Covid help?: I’m ECV due to meds and my 4 year old... - NRAS

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Covid help?

Domhem profile image
73 Replies

I’m ECV due to meds and my 4 year old daughter has tested positive for Covid. She took the test yesterday as she was sent home from school due to a dinner lady testing positive. I took her for a test as a mere precaution but did not think she would have it. I’ve come upstairs to a room on my own but am currently very scared. I’ve booked a test for 7am tomorrow morning. Has anyone got any advice? Thank you in advance

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Domhem
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73 Replies
allanah profile image
allanah

Stay out if the way if you can . Get your test . The evidence is people on RA drugs tend to get moderate symptoms so I hope this is the case for you xxx its happened, worrying wont change it , so get the test you need then ask 111 for advice. Let us know how you got on xxx hugs

Domhem profile image
Domhem in reply to allanah

Okay thank you, I will do, I’m hoping as she’s only 4 it might be hard for her to pass it on to me but I’m maybe grasping at straws x

allanah profile image
allanah in reply to Domhem

Maybe who knows but viruses are clever, so keep doing all the things you do . Try use separate bathroom and towels of possible, if not clean between each user. Dont she cutlery or glasses. Dishes straight in dishwasher, wash hands etc . At least you can separate tonight then 2 days usually until the result. Then you will know either way. Not a lot you can do when they have to go to school. You are all so so brave. Good news you are all young so should really have mild/ moderate or no symptoms . Mwah to you and yours xxx

Domhem profile image
Domhem in reply to allanah

Thank you, I’m staying away and we shall see, thank you for your kind words x

springcross profile image
springcross

I hope all will be well Domhem and that you test negative. Good luck. 🤞 xx

Domhem profile image
Domhem

My husband will have to look after the children, I have a 4 year old and an 18 month old, it won’t be easy at all. My mother lives upstairs so I’ve come up here and have a room and she is isolating in another room, she’s 69 so I’m worried about her too. Thank you, currently extremely worried

allanah profile image
allanah in reply to Domhem

I bet , stay separate and safe, it's only a short time in reality xxx

allanah profile image
allanah

nhs.uk/conditions/coronavir...

Blueskysunshine profile image
Blueskysunshine

Thankfully you have a room you can isolate in. Take all precautions with hygiene - as Allanah has suggested and remember that even if your test comes back negative, it just means you are negative when the test is taken. You could develop the virus some days later. Best precaution is to isolate for 10? days. Wishing you well. We are here to support you xx

Domhem profile image
Domhem in reply to Blueskysunshine

Thank you, I’m so worried x

Blueskysunshine profile image
Blueskysunshine in reply to Domhem

It’s natural to be worried. Do you do any meditation or have any breathing techniques to help you feel calmer? Play some music, do some colouring in... something to distract your mind x

Domhem profile image
Domhem in reply to Blueskysunshine

I’ve tried to read but I can’t, I’m too anxious x

allanah profile image
allanah in reply to Domhem

Any easier this morning. Did yo get your test and advice?

Domhem profile image
Domhem in reply to allanah

Yes I went at 7am so I guess I’ll know tomorrow but know I’ll have to retest again and make sure I carry on isolating. I’ll be honest the shock has dropped off a bit but now the reality of being away from my children, potentially getting very sick, being in this room for 10 days, worrying about my mother etc is hitting home. I’ve been so good at shielding, I’ve not taken any risks at all. I even asked if I could homeschool my daughter but I was threatened with losing her place so feeling pretty upset about it x

allanah profile image
allanah in reply to Domhem

I bet your angry . After shielding this long for it to come from school.would be really annoying So just try image Daddy has the kids, he will maybe enjoy it , feed them chocolate and alcohol , not wash them and let them watch movies and play with knives 😂😂

Not, you and your mum just rest up. It doesnt sound as though you feel poorly? So have a face pack, do your nails, all the things you dont have time to do when you are a busy mum. Facetime them .

Stop thinking of the what ifs and find out what you do about your meds..

Sending hugs from one mum to another xx

Domhem profile image
Domhem in reply to allanah

I really am, she’s only in reception I could have homeschooled, I should have listened to my gut but instead I followed the official guidance. No I feel okay, a sore throat but it’s no worse than yesterday. Yes you’re right, my mind isn’t stopping. I’ll call my team in the morning and thank you for the hugs, really means a lot x

Denise64 profile image
Denise64 in reply to Domhem

Hi I'm so sorry to hear this ,keep doing what you are doing wiping down sanitizing 10 days will seem along time n even more difficult not cuddling the kids but you will get through it. They should of allowed you to home school. I bet you are so angry xxx let us know how you get on sending hugs

Sheila_G profile image
Sheila_G

That is difficult. Will your husband be able to look after her so you can isolate as much as possible.? I really feel for you. Is your daughter showing any symptoms? Hopefully she only has it mildly and you have escaped it. I hope you are all well soon.

