Off topic , got my knee mri results : Its official... - NRAS

NRAS

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Off topic , got my knee mri results

allanah
allanah

Its official, they are B#####.

Severe ra and oa and erosion. Lateral ligament near? tear and sprain . Seeing rheumy friday for another steroid jab into it and probably he will refer me to orthopedics.

I thought there was something wrong!! So I was right. Cant believe the a and e said it was fine 5 months ago ..... 🤔

65 Replies

You will be the bionic woman darling.xxxx

allanah
allanah in reply to sylvi

I set off airline scans already with my metal neck and ankle!! 😂😂😂

sylvi
sylvi in reply to allanah

I haven't been abroad since i broke my ankle so i don't know . xxx

allanah
allanah in reply to sylvi

Aw that's sad, I love going abroad, it will be nice if it opens up soon x

sylvi
sylvi in reply to allanah

I don't know that i would be able to travel with the way my health is these days. My breathing is so bad now i would be worried about flying. I have three holidays in this country so it can't be that bad. xxx

Remember you going to A&E and thinking you were waisting their time. Just proves we know our bodies even when the doctors think they know best.

Not great news as there is a long road ahead but the good news is it will now be sorted just a question of when as back logs galore for treatment and ops 🤞🏻it will be sooner rather than later. Xx

allanah
allanah in reply to J1707

Glad they have an answer to be honest, it's been a long 5 months

allanah
allanah in reply to J1707

I need to win the lottery and gi private to Harley street!

J1707
J1707 in reply to allanah

Oh the dream .... £180.000 euro tonight I’ll get you a gold one if I win 😂.

I need a few tests ( rather detailed won’t go into it) they are not doing them on the nhs at the moment and there is a backlog. I have a private consult next week just for an opinion doubt I’ll be able to afford extensive testing but even the secretary said they can’t do a lot of the tests privately at the moment. X

allanah
allanah in reply to J1707

Ah ok xxx well I've had xrays and mri so that's a start x

helixhelix
helixhelix in reply to J1707

Trouble with A&E is they are more interested in things that are going to kill you. If not life threatening then it’s obviously nothing! 🤒

But good to get something definite to be worked on.

allanah
allanah in reply to helixhelix

Yes true bug rheumy thinks my knee cap had been broken too

helixhelix
helixhelix in reply to allanah

Well that they should have noticed! Ouch.

allanah
allanah in reply to helixhelix

Yes they should. He thinks he sees it on the xray but healed now... but I'll quiz him friday x

Neonkittie17
Neonkittie17 in reply to allanah

Blimey .. would explain the pain 😑🤨

Not the greatest of news you want to hear, but knowing that you were right must help in one sense. Sending some supportive wishes your way xx

allanah
allanah in reply to Pippy25

Yeah, I love being right 😂😂😂😂you might have noticed !

Pippy25
Pippy25 in reply to allanah

Sometimes we just have that gut feeling and as we live in our bodies 24/7 we know. I've just spoken with my GP about the report that has still not arrived from last year after that disaster of a consultation with the orthopaedic consultant. Seems he went off on leave last month and they can't find any written records other than some dictation saying he may want to see me this September about my knee! Another year on....and that combined with the first consultant who told me out right it was 'gout' (which it wasn't and have never had gout) will make it over three years and I'm not even on a list! I despair I really do, so some 'regrouping' and waiting until my second vaccination then I'm going to see if I can muster some money together for a private consultation with another chap and get this sorted. Too much time has been wasted at our expense allanah and yes I realise there will be a back log with covid, but think that if things had of been done properly, I know in my case I would have been sorted prior to this and wonder if it would be the same for you. xx

allanah
allanah in reply to Pippy25

Yes let's hope we get it all sorted out asap x

Neonkittie17
Neonkittie17 in reply to Pippy25

I let’s do the very same Pip. Hope you can get it sorted soon. x

Pippy25
Pippy25 in reply to Neonkittie17

Thank you NK x

Oh dear, all that time wasted when you could have been having treatment - it seems to be happening a lot to people lately.

allanah
allanah in reply to springcross

Yes , I was cross as I specifically said this is not RA pain only .

springcross
springcross in reply to allanah

Yes I would be cross too.

allanah
allanah in reply to springcross

But would you be SPRING cross😂😂

springcross
springcross in reply to allanah

Oh yes! 😂

So glad you know you weren't going daft, it's so frustrating when you know somethings wrong and you feel you're not believed, hope the appointments go well for you x

allanah
allanah in reply to Garnacha

Thanks yes not quite insane...yet 😂

So sorry to hear your news but at last someone has come up with an answer. Take care 💐

allanah
allanah in reply to Green230461

Thank you 😍

Second knee jab in 5 weeks! I need another diet !

Oh that’s not good news allanah, I hope the steroid jab helps with the pain and that treatment can be sorted soon. I think A and E can be quick to dismiss unfortunately in an attempt to hit the discharge targets, especially if they can identify another reason for the pain I.e. RA. Sending hugs 🤗 xx

allanah
allanah in reply to Monkeysmum

Thanks mm. I hope it helps I'm sick of being sore!,

Ouch .. same result here in 2015 re severe OA erosion (which you tend to know by the pain anyhow) following my ligament damage to the side of knee area. The rheumy is amazed I can walk on it she told me but my issue is more the recurring Baker Cyst. They always say to me just let us know when you want the knee replacing. I will need to at some point.

