Since having RD I’ve struggled with the heat in bed . No heating on and windows wide open no matter the weather. Hubby wears layers in bed and I’ve always got at least a leg out. He use to complain so much and even bought a thermometer and use to go round muttering it’s bloody 4degrees in here( I turned a deafen)
He worked away this week in Glasgow. He was staying in a rented apartment . The first night he couldn’t sleep as too hot but the radiators were off . So off to reception and asked was the heating centrally controlled. No they said just turn the controls on the radiators . Oh I’ve done that said hubby. Oh we will send up some portable heaters. Hubby said NO NO!!! I’m too hot , oh we never had someone complain about being too hot in Glasgow. Hubby’s reply well they haven’t got a wife that sleeps in an icebox 😂😂😂😂 I’ve got him trained well 😂
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Ha ha - that is unusual feeling too hot in Scotland. I've got psoriatic arthritis and, like you, I usually have a leg or foot out the bed...wake up boiling hot and sometimes a bit feverish. Can't blame the menopause either!
The temperature we like is a learned thing, so you have been a good teacher 😂 .I have a 4.5 tog duvet, sleep with the window open, no heating and a scrappy top on and I live in Scotland.
My partner whose own home is cool, very cool wears a fleece over his clothes in my house and finds it cold 🥶
I think that's appalling, You will need to get his benefits applications in as quickly as possible, maybe asking your sister to do that. Tell it as it is. My heart continues to go out to you. ❤️🙏
Fine for you youngsters but far too labour intensive for this old lady ……..….cashmere socks need washing…& mine slide off during the night,& nothing is worse than having to get up in the middle of the night to refill a Hottie!I’m staying with my electric technology
Same here, heating off, window open, leg out of the bed (on and off all night), sleep in tee shirt and pants and use a 2.5 tog duvet all year, in fact I’m looking for a lighter one for summer.
Dunelm do a 1 Tog duvet . . .!! Still trying to get hubby to migrate down from 9 Tog to 4.5 Tog at the moment. Used to be the other way around pre RA. Looking forward to the 1 Tog days, bliss.
Same as us, duvet wise! But, we've gone one further and have separate mattress wth a 6' base. I have to get up the loo three or four times a night and hubby says he doesn't get any sleep because it disturbs hiin too much if we have one mattress! I can see his point. 👍
We had separate duvets in a hotel in Austria many years ago. I do keep suggesting it! I'm far too hot at the moment even though I'm in summer night clothes. However, slightly better since giving in to HRT (after 11 years of nagging by the GP). Hot sweat spikes have largely eased, just generally all-over hot now which is less disconcerting I suppose.
Me too. Always needed bed socks as I have had Reynaunds since I was little. However, they only stay on for a few minutes now, then I'm back to trying to stick one or both feet out from under the covers.
We don’t keep heating on at night even when it’s cold.I get too much pain when it’s hot.I tell husband to put a fleece on . I take layers off and he adds more😆
Ice box made me laugh out loud J! The upside is that he'll be appreciating the lower energy bills now that they have increased so much. I have boiling hot feet! They really get to me, especially at night and I lose a lot of sleep because of them, but right now I am feeling truly thankful that I'm not as bad as you are. I wonder if anyone has ever mentioned this over-heating to a consultant? I'd be interested to see if there is a link to autoimmune issues. ❤️ xx
Yeah a man … I’m going private to see a menopause specialist. If it is fine do something about it . If it isn’t well will give Rheumy a bit of a hard time ( politely)
Oh heck! I can believe that.It’s so weird to have hot flushes at my age. I bought a chillo gel filled pillow from Tesco and keep it under my pillow - it stays cool that way - then when I get too hot I pull it out from under the pillow and wrap it over various hot parts of my body and that works pretty well.
How bad is off the scale,I have a mear 5mg Predislone been up since 7 this morn iong put out washing had shower and that about it, canhardly keep my eyes open . Review at the end of May,tring to get some notes together to see if Ican get some thing better but have a bad history of biologicals rhumy notr to keen to tryJKS. THANKS.
Some days I sleep 20hrs and don’t eat as I haven’t the energy to chew . I will walk the dog ( not far) then sleep for 2 hours . I barely do cleaning as I’m far too tired . Definitely have more energy when I have a steroid injection.