Domhem profile image
Domhem in reply to Sheila_G

Yes my husband is going to look after the children so I can stay up here. No she’s fine, last night her cheeks were a little flushed so I took her temperature but it was fine. I’ve asked my husband how she is this morning and she’s sitting eating her breakfast so I hope and pray it stays that way. My mother and I have just been for a test (separately). Reading it up it seems for my daughter to have got a positive test on Friday she must have had it a few days. Thank you, I’m currently so worried about what might happen.

Sheila_G profile image
Sheila_G in reply to Domhem

Ah! Bless her, bless you all. I will keep you in my prayers.

Ruth12345 profile image
Ruth12345

Cant add anything to the good advice you have been given accept to say you are doing all the right things. Sending you lots of support and a hug. Keep us up to date with you when you can. Try not to worry as there is nothing more you can do. Xx

Domhem profile image
Domhem in reply to Ruth12345

Thank you so much x

Zara0123 profile image
Zara0123 in reply to Domhem

Hi please don't worry. You'll make yourself ill. Even if she has it, it doesn't mean she's passed it on to you. My hubby had it in March. He caught it from work. I was really sick because of my RA but I didn't catch it off him. Nor did my two boys. We don't share towels etc in my house and as he was working I was cleaning up after him in the bathroom. Just stay in a separate room and take care of yourself. Keep us informed that your ok. Lots of love xxx

Domhem profile image
Domhem in reply to Zara0123

Thank you for this and really good to know, that’s what I’m really hoping that I haven’t got it from her. I will keep you updated and thank you for being kind, feeling so scared x

Zara0123 profile image
Zara0123 in reply to Domhem

Please don't be scared. Your fear will make you believe you have caught the virus and have the symptoms. Please try to relax and think about good things. Keep yourself busy in your room as sitting around will make you worry more xxx

Domhem profile image
Domhem in reply to Zara0123

I’m going to read a book, I never have the time usually. Thank you so much x

Zara0123 profile image
Zara0123 in reply to Domhem

👍like others have suggested it's a time to treat yourself and give yourself some ME time as Christmas is near. Do some online shopping and enjoy that book without any interruptions xxx

Ali_H profile image
Ali_H

Hi Domhem, I’ve had it and my advice is get hold of your rheumy dept for advice re your meds. was told to stop MTX for 2 weeks and then pick it up again with bloods being done more frequently than my normal 3 monthly regime. I slowly built the MTX up again as I had a chesty cough and didn’t want to exasperate it - at times I was glad that I’d had the pneumonia vaccine some years ago. I upped my VitD by doubling my supplement for 3 weeks. I drank loads of water, ate loads of onion soup (mainly because I was enjoying the novelty of being able to peel and chop onions without crying 🤣).

Re isolation.... can you get hold of a pair of walkie-talkies then your daughter can play ‘spy’ and tell you about what she and others are doing... you could be ‘mission control’ etc or some other game around ringing/video calling each other that way your isolation time will be an adventure for her.

🤞🏼that all stays well and this is soon a memory

All the best

Ali

Domhem profile image
Domhem in reply to Ali_H

Hi, yes I’m going to call them tomorrow, I’m on a dmard, pred and a biologic so I’m really worried. I had the pneumonia vaccine back in February. I’m going to up my supplements and also drink lots of water. I’ve told her we can FaceTime lots but I’m already struggling being away from them, my baby is only 18months old. Thank you, I’m so worried x

Ali_H profile image
Ali_H

The struggle re separation is absolutely normal and to say don’t worry is probably a waste of oxygen!! So the only thing left is salvage what positives you can out of this and have some ‘fun’ via face time where you can.Does that room you’re in need a bit of a ‘Fenn shui’... that could be a positive if so 🙃

You could read a bedtime story over FaceTime.... get someone to drop a few books outside of your door for this purpose.... play I-spy ....

sorry I can’t thing of any activities for the littlest beyond hearing mum read to him/her.

Also know that although I got it my diabetic BAME partner didn’t and we said ‘oh well you’re bound to get it’ and did nothing special once I tested positive- other than stay in our own house/garden munching VitD washed down with soup 😇 so hopefully you won’t pick it up.