Orthotics may help you but you may already have those. Have for me (just took 4 years to get them and the shoes ... the saga of the damn shoes needs its own soap opera!!) an my nice orthotist at the second hospital made me an extra pair or footwear .. some fab ankle boots like walking ones as I’d waited so long! Not anything she did wrong by the time I got to see her. Hope your knee steroid will give relief and you’ll be able to move better on it. Hopefully improving enough for the better weather coming to stroll out a little more. xx

allanah
allanah in reply to Neonkittie17

Hi I gave orthotics in my shoes already and I bought a knee brace on amazin so I could walk ( I know but I was stuck!) So hoping he can help at last!

Neonkittie17
Neonkittie17 in reply to allanah

I was thinking of getting a knee brace before when I had my knee injured but couldn’t see a decent wrap around one and I couldn’t reach down to pull on a tight one. Have you felt the benefit of yours? I am unable to walk without shoes inserts/orthotics. I have a bag of them to go in various shoes but three pairs of official custom ones and some other good bought ones to fit different shoes.

allanah
allanah in reply to Neonkittie17

I just bought one from amazon but obviously it's not prescribed so I was worried about making it worse but my physio nit around at that stage. So they may say dont use it

Neonkittie17
Neonkittie17 in reply to allanah

I don’t think you will have made anything worse by doing so as you’ve not been using it for a long time, etc.

allanah
allanah in reply to Neonkittie17

Good I hope not x

Neonkittie17
Neonkittie17 in reply to allanah

💗x

So very glad you had the mri done. I hope they sort it out fast for you. It’s hard to believe 5 months have passed since you went to a&e! So long for you to have suffered like this. Big hugs 🤗🤞🏻

allanah
allanah in reply to bubblyalex

I know it was October as we had out last caravan trip. But yes moving on .....

Do you think you need knee replacements ? As others have said it's a relief to know you aren't imaging things. Now they know the problem it can be fixed x

No I dont know really xx I'll wait see what my rheumy says and hope he does what he says and refers me to orthopedics

Yes, mum knows best. At last you have something concrete, Let's hope that the clinical team will get their fingers out and help you. If this sounds disrespectful to the NHS staff, it's not meant to be. I wish you good luck.

allanah
allanah in reply to stbernhard

Thank you St B ... I hope they can now get going asap as needed x

Glad you have proof. You wonder sometimes. Why on earth would it hurt so much & you couldn’t weight-bear if all was tickety boo?! I'm pleased you're being seen soon & hope the steroid eases it.Similar issue with SIL. In hospital for the same problem (jaundice, upper right pain, muscle pain & weight loss). Scans didn't reveal anything previously & it settled so sent home a few months ago with still no idea what was wrong. Readmitted this week. Now they think it's AIH. Consultant none too pleased that they said they couldn't find anything wrong after previous 3 week stay.

allanah
allanah in reply to nomoreheels

Frustrating isnt it xx

Pleased you have a definite diagnosis now and you can start on the right treatment. x

allanah
allanah in reply to Sheila_G

Thanks S, me too

Glad to hear they’ve confirmed your thinking (if you know what I mean 😕)and that you’ll at least get the attention you need now. We know our own bodies better than anyone. 👍

allanah
allanah in reply to CagneysMum

Yes hard to hear they didnt agree but glad my rheumy sorted me hopefully

Poor you Allanah, but at least it has been diagnosed properly now and presumably they will make a treatment plan. Good luck

allanah
allanah in reply to Goldsky

Thanks Goldsky x I'll let you know !

There is always something 😔. I have a meniscus tear and notice more pain when i am walking. Dont want an op tho 😢

allanah
allanah in reply to Evie3

Yes I'm talking to him friday so I'm sure he will tell me what's best

Evie3
Evie3 in reply to allanah

🤞🤞

allanah
allanah in reply to Evie3

If I could Evie 😂😂

Evie3
Evie3 in reply to allanah

Lol....neither can I 😉

digger1
digger1 in reply to Evie3

As do I and continues tendonitis also knee worn down one side can barely walk some days got appointment with orthopedic end dec Had jab worked for about 2 weeks back to constant pain.But was told in Scotland that as I'm over 50 they wont do the OP as it doesnt work. Amused not. Like many other now saving to try get a opinion from private consultation. Moan done lol I hope we all get better and soon.

a relief but also now how to deal with it. Does it mean that medication hasn't worked? Will you have to have surgery?Let's hope you get the right care now to prevent further damage. X

allanah
allanah in reply to Brychni

Not necessarily, I have an unusual form of RA where I grow lumps on my joints and it's hard to reduce the inflammation. But TCZ has been amazing plus Leflunamide and steroids. The fall seems to have done me no good , just bad luck I think. It's not inevitable that you get joint problems with RA especially with today's treatments . So dont worry , I'm just...unusual or unlucky. You get your treatments and get controlled 😍 !!!

I’m glad you at last know what’s wrong When I had this like you I was told the same and I deteriorated quickly and 3 months later it was severe and I got a new knee Wishing you the best outcome x

allanah
allanah in reply to Mumcon

Thanks for that advice, I'll have a proper chat with rheumy on friday x

Ouch! Guess least now you know, discussion about what to do to releive the distress,can be had.

All the best :)

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