I have noticed on this site you may only be in favour of jab no discussion allowed.not very democratic
covid : I have noticed on this site you may only be in... - NRAS
covid
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Uglow
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I agree with you.. but we may not be very popular!!!
Discussion is fine. Unsubstantiated rants are not.
that’s rude
and extremely unjust
Is there something relating to rheumatoid arthritis you wanted to ask or talk about?
Just factual. This part of healthunlocked is moderated by NRAS. A national charity who support evidence based medicine. And as such support Covid vaccines for this population.
Exactly this.
yes evidence based not just one persons opinion.
I take your point, but I consider myself and others to be people, rather than populations, and indeed this is an important principle in the good medical practice (treating an individual as an individual). It's also very important to be respectful of people's opinions and values, especially as they relate to complex topics that are of personal concern. As the late, great Robert Feynman once remarked, 'to simplify complex things is to misrepresent them.' Put another way: to have a black and white view on a topic that is rather grey by nature is also a form of ignorance.
in reply to helixhelix
And the EVIDENCE SHOW IT WAS ALL LIES FACT EVEN DR'S TELLING THE TRUTHS NOW
Uglow in reply to
lol no comments I need my balls
helixhelix in reply to
please don’t reply to me again. I want no contact with people who “shout” at me online.
I think it’s balanced. As long as it’s accurate and honest. I ve had 6 jabs and experience of 4 has been positive one - average and one - defo not.
discussion has been done SO many times on here I think we all know both sides of the camp and it all boils down to personal preference I am jabbed my hubby is not his choice and i have no issues its his body. I don't need the forum to discuss this, I am more in need of support with RA and its complicated friends.
I agree but if someone asks should we not answer or only if it’s pro jab!
I think its ok but both sides tend to write almost huge essays and then it all gets feisty and people need to a/remember what this site is for /b zealousness from both sides take it down a notch and also if someone wants a long chat with you you can PM each other for the discussion so it does not over take the main forum.
This is my personal view but I just feel so much has been said on here what more could be said.
We are all adults and no one has a right to scaremonger either way. As long as that person has made an informed choice it is their business and no one else’s.
Whilst I have seen some extremely passionate responses for the vaccines I have also seen those very much against, as well as a significant number who say it is an individual choice. 🤷🏻♀️
Yes, exactly this. 💗 I am here as I’m more interested in the forum for the experiences of those with RA too. Yes, it’s personal preference re vaccinating or not and the reason we are here can get clouded when vaccine beliefs start to polarise people. I feel some people who didn’t even have RA/RD have been here to agitate and with a certain agenda in the past so I don’t want to be part of any of that. Anyhow I’m outta here for a while with mega dental stuff for several weeks so I hope you’re steady and hope you’re settling in your new home and all is good there. Hope the cats like it too! x
over and out goodnight all
In slang, a troll is a person who posts or makes inflammatory, insincere, digressive, extraneous, or off-topic messages online, or in real life, with the intent of provoking others into displaying emotional responses, or manipulating others' perception, thus acting as a bully or a provocateur.
The sort of people you don’t ever want to be amongst in real life or online.
I don’t think that is true…if anyone doesn’t want to be vaccinated it’s up to them…….OK- people may disagree with that…but everyone is allowed to choose.
Personally I’m not having all the available boosters…..I did catch Covid recently, but I was not seriously ill…despite being elderly & on Rituximab…it’s a personal choice.
But on the whole I do believe vaccinations are worth having…but that is my choice…..if you don’t want to be vaccinated…..that’s your choice.
And this is why i don't come on here to often now. We should be supporting each other with our RA , this post seems to be put up to ignite passions.
Me too. Totally agree with what you’ve said. x
Hi allanah, I know what you mean but great to see you - hope you're doing well 😘
Same here - I rarely post anymore for the same reason. Why don't people join a vaccine forum if that's all they want to write about.
I may have missed what you are talking about as I’m not on here daily… but rants on either side are inflammatory and I think we have enough inflammation to deal with lol! I’ve not had good experiences with the covid vaccine and have said so on here without any negative responses at all. Don’t feel discouraged as people of all viewpoints are on here . Our RA means we all suffer and we are all fighting the same awful disease . Let’s pull together and respect each others experiences.