Ali

Domhem profile image
Domhem in reply to Ali_H

Yes my room is a little bleak! It’s my mother sewing room so I’ll definitely try and sort it out a bit. That’s a great idea about story over FaceTime, I’ll definitely do that thank you. I spoke to my daughter and said I would be upstairs with grandma for a while, she seemed okay but not sure how she’ll be by tomorrow. That is surprising, very good to hear however, I’m praying that’s the same with us, thank you. Thank you, you’ve made me feel better, I’m so worried but reading your note had made me feel calmer x

Ali_H profile image
Ali_H

You know where we are so please let us know how things go and share what quirky ways you’ve found to stay in touch with your young ones.... there are undoubtedly mums and dads out there dreading being faced with this scenario so your experience shared will help them for sure 🤞🏼👍🏼🙃

Ali

Domhem profile image
Domhem in reply to Ali_H

I will do, thank you x

Monkeysmum profile image
Monkeysmum

Oh I’m so sorry to hear about this Domhem, what an awful couple of days for your family. So difficult to stay away when your little ones are so young. I love Ali’s idea about the walkie talkies though, sounds a lot of fun. Hopefully, your results will come through quickly, my sons came through in just 14 hours. Also try to take some comfort in the scientific reports that tell us that young children are less likely to pass on the virus, from what I have read the theory behind this is that because they are more often asymptomatic, as it sounds like your daughter is, they are less likely to be shedding large viral loads. That’s not to say you shouldn’t continue to be careful though, but it’s far from inevitable that you or your Mum will catch COVID from your daughter. Sending a big hug xx

Domhem profile image
Domhem in reply to Monkeysmum

Thank you, I’m definitely clinging to this. She feels absolutely fine so I’m hoping she isn’t overly contagious. Yes I’m already missing my babies terribly, it’s horrible. Thank you so much, such an awful time for all x

Monkeysmum profile image
Monkeysmum in reply to Domhem

Don’t take this the wrong way, but I suspect it’s probably a lot harder on you than it is on them! They will be enjoying the novelty of all the Daddy time at the moment! I would be tempted to get on Amazon and order a couple of treats for both of them as a bit of a distraction and just to remind them that Mummy is still best.....not that I’m competitive at all!! 😉🤣

Domhem profile image
Domhem in reply to Monkeysmum

Yes! Sounds like a great idea, I’ll have a look at some bits. I really hope we still get to give them a Christmas x

Monkeysmum profile image
Monkeysmum in reply to Domhem

Well 🤞 if you and your Mum test negative, and they’ve just reduced the isolation period down to 10 days, you should all be in the clear by Xmas Day. Xx

Domhem profile image
Domhem in reply to Monkeysmum

I really hope so, that would be amazing x

Ali_H profile image
Ali_H

P.S I wouldn’t tell mum that you’re planning to sort out her sewing room!! My mum would...😱😱😳

Domhem profile image
Domhem in reply to Ali_H

Ha! Yes you’re probably right but I’ll put it all back! X

Fruitandnutcase profile image
Fruitandnutcase

Can’t say much more than has already been said. You’ve had lots of good advice. Think the best is that no matter how much you worry, you wont change the outcome, in fact it’s better for you not to worry. You might not get it from your daughter, we know of a couple where the husband tested positive and the wife didn’t.

Good luck with it all, I can imagine what a nightmare it must be for you with two little ones.

Domhem profile image
Domhem in reply to Fruitandnutcase

Thank you, yes I’m trying to stay positive as I know worry won’t help, it’s hard though! Thank you

Fruitandnutcase profile image
Fruitandnutcase in reply to Domhem

I’ll bet it’s hard, must be just awful. 💐

Domhem profile image
Domhem

Okay thank you, constantly using my hand sanitiser

hedgehog45 profile image
hedgehog45

Gosh - a tricky situation for you and I can't offer much more than others have already said. However, I'm in a similar (ish) situation as my daughter and a good chunk of her classmates have tested positive and I'm on biologics etc etc. My daughter is isolating, though much older, and I am incredibly nervous about contracting it, so I'm walking around my own home in a face mask and avoiding communal areas as much as possible. I have heard and read that the face mask protection in your own home ( & in schools too) is a huge preventative so if you do need to step outside your room, wear a mask. Also I read today that you should open windows for 10-15 minutes per hour to blast any germs out. Our house is like an ice box right now but it kinda makes sense. Good luck for negative results for you. I'm also awaiting mine.

Domhem profile image
Domhem in reply to hedgehog45

Oh I’m so sorry to hear of your situation, it’s very scary isn’t it? I popped down earlier to get some clothes and wore my mask and sanitised my hands on return. Thank you for those tips and yes it does make sense. I really hope you test negative and that you’re okay. I keep wondering if I’m suddenly going to feel very ill and it’s awful. I hope your daughter is feeling okay and I hope we both get through this and through the other side, having our conditions is hard enough x

hedgehog45 profile image
hedgehog45 in reply to Domhem

Thank you and likewise, it is scary and the uncertainty and worry is just hideous. Keeping everything crossed for negative results and a safe passage to Christmas. On a positive it’s giving me plenty of time to write the Xmas cards and wrap presents! Take good care.

