Anyone on upadacitinib? : Being put on this due to... - NRAS

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Anyone on upadacitinib?

Claireb1985 profile image
3 Replies

Being put on this due to being in hospital for so long with a flare up and pneumonia, was originally on leflunomide but things went slightly wrong even though it worked fine. If anyone's on upadacitinib I'd love to know your views and if any side effects have occurred for you, thank you. ❤️

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Claireb1985 profile image
Claireb1985
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Knit12 profile image
Knit12

Claire it is more commonly known as Rinvoq. Quite a few of us are on it now, and if you do a search you will find the info. This drug is my game changer after 3 years of hell and 10 drugs.

I have been on it 10 weeks (12 weeks ago I couldn’t walk unaided). Now I feel like I have my life back. They normally give people this new drug if you have had problems with other drugs.

My inflammation rate has gone from 8 to 3 and I don’t have pain. I still have a wee bit of stiffness in the morning, but no abnormal joints. I just need to build my strength up after 3 years of not being able to do anything.

I hope it works for you too x

ElizabethW profile image
ElizabethW

I am in my 3rd week with this med. I am getting some relief from the joint pain, though I still have a long way to go. I suffer from fatigue, and I suspect that some of that is caused by the RA and some is a side effect of the Rinvoq. It is still early days for me but I am hoping for good results.

Wooden_shoes profile image
Wooden_shoes

Hi Claire, I am using this for about half a year now. After quite a few pills and injections this one seems pretty good. One pill a day, no headaches, my stomach is a bit upset, but -for now - that's it. My wrists (that's where my problem is situated) are stabile, no inflammations or extreme pains.

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