Biologics

[Gitaga]

Hi

Doc suggested Biologics because all other meds have been exhausted.

I am considering taking Baricitinib.

Is anyone on Baricitinib?

I have done some research and I'm a bit sceptical now.

Apparently it is not safe for patients with Chronic Kidney disease.

Can anyone share their thoughts, views and or experiences.

Thank you kindly

[Knit12]

Everyone has different reactions to drugs. All I can suggest is that you try it and see if it works for you. I got on fabulous with baricitinib until I had my Covid jag and it stopped working.

I was on sulphasalazine for 15 years until it stopped working. I’m now on my 10th drug Rinvoq in 2 years and hopefully this is the one. We try everything to see if it is our one. Hope you try baricitinib and it is your one x

[Gitaga in reply to Knit12]

Thank you. I hope so too.. Was very enthusiastic about it until I found out that it should be avoided for people with CKD.

[Mmrr in reply to Gitaga]

Drs miss things, it might be best to remind your rheumatologist of your CKD and query is Baricitinib safe for you ?

[Gitaga in reply to Mmrr]

You are so right about that. I will bring it to her attention. Finally got the application forms after 3 weeks of back and forth with them amidst so much pain cos doc has stopped the methotrexate and reduced the Rhemalef.

[Mmrr in reply to Gitaga]

Best wishes.Keep in contact with them, or you might be forgotten. It happens.

[KittyJ]

I’m surprised your rheumy is considering putting you on that if it’s not safe, you should discuss it with them as soon as possible as there are other drugs.

[Gitaga in reply to KittyJ]

Yes thanks I will.

[AgedCrone]

Listen to your doctors…they will only offer you drugs that are suitable forYour personal clinical condition.

[Gitaga in reply to AgedCrone]

Yes. I am. All this is too scary. Just trying to wrap my head around it

[AgedCrone in reply to Gitaga]

Just relax , take your meds & try not to let this disease take over your life. As Mmrr says…bring up the question of your CKD & ask if Baricitinib has now been reassessed for use in people with that disease….Dr Google is often very out of date with his comments! It’s a very fortunate person who is prescribed their “magic pill” first time round…but the majority of us do get there …so no matter how bad & confused you feel right now..just keep that in mind.

[Gitaga in reply to AgedCrone]

Thank you. 😍

[Bunterface]

Hi Gitaga, I was put on Baricitinib a couple of years ago and it helped hugely with painful joints, etc. I felt really well on this drug, until it gave me a serious 'waterworks' infection, which was treated and resolved, but things have never been quite the same in that department since then. Talk to your consultant in depth about this drug.

[Gitaga in reply to Bunterface]

Thanks. I will.

[Angels54]

Hi I’m on Abatacept and have a lung problem, however I think they will monitor you with bloods. Good luck

[Gitaga in reply to Angels54]

Thank you. I believe so. I have applied to join the clinical study. So I suppose I will get monitored by my doc and the clinical team

[Hidden]

I’m on this and posted earlier on this year. The best drug I’ve been on no side effects. For me it’s been brilliant.

[Deeb1764]

Afer 2 years and 4 other drugs this was my game changer drug for me.