Doing well on Tocilizumab 🀞πŸ₯³: Hi Peeps, Hope you're... - NRAS

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Doing well on Tocilizumab 🀞πŸ₯³

Moomin8 profile image
Moomin8
β€’31 Replies

Hi Peeps,

Hope you're feeling relaxed this Sunday morning?

I just wanted to put a positive comment on here about Tocilizumab. My inflammation markers: ESR and CRP have been within 'normal' range for the last couple of monthly blood tests! πŸ₯³I have been on Tocilizumab since January and it seems to be doing it's job so far! 🀞

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Moomin8 profile image
Moomin8
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31 Replies
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MadBunny profile image
MadBunny

Great to hear . Long may it last πŸ€—

Moomin8 profile image
Moomin8β€’ in reply toMadBunny

We all know how these things go, so I'm just making the most of it by walking to build my strength up and swimming etc. It's been a long time since my feet have been ok. I'm not saying I'm pain-free, because damage has been done, but I'm taking a holiday from extreme, continuous all over pain.

MadBunny profile image
MadBunnyβ€’ in reply toMoomin8

Of course. It's the same with me - damage already done, but I've managed to get back to some sort of 'nornality' with improved mobility since being on Cimzia.

Moomin8 profile image
Moomin8β€’ in reply toMadBunny

Brilliant news! I did really well on Cimzia too πŸ™‚

springcross profile image
springcross

That's great Moomin, I hope it continues to be so for you. 🀞

Lolabridge profile image
Lolabridge

That’s good. Hope that continues for you.

Moomin8 profile image
Moomin8β€’ in reply toLolabridge

Thanks πŸ™‚

AgedCrone profile image
AgedCrone

πŸ‘So pleased for you…..& thank you for taking the time to tell us your good news, very encouraging!

Awesome πŸ‘Œ Nice to hear x

allanah profile image
allanah

So glad, it changed my life too ! One word re bloods as told to me by biologic nurse, your bloods will look normal due to tcz but if you have pain you could be in a flare x

Moomin8 profile image
Moomin8β€’ in reply toallanah

Ah, OK - thanks for that top tip πŸ‘

allanah profile image
allanahβ€’ in reply toMoomin8

I didn't know my biologics nurse told me !

Moomin8 profile image
Moomin8β€’ in reply toallanah

Really? What did they mean by that?

allanah profile image
allanahβ€’ in reply toMoomin8

She's said your bloods appear controlled like they do on steroids but you may have a hidden flare , which from my das score I dud

Moomin8 profile image
Moomin8β€’ in reply toallanah

Oh πŸ˜’How on earth are we supposed to understand all of this? So what did she do?

allanah profile image
allanahβ€’ in reply toMoomin8

Just following their advice she new from clinical examination I was uncomfortable so in a flare but if your not uncomfortable and DAS is good snd bloods are good it's obviously working and extremely good news. What I was trying to say was if you are in pain yhey will still treat, does that make more sense?

Moomin8 profile image
Moomin8β€’ in reply toallanah

Yes, absolutely - thanks 😊

Biofreak profile image
Biofreakβ€’ in reply toMoomin8

So glad to hear it's working for you and if your pain is much less as well as your bloods for ESR and CRP that's really great news. If you're walking and swimming it certainly sounds as if it is. I know what allanah means though. My bloods were perfect when I was on Tocilizumab but the pain never left me. In addition all my muscles everywhere ached and I could hardly do anything. So I was taken off it and within a couple of weeks the muscle aches subsided. It's just something to be aware of and I know lots of people do really well on it just like you.

strongmouse profile image
strongmouseβ€’ in reply toallanah

Thanks for this. My husband has just started Tocilzumab last month and so far has no reflief from pain. Waiting to see what the blood tests show. So disappointing, but he did find out it can take a while to have good effects. Hoping it helps after next infusion. xx

allanah profile image
allanahβ€’ in reply tostrongmouse

Mine did kick in well after no 2 but they do say after 12xweeks, fingers crossed x

skinnycappuccino profile image
skinnycappuccino

Good morning Moomin8 β˜€οΈ That's excellent news πŸ™Œ!! Very pleased to hear Tocilizumab is doing its job and I hope it lasts forever!! Thank you for sharing your good news and all the best, Christine

Moomin8 profile image
Moomin8

Thank you 😊 I just think that it's important to share positive news sometimes.

Madmusiclover profile image
Madmusiclover

πŸ₯³πŸ‘πŸ‘

Sprocknitter profile image
Sprocknitter

Thank you for sharing this good news. I am about to start this medication. It is good that you have a positive result.

Moomin8 profile image
Moomin8

I wish you the best - hopefully it will be good for you 🀞

Florida100 profile image
Florida100

This is just brilliant news and hope it continues for you. Thanks for sharing this encouraging news!

stbernhard profile image
stbernhard

Very good news, it's wonderful when things work well and you feel you can get on with your life a little easier.

Zahmu profile image
Zahmu

Thats great news. Thank you for sharing positive news. 😊 all the best. And just enjoy

OldWiliby profile image
OldWiliby

Hello, amazing! Just wanted to say hello, I also started in January and I’m so relieved it’s working 😊

Moomin8 profile image
Moomin8β€’ in reply toOldWiliby

So, you it's working for you too?

Green230461 profile image
Green230461

Great newsπŸ’

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