When you say you have a leg out, is that from under a duvet? I find duvets unbearably hot whatever the temperature of the room and however low the tog of the duvet. We use blankets, they are much more adjustable.
I'm the same as you. Cold all day long with two cardigans and a scarf, but once in bed sweat profusely - no heating in bedroom, windows open, lightweight duvet all year round.
It was particularly bad after the birth of each of my three children. I'd sit up in bed breastfeeding with sweat running down my face. I'd sleep on top of a towel that I would change after each feed together with the pillow case.
I’m totally with you re the cold bedroom thankfully my hubby won’t have heating on, windows open, curtains closed during the hot days & door closed. I love walking in before bed. They say it’s much healthier for you, we very rarely have a sniffle, I’m sure this helps. Our house isn’t overly heated, I’d rather use a throw in the eve if needed. I have adapted to enjoying cold showers daily as this has helped a great deal to overcome the continuous furnace, good to hear you have naturally swayed your hubby to enjoy the cooler healthier environment. Happy sleeps 💤 😴
Hi Durrell - I started cold water swimming a year ago - totally amazing for my pains. I just wear a swimsuit, woolly hat, gloves and swim shoes all year round. I often go into the water with a headache and limping with pain - come out after 10 mins - headache gone, limping gone. Would highly recommend - 🏊♀️🏊♀️😃
Well done you, I love getting in the sea as often as poss , no wet suit just my swimsuit & swim shoes to keep balance getting in & out, but like you say it really does the trick & you feel so good for it afterwards, it’s great that we find it’s so therapeutic just being at one with nature. 🏊♀️🏊🏽
I’m the same use a 4.5 tog duvet all year. Even in the day I can’t tolerate heat. I have a fan in every room, even blowing on me whilst I eat dinner. We went on a Norwegian fjord trip, I was in a T-shirt and everyone else had thick jackets on. They gave us blankets, which whilst everyone else wrapped round them, I used mine to sit on as my pelvic bones were agony. I got some strange looks 😂.
Oh dear. I’m never freezing. I regularly walk along our promenade in T-shirt, and jacket tied round my waist. Hopefully will help with the electric bills this year 🤪
That is funny! I too am one who needs to sleep with the window opened a crack (at least), have to breathe in that fresh air even in the coldest of winter months, and have the heat turned WAY, WAY down. After being married for over 20 years we finally decided to sleep in separate beds. His very LOUD snoring, his LOUD "Sleep Apnea" machine (with long tangling tubes), his size (6"8 300lbs), BAD back issues (requiring him to have a VERY hard, uncomfortable mattress), and my issues of having windows opened, needing a TV to watch because I am awake so many nights due to pain, etc...just made sense! Honestly, we've never been happier in our marriage since we got our own beds! I know it sounds sad but it really isn't, it just made good sense and we get along so much better!
My husband and I have separate bedrooms. When I initially started getting the pains, I was so restless and yelling in my sleep apparently when i tried to move, resulting in hubby’s sleep being disturbed. Then I had the issue that he snored very loudly, and disrupted my sleep. I was still working then and up at 05:30 for a 12.5hr shift, often exhausted from the poor sleep. We’ve been married 33yrs and have never been happier. It also helped through the pandemic as he was still working as a scientist for Pfizer, and I was shielding due to my illnesses and immunosuppression, so it felt safer. Although I’m now retired and on better treatment we have no plans to return to a shared bed. Our rooms are quite small so only fit a standard double, and apparently I still yell out with pain, even though it is better than it was. We do share a bed when we stay away at our daughters or when we go on holiday. I don’t think it’s sad at all, we still have our intimate moments, and I get breakfast in bed every morning 🤪🤗
Exactly my situation! Hey, there is no rule book stating that once you are married you must share a bed! I honestly believe that having separate beds has kept us "happily" married. Those first years of marriage oh my gosh..did we argue over our "lack" of getting a good night's sleep due to each other's "issues"! Also, since having these health issues I am constantly tossing and turning to get comfortable! I have not slept a full night since giving birth to my first son back in 2006...I can NOT sleep as it's ALWAYS something for me. Also, I am in this habit now of getting up every day at 3:15am! What is up with that? I can NOT sleep past that time no matter what I TRY and it is pissing me off. I end up being so tired by 6 pm!
