Months now and haven’t checked in with you guys 😢 feeling like
White
They thinks after some time I’m allergic to the Hydroxy 😣 but I be been Feeling so rough and trying To work as hubby cannot after the brain saga 😞still
Feeling awful bloods are not good and have
To stop the Hydroxy x I actually cry very much out of site as don’t want anyone to know how awful I feel x
anyway enough moaning and feeling sorry for myself onwards and upward x my puppy is growing but a little shit x garden is coming along and we have space to sitz hubby wants
To get a job but I’m so worried it will be to much after the hammorage x I have realised I’m very anxious an it sure what to do about that x so basically I’m asking what you
Guys think I should do about being anxious x sorry for not being regular on here x I just can’t cope really currently 🥲
Written by
Gottaloveastaffy
To view profiles and participate in discussions please or .
Glad you've come here to off load, we all need somewhere to vent x
You have alot on your plate and its understandable to feel anxious, I guess for me it would depend how anxious you feel.
I tried mindfulness and I find controlled breathing really helpful but if you feel you need something a little more or need more information I would definitely advise having a word with your GP.
Hope they have a plan to help you RA wise, trial and error with these drugs can really really get old fast !
Considering everything you are having to deal with I'd be amazed if you weren't anxious and stressed. We all know that stress is not good for us and it causes all sorts of nasties. There's loads of info on the NRAS website on ways to relieve stress, your GP will have access to self help info and groups. Maybe give the helpline a ring? They don't know you so you can be as honest as you want knowing that there'll be no blabbing. We all need to talk sometimes. I hope your rheumy team are sorting out new effective meds because feeling better will help you cope better. Sending warm virtual hugs and best wishes
Anxiety can be the pits and it's really worth reaching out for help. My first experience of it was with peri-menopause and it was awful - I could barely function. As it was hormonal (nothing else going on in my life at that stage) I eventually turned to HRT and thankfully that did the trick.
Roll on several years and and it hit me again but this time due to life - Mum getting increasingly frail and then my husband's stroke. I tried the things which had helped me before (along with the HRT) like counseling and mindfulness but eventually allowed the GP to persuade me to try medication and for me, it was what I needed at that time as it broke the cycle and gave me space to come to terms with various pressures. I'm still on a very low dose as it helps me sleep and I have an "emergency" medication in the cupboard but haven't needed to use it for ages although knowing it's there is reassuring.
I found a book helpful "Making Friends With Anxiety" (which was a short and easy read) and an exercise which I posted about before was great - I'll post a link in a minute. I found that the medication gave me the headspace to use other techniques to deal with the anxiety and to cope with everything else I was dealing with. I hadn't got any health issues at that stage and you've got that too!
You might not want to go down the medication route but please don't ignore it as it can spiral out of control. Reaching out here was a good start - and brave - so try talking to your GP or the NRAS helpline.
Sending you hugs darling. Its no fun being poorly like you are and until you get sorted out after stopping hydroxy i think you will feel poorly, but it will get esier darling. xxxxx
Sorry to read your update this morning, sounds like you have an awful lot going on. Also if you are feeling so unwell, perhaps it is only to be expected that you would feel anxious too? I know when I am flaring, I notice that I am a lot more anxious about things and overreact to small problems which I would normally just shake off. Having said that though, I would also second the comments others have made above about raising the feelings of anxiety with your GP, to see if they can offer specific support. Big hug 🤗
It is so lovely to hear from you, even although you are not doing so well. I don't have very much to add to what others have said, they have offered some good advice.
Remember nothing lasts forever, things will change, look after yourself in the meantime, mindfulness may help you do this. It gives you a wee but space just for you.
Hello mindful offer a free 30 minute session every Wednesday evening at 8pm (there are lots of others too )
Morning. I would get some mental health support. Ask your GP to refer you to IAPTS, or look online at MIND or Rethink. You are dealing with a lot. I would also try some anti-depressants. You needn’t stay on them forever, just view them as a gentle hand under your elbow to help you along. Take care x
Hello Gottaloveastaffy, sorry you are getting anxious ,this often happens when people get one thing after another happening . It makes your illness harder to cope with. Its Ok to feel that way sometimes but don't be afraid to say I can't cope right now. Remember a problem shared is a problem halved. Theres always someone here to vent too. Tablets that don't work are a further stress I understand as I have allergies and my drugs have to be very closely monitored even the GP feels alternative options have to be used in my case. Your Hubby is a different matter he needs help from GP to come to terms that he may not be able to go back to work and if he does it may only be part time or staged return. He has to be cleared by the GP to return to work also. Also he will have to take work more slowly to help prevent another health crisis so you are justified in being anxious with concern. You cannot change some things so you have to try and learn ways to accept what you cannot change. Walking the dog can be relaxing, soft music, anxiety relief tapes help to take away stressing thoughts, reading stories can distract your mind from worries. Reading these post can too. LIve for the moment , no one knows what tomorrow will bring, deal with it when it comes. Sending a virtual hug and xx because I know hugs can melt away a thousand worries . Take care
Just wanted to say thank you for allYour supportive comments x all
Taken on board x really do appreciate them all x ugh such a mess currently just feel overwhelmed after staying tough for so long and now the tiredness has hit x. I’ll bounce back x always do 😊 just off to bed now x just thank you all 💕
Oh real feel for you ,we all have these days , I have had 3 wks of feeling bad ,had to stop my injection due to infection in blood, now in a lot of pain , I keep telling myself I’m not going to let this beat me , if I do I will end up going down hil , will lose interest in everything , we have to keep fighting back , try not to go into a feeling of negativity as you wont move on , it is very , very hard , we should all try and support people through these difficult times as we are the only ones who know the pain we go through.💪
Good morning. If you would like support, information or just someone to talk to, our NRAS helpline is open every weekday from 9.30am to 4.30pm nras.org.uk/helpline/ 0800 298 7650. Or have a look at our website nras.org.uk. Best wishes.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Doing well on Tocilizumab 🤞🥳
well not been on for a bit now 
Well i am not surprised
Newly diagnosed and very scared
