Morning all, haven’t posted for a long time.
I am on methotrexate and folic acid, does anyone know if I should have been offered a vaccine yet and wether I should have been shielding?
Morning all, haven’t posted for a long time.
I am on methotrexate and folic acid, does anyone know if I should have been offered a vaccine yet and wether I should have been shielding?
I'm on 25mg MTX and folic acid and was not asked to shield. I'm in Group 6 for the vaccine. Group 5 is officially being done now so we're next but some areas are moving faster than others...
Hi hope you are well . I agree with what dobcross says . Lots more info on the search button above and on nras.org.uk Hopefully wont be too long for you
I was told on Tuesday by my rheumatologist to go and book the vaccine as I was group 6. Rang the Drs and was told I'm not group 6 and can't have it yet. I'm waiting for a call back from the rheumatoid clinic and have sent an email to the Dr's as well so.we wait and see!! Infuriating though.
Keep at em! Good luck. ❤️
Thank you very much.
They didn’t have me on their higher risk register and said when I spoke to the practice manager I should have been. I’m on now and all sorted. They should send you a standard letter but with your name and address and NHS number from the GP practice to say you have been identified as a shielding patient etc. You shouldn’t have to wait too long for the vaccine. 🤞🏻
The crazy thing is my consultant is a professor in rheumatology and epidemiology but apparently the GP and receptionist knows best!!
Can you ask your rheumy prof to send your GP an emai asking for you to be added and so you can get our vaccine? I had a general rheumy nurse who doesn’t know me downgrade my status for shielding in April. He said .. you’ll be ok to go in Tesco! 😳 I said no way and told him my husband forbids it. Said I’ll let you speak to him. He sounded terrified and said .. no I haven’t time 😝 Told him he didn’t understand Rituximab depleting B cells (he’s not in the know of biologics, he deals with first line DMARDs) and I also have Mtx and chronic bronchitis. Still he said .. I don’t think I’ll add you. I told him he was not the person to be deciding and I’d have to challenge that. That’s been the problem .. people assessing you and not knowing your health and meds situation. 🤨 He was acting as rheumatologist when he wasn’t. Took ten months for me to be acknowledged as CEV. So do ask your rheumy prof.
Yes, I'm asking for that as we speak. I'm a Prison Officer, our occupational health, my rheumatologist and even a Dr from my surgery have said I'm group 6 and I've been working solo for a year now but, the records say no!! I was told by my Drs surgery at the beginning " well you're on hydroxychloroquine you'll be fine" you can't make it up!!!
If Hydroxy is your only med and no other comorbidity then you aren’t classed as CEV (according to the official table on British Society of Rheumatology) but if you’ve other issues and meds not taken into account and your senior rheumy says you are group 6, I hope he can tell your GP. Wouldn’t your job mean you need the vaccine as priority?
No, i take other meds as well, that comment was at the start when Trump was singing it's praises!! I know I'm not CEV but I am clinically vulnerable, group 6. And no my job is not prioritised yet but the unions are fighting this.
I have asthma and take metoject 25mg MTX believe I am group 6 but reading here can see me falling through the net again. Nhs say group 6 so maybe who knows. Just to update just had phone call from surgery booked in for COVID vaccine.
I am on 25mgs myxomatosis, sulphasalazine and hydroxychloroquine and a few other drugs. I got my vaccination letter today for 10 days time. I live in Central Scotland. I hope everyone gets theirs soon. Take care.