Painful Feet - update

[NannyNooNoo]

Just a quick update following my post 10 days ago - I had an injection into my hip on Friday and took the chance to quiz about my feet, asking if there’s any chance of sorting something earlier than the appointment in May. Seems not - there’s a meeting in April involving the registrar I have seen a few times, the consultant and a surgeon. The registrar is of the opinion that injections into my feet won’t be suitable; if the surgeon feels nothing can be done that way p, then it will be a case of pain management🤦‍♀️🤦‍♀️. She also said that continued injections into my hip aren’t a good idea and if the bursitis comes back again this time, then she’ll send me for mri on that too. She’s a lovely lady, very sympathetic & understanding; but I did feel very disheartened by the thought that I may not achieve any long term relief!

[sylvi]

It is hard isn't it when our feet hurt. My big toe on my left toe and both feet burn. xxxx

[NannyNooNoo in reply to sylvi]

It is indeed! My feet have a burning sensation, particularly at night! X

[Hidden in reply to NannyNooNoo]

I have burning especially at night was told it was peripheral neuropathy and was given pregablin it’s worked a treat.

[NannyNooNoo in reply to Hidden]

Thankyou - something to bear in mind when I see GP in a couple of weeks

[rabbits65 in reply to Hidden]

Hi , I get burning feet too. It is also commonly known as “burning feet syndrome”. I thought that Pregablin medicine was a med to avoid because of huge side affects. Good it’s worked for you. I find walking on cold floors at night brings a little relief. Do you know of any other advice.

[Hidden in reply to rabbits65]

Have you had a nerve conduction test? If not could be an idea to have it to confirm diagnosis. Foot massage can help. I’ve an shiatsu massage machine that I find can ease things. Unfortunately a lot is trial and error.

[rabbits65 in reply to Hidden]

Thank you, No I’ve not had this test, I will ask the doctor about it.

[Fruitandnutcase]

Think that’s the downside of steroid injections - the effect wears off. Hope they can do s9mething for you. Constant pain is very wearing.

[Hidden]

Sorry to hear that, we’re all different, our illnesses are different and how we react and deal with them is too.I’m sure I’ve posted this before so forgive me if you’ve seen it or if you find this approach is not for you.

I take 10 as unbearable and 0 as no pain. I give natural child birth 8. When I wake I assess each joint and apply levels, most joints get a 2.5 or 3 and I take that as my day of pain. If one joint increases above a 4 that’s a bad day and if two go above 4 and so on, you get the picture. I allow myself oral pain relief on 4 or above, gel for less. No day is pain free ever and won’t be as I’m drug free apart from pain killers. This is my choice and has been since my mid 20s but as 60 approaches I’m finding the constant pain less tolerable and know I will eventually get bs k on the meds.

Anyway, starting from accepting no day will be pain free helped me deal with my illness so far.

Try it out if you can, let me know if it helps or if you think it’s rubbish for you 🤞

[NannyNooNoo in reply to Hidden]

Thankyou; likewise, I chose not to take anything other than pain relief for fibro until 4-5 months ago, when it all got too much. I’ve had various investigations - bloods, ultrasound, mri - RA is under control with sulfasalazine; I’ve had steroid jab for hip bursitis and they’re now looking to try & sort my feet. I’ve used the facilities at a local spa for swimming, sauna & hot tub for a few years now, all of which help. However, I’m now 61 and have decided that I need help with the pain - luckily my rheumy team are being very helpful, and I’m also seeing a GP I have previously found easy to talk to. I’m hoping that between us we can make some decisions about the best way forward 🤞🤞

[Hidden in reply to NannyNooNoo]

Best foot forward 😂