Domhem profile image
Domhem in reply to hedgehog45

Yes here’s hoping and you too, please look after yourself x

Domhem profile image
Domhem in reply to hedgehog45

Any news on your results? Hope you’re okay x

hedgehog45 profile image
hedgehog45 in reply to Domhem

Not yet. Still waiting!

Domhem profile image
Domhem in reply to hedgehog45

Okay, good luck!

hedgehog45 profile image
hedgehog45 in reply to Domhem

All negative here, hurrah! How are you doing?

Domhem profile image
Domhem in reply to hedgehog45

That’s fantastic news! So pleased! Still isolating and all getting retested tomorrow and if all still negative I can see my babies again! My poor four year old is not handling it very well. I hope your daughter is well and only has mild symptoms x

hedgehog45 profile image
hedgehog45 in reply to Domhem

Thanks. Good luck with the retesting and I do hope you can be reunited with your little ones very soon. Take care.

Durrell profile image
Durrell

Hi Domhem, what a worrying situation you have found yourself in & very understandably the only little bit of info I can add to this, a girlfriend of mine, moved her 79yr old father in at the very beginning of lockdown as she didn’t want him to be alone. They have all done very well even though one of her daughters only recently tested positive & had to isolate for the 14 days In one room, admittedly a little older than 4 which made it a lot easier but my message is it’s possible if you all take care like you clearly are, that it can be ok, take care, try not to worry although that’s easy for us to say. Fondest thoughts at this difficult & trying time xx

Domhem profile image
Domhem in reply to Durrell

Thank you and this is good to hear, i have a lot of contact with my 4 year old as she climbs in my bed every night so I’m worried but it is what it is. I’m keeping myself away now and just hope I didn’t catch it. Thank you for your kind words, hoping all will be fine xxx

Durrell profile image
Durrell

Your a wonderful mum first & foremost that’s clear to see & like you say it is what it is, let’s hope you haven’t contracted it, fingers & toes all crossed for you...

Domhem profile image
Domhem in reply to Durrell

Thank you, such a lovely thing to say, I’m missing her terribly. Thank you, yes everything crossed xx

Durrell profile image
Durrell in reply to Domhem

🤞👍keep us posted xx

Domhem profile image
Domhem

I am now utterly confused! Yesterday we all went for tests, my mother, husband, myself and my 4 year old and they have all come back negative (thankfully). So for my daughter she had a test Friday lunchtime that was positive and then a test Sunday morning and that was negative? Does that mean it was a false positive or that she’s had Covid for some time and that between Friday lunchtime and Sunday morning it’s left her system? I find that hard to believe. What do we do now? I’m currently still self isolating as is my mother, do we carry on and maybe get another test done tomorrow just to make sure everyone in the house is clear and then we can mix again? My poor daughter was sobbing last night that I couldn’t put her to bed, it’s been awful and only been two nights. Are false positives common?

allanah profile image
allanah

Call gp and ask what to do x

Domhem profile image
Domhem in reply to allanah

Okay yes I’ll do that, thank you x

allanah profile image
allanah in reply to Domhem

Stressful for you ..

allanah profile image
allanah in reply to Domhem

I am aware though that the test wont show covid after 8 days even if you are or have been positive if that helps . I know shes upset but you have to balance that with you potentially having a trip to hospital ! Sorry.....

allanah profile image
allanah in reply to allanah

Just had a thought. Did your daughter have the " quick" lateral flow test initially as they have some incorrect result rates. But still if she has been in close contact ot dies make sense to isolate in case symptoms occur? Feel for you . But stay strong, you are protecting your family, this too will pass xx

Domhem profile image
Domhem in reply to allanah

No she had the swab test, we’ve decided to carry on isolating and then we are all going to re test Wednesday, if they all come back negative and we still all feel ok then on Thursday we can mix again. Then that’s 5 days since the positive test which feels like enough time and 4 days since the negative test and it will have been 5 days since I’ve been in contact with anyone. You’re right, it’s a few more days but got to take the right precautions, it’s very hard but it isn’t worth the risk, thank you x

allanah profile image
allanah in reply to Domhem

Sounds perfect to me xxx

Domhem profile image
Domhem in reply to allanah

Thank you, if we do come out of this okay it has given us a huge dose of reality. We’ve been so good but it still finds it ways x

allanah profile image
allanah in reply to Domhem

Yes weve been strictly shielding but I go to doctors and hospitals plus my evc friend caught it, only thing they had done was get a tesco delivery! So yes. Just have to to best you can !

Domhem profile image
Domhem in reply to allanah

Oh god that’s scary! Yes I’m definitely going to be even more cautious now x

allanah profile image
allanah in reply to Domhem

You can only do your best. Let's hope the oxford vaccine gets passed asap and they get on with it!

Mmrr profile image
Mmrr

I've just seen your post. I hope you are all doing ok.

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