read your similar experiences. My probs are hands & feet. Am retired so i can rest whenever i get fatigue which is q a bit lately! Best wishes & health xx

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Taichigirl profile image
Taichigirl
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14 Replies
Bootoo profile image
Bootoo

Welcome to the club nobody wants to be in. There is a wealth of knowledge from all the lovely people on here, no question is too small and there will always be someone with an answer. Lovely to meet you.

Gnarli profile image
Gnarli

I'm sorry you've had to join us, but this forum has such friendly and well-informed people it has been an absolute godsend to me. I hope you find the same.

Gottarelax profile image
Gottarelax

Hello and welcome. The fatigue is something that I find difficult to come to terms with. I feel like I'm just making excuses for laziness when I give up doing tasks because of fatigue and feel so conflicted about resting. Not retired yet so feel like I save all my energy for work and then my husband ends up picking up the slack.

tyncwmmarchhywel profile image
tyncwmmarchhywel in reply toGottarelax

Hi Gottarelax the fatigue just seems to appear over night, but can take days to ease, easier said to not do too much, but there are no fairies in our house.

J1707- profile image
J1707-

Hi and welcome. I too have had RA for six years and fatigue my worst symptom. My hands and feet mostly effected . Many drugs later and I’m just finding my way. I’m now on rituximab early days but things have improved most noticeable is my fatigue. I’m now getting board not had the energy before. Fatigue is a sign of active disease. If your currant treatment is not helping then contact your rheumatologist and explain your symptoms. Keep trying drugs and hopefully you will find the one for you.

Taichigirl profile image
Taichigirl in reply toJ1707-

Thank you thats helpful. Have had a few rest days which have helped but i get restless! Xx

Lizzyear profile image
Lizzyear

Hi,

I am also on methotrexate and Hydroxychloraquine. I have also been on the biologics. I have most pain in my hands, ankles an feet too. Like you I am retired, and rest when pain gets too much. Welcome to this site. I live on the edge of the midlands too. Nice to have someone near me.

stbernhard profile image
stbernhard

Hello Taichigirl. Your name implies you are doing something very good for yourself. Have you heard of NRAS National Rheumatoid Arthritis Society? If not, it would be well worth your time to register as a member and get access to a plethora of well researched information and help in all aspects of living with RA. NRAS is a wonderful organisation staffed by friendly dedicated fantastic people. There's a lot of information about fatigue as well. All the best to you 😊

Taichigirl profile image
Taichigirl in reply tostbernhard

Thank you xx

Mmrr profile image
Mmrr

Welcome to the forum

GranAmie profile image
GranAmie

Welcome and sympathy. Any solution to the problem of using a mobile when fingers won't behave? My Doro doesn't work for me now :=(.

KittyJ profile image
KittyJ in reply toGranAmie

I’d check if you get a new phone ( or maybe the one you have now) that it will enable you to dictate so you don’t have to type answers to texts etc. That’s what I do the majority of the time 😊

GranAmie profile image
GranAmie in reply toKittyJ

Thankyou!! Will explore this ASAP [him indoors has Covid @83 and I'm CEV and isolating]. Sounds like a solution!!

Gladders profile image
Gladders

Welcome to the forum, people on here have a vast knowledge and experience of ways to help/cope with the exciting challenges RA throws at us. I am also from the Midlands under the care of UHCW.

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