I agree completely, and feel the same as to keeping us happily married. Thankfully I take amitriptyline for my pain as well as wearing a pain patch, so thankfully sleep quite well. Although as I mentioned I still yell out at night. I have mild sleep apnoea that thankfully doesn’t require a cpap machine, but does result in me snoring. I have an app that records my snoring, as well as sleep talking, which is funny listening to it on playback 😂. Sorry your awake so early, that must be hard. Sending hugs 🤗
I am going to ask my MD about "Amitriptyline". Currently, I take nothing for my nighttime pain issues and sleeping problems. Many of the sleep aids (albeit OTC natural ones) I've tried have the extreme opposite effect thus keeping me from sleeping "soundly". I've tried Melatonin and it's very unpredictable for me whereas many swear by its effectiveness. Sometimes it will work but just a few hours at best and sometimes it keeps me from sleeping at all.
I sleep really well since starting Amitriptyline. Take 20mg before 7pm. No caffeine after midday. Helps with ‘deep sleep’ and virtually no pain (unless I do ‘too much’). I would definitely recommend.
Thank you so much for the information. I see my doctor in a couple of weeks so I wrote down the drug and I will inquire. I am so sick of waking up, wide awake at 2:30-3am, and unable to get back to sleep. My day is ruined because by the time it is 3pm, I am whipped! I will let you know and thank you again!!
I couldn’t agree more. I’ve managed to get myself up to 7.5-8 hours sleep a night now but it was hard work.I sleep on my own, I know I toss and turn a lot but I’m not woken up mid sleep cycle so I feel ok. It sounds boring pathetic but I like to be in bed between 10.00; and 10.30 every night. I used to sleep in a totally blacked out room but these days I just flick the Venetian blind so it gets lighter in the morning I read for half an hour then put the light out. I’ve stopped using my Kindle, I buy real books - often second hand books from charity shops and I don’t watch TV either - apart from anything else it’s pretty rubbish these days which helps - and I don’t eat late. I don’t drink caffeinated drinks of any sort. Boring it may be but nothing beats a great nights sleep and waking up at 7.30 ready to go.
Sounds exactly like us . No breakfast in bed though Suits us both. He gets a good night's sleep while I have to contend with the effects of RA. However, he does still have to go to work - I dont. 😁
Same here my hubby still works. I was forced to take ill health retirement after having a severe stroke at 52. I still miss my work, but was striving AS before the stroke, and was already exploring ill health when the stroke happened. The only reason I get breakfast in bed is I produce no cortisol, so wake with flat batteries till my steroids kick in. It was the lack of cortisol which caused the stroke. It takes around 2-3hrs for me to function, unless I take the fast acting steroid, which is only meant for when I have low cortisol symptoms.
Both of us get better sleep with our arrangement, it’s surprising how many people do sleep separately. Take care 🤗
Oh I understand now about the breakfast in bed. Sorry. I retired early from teaching due to RA. I'd gradually had to cut back my hours but it was still too much.Take care yourself x
Honestly, I find nothing wrong or odd with it at all and in fact, all of my girlfriends (well I am 56 years old) also say they have their own separate beds (they don't even have RA or a disease). Most of them tell me it's because of the snoring or lack of space allowed.
Electric blanket that has two sides….his =on from September to May, and my side off for most of the time (it does get to -20 here so needed sometimes!). And a thin duvet, with a thicker one he can pop on top of his side. .
And spare room set up so I just pick up my neck pillow and shuffle off on bad nights.
I agree with you, it's opposite here, I feel a lot colder than hubby, as I am a RA suffer, but I do keep myself warm at night, by wearing a cotton PJ's to sleep, at times I can't sleep, I do my prayers, and keep rubbing my feet at night, also do meditation as well. When I do that I go to sleep immediately. Sometimes I don't get up at night, get a full night's sleep, getting up fresh.
My partner says the coop might need to use my bedroom it's so cold. So know what you mean
I need cosy 🔥. My central heating is on from when I get up to when I go to bed. All night if it’s cold. Goose duvets, pillows and mattress topper. Sleep naked unless it’s really cold; but bed-socks always. Has to be boiling for me to do without. Damp is the killer for me.. I am highly sensitive to it.. dry heat is the way to go 🌞.
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COLD WEATHER - BLAH!!!
Hubby phyrist appointment 
Off topic - chat with hubby