I think by the very nature this is a group of immunosuppressed, who most were shielding due to their risks with covid, most are pro vaccine. It hopefully allows most to get some normality back. Covid is still with us, and there are still around 600 deaths a month. My husband is a scientist in drug discovery, and I’m confident at the amount of work that goes into getting meds and vaccines to market, and happy to accept. However I also appreciate it’s an individual choice, and gave no issues with others declining, as long as their evidence is from reputable sources, rather than the many sites installing fear with false information. As others have said the NRAS oversees this site, so it’s important that anything discussed is based on facts. It’s also a support group so there should be no shouting anyone down for holding different views. I’ve just had vaccine no 7, as I’m on 5 immunosuppressants and my ribs are fused, with no chest expansion, so I’m told I would struggle if covid got to my chest. I respect others feel differently though.
Personally I think think this is a very safe site for educated discussion. If you feel it’s safer and better for you not to take the covid immunisation that is your decision. I have taken and will take as many covid vaccinations offered as it allows me, a person who is extremely immunosuppressed to live my life with less fear of becoming I’ll or hospitalised. I wish you well whatever you decide about vaccinations it’s your personal choice.
I have never read anything about bias one way or the other, people react or don't react to the jab its quite simple and their views are not censored, I'm having a jab Saturday and if I get a reaction I will post it up simple.
I believe everyone has a choice. Personally I am pro vaccination & have had 5. However after contracting Covid & developing Long Covid it was apparent that the last few vaccinations I received had a negative impact on my recovery. After discussion with my Rheumatologist it was agreed that I would not have further vaccinations at the minute. Obviously that will be reviewed at my next appointment in July.
I've only ever seen views from both sides being accepted.I have an appointment for my 7th Covid vaccination which I don't think that I will take, due to the efficacy of my Toficitinib dropping and a change of meds required after my 6th. My choice which has never been challenged on the forum.
Didnt understand?
I’m unvaxxed but I think its a personal decision despite my own opinions. Someone had posted before thst she was not vaxxed and i had replied to her post. Every other reply was completely ok with the fact that we are not. I know its highly controversial but i was extremely happy that we did not get any negative feedback about it and i think that is amazing. Its just not a place to talk about whether or not we think its right or wrong but no one had a problem with whether we are or are not vaxxed. Like i said its a personal choice and this is an arthritis forum
Exactly. Your choice.
I have no problem with people deciding not to be vaccinated for one reason or another.
Just one needs to recognise that this site is only possible because of NRAS, and is to support people with RA.
yes my thoughts exactly
Its going to be 30 years of RA gone threw all meds available after cancer stoppef only 4 mg of prednisone sincr 2013 after that went back to Enbrel had to stop 6 month later because neumonia both lungs intensive unit etc went to Rituximab didnt work so back to prednisone .Never been vaccinated for flew or Covid i also have neurophatic pain as i had also shingles rare case 2 month of hospitalisation and left me with NP so what cam i telm you. I have gone through all kind of wars.Yesterday last GP told me that there is no other meds for me due to alm my pathologys so still i will keep with pred 4 mg a nd pain killers when i have a flair.Also have lung problems sleep with oxygen.So still here on my 2 feet i take care a lot of myself only have a wonderful husbund but no family or kids.Hope you keep well sorry of my inglish i am fron Argentina.
Well said and I salute your courage - I have had good intentions to make the same comment many times but lacked your integrity.
These other people who do not agree with you/us are not 'uneducated' but 'miseducated' and they believe that the mainstream media sources are telling them the truth as perhaps we all did to start with (well for the first couple of days any way); these others, bless them, are due for a rude and a shocking awakening, and I wish them no ill.
I am 82 at the weekend and I shall drink to your health and bravery and try to follow your example in the future.
It is odd how other meds can be discussed, but covid jab discussions can still cause upset. The media is partly to blame for this.
I believe firmly that everyone should have the choice regarding what they put in their own body. My biggest issue with the covid vaccines has always been about the clear lack of 'informed choice'. People were not given all the information. A bit difficult since the information sheets in vaccines were blank. Also coercion, threats of job loss, and emotional blackmail should never be used in medicine. It's totally unethical.
Give people all the information. If they want it they should have it, if not that's fine too. End of really.
Rosie-NRASPartnerNRAS
We fully respect that people are entitled to their own opinion on this on forum, however, we do ask that you respect each other. Rudeness, and shouting at one another does not make a happy, supportive forum. We will be turning off comments now, to prevent any further upset. NRAS Helpline.
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