Jyseleca

[Arlescote]

Is any one taking Jyseleca ? Is it successful - I am currently on methotrexate injections, hydroxychloroquine and 7 1/2 , of prednisilone and it’s not seeming to work. I read a very positive article on Jyseleca and am wondering whether to talk to my consultant about changing my meds. Any advice ?

[Chocnbags]

Hello , I am taking 200mg Jyseleca also called Filgotinib,for 4 months now and can honestly say I feel great ,I noticed the difference in 7 days I have even started gentle exercising 3/4 times a week .i am still taking 20mg Methotrexate and Hydroxchlorquine. If your consultant agrees then go for it 😃👌🏻

[Arlescote in reply to Chocnbags]

Thanks for that info - I intend to discuss it with my consultant if I ever get an appointment 🙄

[AgedCrone in reply to Arlescote]

Speak to your rheumy nurse..if you explain your present drugs aren’t doing the trick, she can have a word with your rheumy….& maybe get you a f2f?

[oldtimer2]

You might want to look at the full information here:bnf.nice.org.uk/drug/filgot...

It is a 'biological' medication so you would need to necessary screening tests first and be eligible for the treatment. There is excellent information (as always) on nras.org.uk/resource/jak-in...

[Arlescote in reply to oldtimer2]

Thank you so much for taking the time to reply - I will have a look at the info and hopefully be more prepared when I eventually get to see my consultant

[AgedCrone]

Speak to your rheumatologist….he/she will have considered your condition & chosen the drugs that will most likely be most beneficial for you.Others may have taken other drugs & either loved or hated them……but the only way to see if you will find any drug helpful….is to have a discussion with your doctor & take his professional advice.

[Arlescote in reply to AgedCrone]

Will do - thanks for the reply

[Pastels]

Hi, I’ve been on Filgotinib for about 7/8 months and apart from feeling a bit dizzy at the start I’ve found it to be really excellent for me. I’ve more energy, my joints are less painful, it’s like RA has been turned down. I have had low white cells and one odd set of liver function tests but over all great! Bearing in mind we are all different and respond in hugely different ways to drugs, I would give it a go, good luck.

[Arlescote in reply to Pastels]

Thank you for taking the time to reply - I will certainly talk to my consultant about it - best wishes

[Blodynhaul]

Hi Arlescote, I started Filgotinib (Jyseleca) in December and have slowly felt a big improvement in my RA inflammation (though still feel rubbish due to fibromyalgia & ostearthritis & effects of being so ill with RA last year!) - but the improvement with Jyseleca was so welcome & surprised me too as I failed on Adalimumab (produced antibodies against it) after Leflunamide stopped working before that. So - yes, worth asking about Jyseleca! I I do have some side effects, but preferable to how I was any day of the week . Good luck.

[888lou]

Hi, wondering how you're getting on with Jyseleca med? Any side effects? Any improvement?I've been approved this for ulcerative colitis. Hoping it's a success.Thank for any feedback.