Started Sulfasalazine Tues and been wiped out with side effects from nausea, stomach cramps, diarrhea and dizziness.
Staggered down from bedroom this morning - looked at hubby slightly cross eyed as so dizzy and said
Not exactly the sex bomb you married 10years ago!
At this point he could have lied but NO
No darling you are not but I still love you warts and all!
I was not too sure if I wanted to hit him or kiss him.
Thats the sort of thing my hubby would say, at least we know they love us darling.xxx
Yeah he has been my rock this past 8 months during the start of my RA and working through the drugs. x
We celebrate our 37yr anniversary next month and i have had ra for 17 of those 37yrs. My hubby has been retired for 8yrs and he took over the house he now cooks, cleans and launders and irons. There is nothing he can't do and he makes a great Yourshire pudding as well.xxx
We celebrated our 45th end of June, Sapphire I believe it's called. xx
Oh no sorry to hear you've got these crappy side effects, i hope they wear off soon; Or are they bad enough to stop taking tablets ?
I'm due to start taking this when my prescription arrives and am a bit nervous about side effects. Don't know until you try though I guess !
Awww husband sounds lovely xx
I am a great believer you have to try and keep going to make sure you have worked thro the side effects. I keep doing the mantra that Docs will not give you a pill that does worse things to you then the disease can do. So some days rough but the unseen damage that can be done without meds is worse.
It hard to keep to the mantra many days but I want remission more.
I’m on week 11 of sulphasalazine and after initial spells of severe stomach pains and diahorrea, followed by weeks of headaches, random bouts of nausea and lightheadedness, I think I’m finally seeing the light at the end of the tunnel. Stick with it!
I am god this RA and drugs does my head in.
Oh no - poor you re the side effects 😢 it really is time you had some better luck.
Yes, a good husband is worth his weight in gold (no matter what he weighs!) 35 years for us next month; we help each other as he has aphasia following a stroke. As he puts it "I grab and you gab" 😂
what a lovely saying that made me smile x
Hi Dee. I'm on my fifth week now, had a few side effects but nothing too drastic yet apart from headaches and exhaustion, which to be honest, I was half expecting. I was told to stick it out as they normally disappear after a while. I'm still waiting for the orange wee. Hope things improve soon. x
5th week and no radioactive pee how disappointing! Yes I am all things x hoping in a month or 2 things settle. Hope it keeps working for you too, x
I don't feel as discomfort free as when I was on MTX 20mg but it's early days. Just curious as to why no orange pee but info on web sites say it may cause orange-yellow pee. x
I'm in my 2nd week (2 tablets a day). A bit of tiredness and wooly head and yes - yellow pee! 🤣
Lucky you. 😁
Orange juice wee happened straight away for me! 😳🤨
I think I've had it once or twice but that's it. x
I’m glad it hasn’t been a permanent thing for you. I just drank more water and it was less obvious. x
I actually drink quite a lot of water as if I don't, I get tablets sticking in my gullet and the SSZ are quite bit aren't they. x
Yes I needed half a tumbler for each one!
That was tumbler of water and not wine btw 🤪
😁😁
😆👍🏻 wine
Me too and a large tumbler at that. The rheumy nurse told me to drink a pint of water, there's no way I could do that, I'm swimming inside as it is!! x
I probably did half a pint of water.
Sounds about right for me too. x
I’m not good with drinking a huge amount of water in one go. Bloaty bloaty. 😝 x
I was told to take them after meals and I find that doing this makes me feel so full and uncomfortable because I drink so much water with the tablets, not to mention what I drink during the day too. x
I can’t recall it’s so long ago but can you take two in the morning and two at night when you’re on full dose? x
Yes that's what they prescribe, also with or after meals. x
I was on sulphasalazine for 20 years at 5 a day. My body no longer tolerates them as my rheummy says your body thinks it’s a sweetie and does nothing. Don’t know how many upset stomachs I had over the years but it did work for me. Make sure you are on the torpedo shaped tablets. I discovered my friend was on the round ones and constantly had problems. The round ones are not coated like the torpedo ones which makes them not easy to swallow and more likely to cause problems. She mentioned this to her Rheumatologist who was astounded her GP was not giving her the torpedo ones. Hope you feel better soon x
On torpedo coated ones!
I used to call Sulphasalazine .. the big bullets! Were hard to swallow at first .. goodness knows why they make them so huge ... but lots of water or warm tea did it. When I first said Sulphasalazine my hubby thought I said .. silver sardines .. so that’s what we called them!😂 I took them from 1995 when first diagnosed for 8 years. Did well but waned after 7 years. I’m hoping you settle down on these as they work very well for so many people with little side effects or ones which are more manageable. I was told contact lenses were the main issue for many people as it stains the soft ones. I had/have specs so wasn’t an issue. I didn’t have any adverse blood results on Sulpha. I did have anaemia for a few years when diagnosed but that wasn’t Sulphasalazine .. it was out of control RA. I got it on track with lots of extra greens and changing diet. I can take strong iron supplements easily. I think after 3 months you will feel the fuller benefits of Sulphasalazine. Can you feel anything beneficial as yet? Hoping so very soon. Hugs. x
That’s exactly what I say re some meds .. it’s like taking a jelly baby but less pleasant!!
We married 32years ago today. He doesn’t sugar coat things but he still loves me it just breaks his heart to see me like this.
Happy Anniversary - yes they see us and know there is so much they can't do but support is the key which many of us get in bucket loads.
Happy Anniversary💗
Happy anniversary from me too.
Happy Anniversary! x
Happy anniversary to you both.xxx
Here's hoping things get so much better for you Dee x
Oh goodness Dee, I do hope the side effects start to ease. I had a few side effects for a few weeks but thankfully all settled in time. Thinking of you. Happy Anniversary! x
😂😂😂😂😂'Not exackly the sex bomb you married 10 years ago' ! That made me laugh! I've been there, 24 years ago I was on fire! Have been until 18 months ago then RA tore me apart! I've made similar comments when after days of not being able to move, hair tangled all over my face cause I didnt have the energy to wash it! Wearing anything that was visible looking like shite and looking at my hubby asking ' will you marry me' 😂😂😂😂
Back at work off topic
Off topic but its wonderful !
Off topic - Volunteer work
Off topic... holiday 
