Updated: I have been on benepali for 5 weeks and I am... - NRAS

NRAS

36,432 members45,077 posts

Updated

Carolsos profile image
21 Replies

I have been on benepali for 5 weeks and I am feeling it working at last! I am not in as much pain as I was 5 weeks ago. I am only taking one lot of pain killers a day and sometimes 1 naproxen, so much improved. My fatigue has nearly gone. It only comes back when I do too much or on a Friday before my days off. Hope everyone is keeping well. Thanks for listening.

Written by
Carolsos profile image
Carolsos
To view profiles and participate in discussions please or .
Read more about...
21 Replies
Potatos profile image
Potatos

Such good news.

springcross profile image
springcross

That's great news Carol, you must be so relieved, I'm really pleased for you.

MadBunny profile image
MadBunny

Great news! I'm so pleased for you. It's a good start, and I'm sure things will continue to improve. I love hearing good news like that 🤗

Neonkittie17 profile image
Neonkittie17

Great news! 👏🏻👏🏻👏🏻

Madmusiclover profile image
Madmusiclover

Hurrah!

sylvi profile image
sylvi

Hugs darling.xxxxx

barbieg profile image
barbieg

Good to read you are in less pain Carol NOT Carlos as I’ve always thought! That will teach me to slow down reading. 😉😉

Carolsos profile image
Carolsos in reply to barbieg

Haha, likewise

Suzy-P profile image
Suzy-P

Great news

Deeb1764 profile image
Deeb1764

Oh wow Carol that is so good to hear. It is lovely to hear when someone finds their medication path that works and gets their life back to a better place x

Boxerlady profile image
Boxerlady

Such good news 🎉

medway-lady profile image
medway-lady

Good news it worked well for me too, no painkillers needed at all. But it did cause me a lot of UTI's so had to be stopped, Now on Orencia which I don't think is as good despite being more expensive. Keep an eye on the pee and make sure you're getting any potential infections checked for. x

Carolsos profile image
Carolsos in reply to medway-lady

Ok thanks for that.

Lolabridge profile image
Lolabridge

That’s excellent news.

Oh good 👍

Anniebl24 profile image
Anniebl24

Good to hear the news. Can I ask did you have a shingles vaccine before you started? I am going to start this drug soon and have been told to get the shingles vaccine, however having had a terrible time with the covid vaccines, I am really worried about it.

medway-lady profile image
medway-lady in reply to Anniebl24

I was too young to get the Shingles vaccine but I'd had Shingles anyway. It is the most painful (like agony) disease imaginable. The pain of RA pales into insignificance. I was admitted to hospital for pain relief for 3 days so they could get it under control. I still take the Antiviral Acylovir even now some good few years on. So my advice no matter how affected you were by the Covid vaccine get the Shingles one. You can avoid the Covid but Shingles is in your body as a virus if you've had Chicken Pox, it is treatable but can lasts for months and even now I get a sort of pins and needles where it erupted over my spine, hip and leg and groin. It really is a nasty condition and if you've had it once you'll get it again and again etc.

Carolsos profile image
Carolsos in reply to Anniebl24

No I didn't, they did a blood test to see if I had already had chicken pox, which surprised me to find in fact I had chicken pox before. So no vaccine for me. Wish you good luck and hope it works for you too.

medway-lady profile image
medway-lady in reply to Carolsos

Please check this as you only get Shingles if you've had Chicken Pox. So would need a vaccine. Are you sure?

oldtimer2 profile image
oldtimer2

Hurray! And thanks for posting some postive news - we so often only post when things are not going well and it helps people to know that there are 'ups' as well as 'downs'.

KittyJ profile image
KittyJ

Brilliant news, lovely to hear positive outcomes 😊

You may also like...

Update

times a day. It's been a lovely day today with plenty of sunshine! I hope everyone is keeping well....

Update

Hi all hope you are a having a pain free day .... met my rhumi nurse today only ever seen consultant

update!:)

last week and i felt the difference within a few days, they really do work for me! i now have a lot...

Update, update post surgery...

and its only 7.30 pm. But ladies..its all about me toay and I think I can milk this for days...

Update.

fortnightly blood tests for 6 weeks then monthly after if all goes well.my pain has subsided from...