Baricitinib and Covid19

[Chrissycl]

I'm puzzled by the fact that Baricitinib is being used as part of a treatment for covid19 but we are told not to take it if we have an infection. Just wondered what anyone else though.

[helixhelix]

When you have an infection you want your immune system to be working to target the infection, and not calmed down by your drugs.

However what I understand is that with Covid if the infection gets out of control your whole immune system goes totally bonkers and you get a cytokine storm. So in this position you desperately need to calm this storm down!

So it’s a question of degree I guess.

[Chrissycl in reply to helixhelix]

Thank you.

[14penny in reply to helixhelix]

Hi just wondered what a Cytokine storm is and am I doing the right thing by stopping Methotrexar and Barasitinib for a couple of weeks as after the Covid 19 jab I have had flue like symptons and now am left with ulcers on back of tongue and roof of mouth so very sore and not sure what to do I think I am going totally bonkers let alone my immune system - to start again or not is the big question lol

[Niao]

helixhelix has explained things perfectly from my understanding too. The immune system is very complex and confusing but fascinating too!

[Niao]

Sorry Chrussycl, what a stupid thing to say, sounded like I'm fascinated by Covid when actually absolutely petrified! Should be, and will be, in bed!

[Chrissycl in reply to Niao]

Not Stupid Niao, I understood what you meant, I'm scared of covid too.

[Niao in reply to Chrissycl]

Thank you Chrissycl. Xxx

[Kerensa21]

Do you mean Chrissy would you carry on taking it if you got Covid? I’m on an anti tnf & was told they also may give some protection against Covid yet we’re also told to stop taking them with any infection normally until it’s cleared (and they’re out of the system in 5 days anyway). I’ve wondered the same; it’s an interesting question, may ask rheumatology when I get to speak to them again 😊

[Chrissycl in reply to Kerensa21]

Yes I would carry on taking it as I said they are giving it to covid patients in hospital so I don't think I would have to stop taking mine, I was just puzzled by the contridiction of being advised not to take when getting an infection, then covid patients being given it to help the infection.

[Kerensa21 in reply to Chrissycl]

Yes, same here Chrissy, it’s a mystery, sorry don’t thinkmy reply was very clear 😊

[14penny]

well looking at all the comments its a bit scary I am having Covid19 jab in the morning so I did not take my barasitinib this morning but not sure if I should have done this now I have a streaming cold its almost like its stacked against me what do you think : ))

[Madmusiclover in reply to 14penny]

I’d check with your specialist nurse. As someone in Bari if I get a cold, I stop! If your symptoms are as a result of the vaccination I’d check. My rheumy this week told me to carry on taking Bari if I get the jab as there is no clinical advise not to but in your position I’d check. Good luck. Still waiting for my jab....

[14penny in reply to Madmusiclover]

Thanks for reply, its all fine now so happy had it done I held off from the Barisitinib for two days and have started it again today - good luck with the jab|

[helixhelix in reply to 14penny]

I checked with my rheumy before my vaccine and she said that if I felt I was stable and this wouldn’t provoke a flare then to stop my MTX and Enbrel for a week. We are all different, so this is advice for me...

[14penny in reply to helixhelix]

Thanks for reply, my rheumy and doctor were of a different opinion but I have now stopped methotrexate and barasitinib for two weeks now and as I have got horrible flue like symptons after jab I will wait for a little longer for I start again but as you say different people react differently. Good Luck

[Mandalou]

Think you have got the wrong end of the stick Sylvi , Niao was calling themselves stupid , nothing was being aimed at anyone else.

[Niao in reply to Mandalou]

Thank you Mandalou very much! My heart is beating so fast having seen that reply from sylvi, I would never call anyone stupid, other than myself! I wish to goodness some people would take the time to fully read what has been written before replying as this has happened to others on here recently and it is honestly making me question being on here! I believe I am a very good person thankyou very much sylvi!

[Chrissycl in reply to Mandalou]

Thats how I took her reply to me too.

[Niao in reply to Chrissycl]

Thank you. X

[Niao]

You are so very right KittyJ! Unfortunately it has got to me , big time, and I am still in tears here with my poor partner trying to console me, I know I shouldn't let this get to me but am, like many of us, in a very frail state of mind right now!

[Mandalou in reply to Niao]

You are very welcome Niao😘, I know it’s really hard as I stopped posting on here ages ago due to sharp unwarranted retorts.None of that takes away from the immensely valuable RA advice. I still read regularly and get my support that way.

Don’t let this event spoil your overall experience.

Take good care. M Xxx

I’m sorry to go off the originators topic.

[Niao in reply to Mandalou]

Again, a huge thank you! It means so very much. I am still seriously affected by this person alluding to me as being a bad person when all I have done is show her kindness and support. I'm still in tears and angry at myself for letting it get to me, but we are all so fragile right now!

I've been absolutely incensed by some of the reactions to another post on here recently, and how badly a few have treated someone , mostly due to their apparent inability to read things through properly.

I think I may too end up not posting if this is the way things continue. I am quite new on here and for the most part have found people incredibly friendly, supportive and armed with excellent advice, but the odd few can very sadly make it quite difficult, and I certainly do not appreciate someone suggesting I am one!

So sorry to rant, at least getting this out has stopped the crying!

So many thanks for your support, and I really apologise to Chrussycl for seemingly making this post about me.

You take very good care, Xxx

[KittyJ in reply to Niao]

Oh Niao I’m sorry to hear that, people just don’t think about what they write sometimes and how it feels to be the recipient, made worse because they didn’t read it properly and you’d said nothing wrong. I hope your partner can reassure you 🤗

[Niao in reply to KittyJ]

Thank you again Kitty. Unfortunately the person involved seems to very much feel I'm the one completely at fault for her causing me upset, by me not wording my reply correctly!!! Oh, how I could so really do without this right now, as if course could we all! Xxx

[Hidden in reply to Niao]

Do not go Niao . We are here to support you and each other . As the way of the world not everyone gets on . Personally we are aloud to speak and make mistakes without being attacked or picked on . You have contributed so much in such a short time .. I will miss you XX

[Hidden in reply to Hidden]

Totally agree to leave is wrong x

[Niao in reply to Hidden]

Thank you, you've really helped me to see sense and not let one person bring me down, or make me feel I have to leave. Xxx

[Niao in reply to Hidden]

Thank you! You have been really supportive and I appreciate this so much! No, I don't think I will allow this to get to me any further, or leave . Xxx

[sylvi]

I did tell her i was sorry, but you should have seen the torrent of abuse she gave me even after i said i was sorry.

[Chrissycl in reply to sylvi]

Why comment badly on someone elses post, I saw your reply and I didn't think it was meant the way you did. My post wasn't meant to upset anyone or attract comments like you posted

[Niao in reply to Chrissycl]

Xxx

[Beachgirl62]

Don’t go please I’m new and have really been inspired by your post

[Niao in reply to Beachgirl62]

Thank you! Xxx

[14penny]

Hi, just to say had Covid jab Monday and got diarroea 2 days headache aches n pains and now ulcers in throat and on tongue like you would not believe it docs and Rheims say it will go but not sure as still cannot breath properly this morning!!! And now to top it all our only toilet is blocked and plumbers not done it yet have been waiting for 4days now Argggh!!!

[Chrissycl in reply to 14penny]

Not a good day then? Hope you feel better soon