Owww: So I cant walk due to pain like a nerve or... - NRAS

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Owww

allanah
allanah

So I cant walk due to pain like a nerve or something catching on the inside if my left knee and underneath.

Been like it three days. Called rheumy but hes been on holiday and " might see it" tomorrow.

So I wondered ....do I just not walk on it and wait. If he doesn't call ? I dont want to go to a and e as they will say , ...rheumatology probably ..as they always do. In this case it doesnt " feel" like that and I dont want to sit in the waiting room.

Gp know nothing about knees so argh ....

88 Replies
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Oh poor you... 3 days!!! Boy that’s tough. My Rheumatologist would just refer me and there I sit on a waiting list. If it was me it would be A&E. You can tell them he’s on holiday and you need help now.. you never know.

Wish I could help more x

allanah
allanah in reply to J1707

I'm toying with the idea xxx

Lolabridge
Lolabridge in reply to allanah

I agree that you should not continue to suffer without help. Do go to A&E if your Rheumy doesn’t call tomorrow. X

Ouch, Can you alleviate it with rest, elevation and icing? I know this sounds silly, but I get nerve pain in me "new" knee and just very light movement (lying down) several time an hour very often helps even though it hurts at the time. I the ice for 20 minutes.

I suppose if nothing helps A&E is the best of all evils. Good luck.

allanah
allanah in reply to stbernhard

Hi thanks for the reply . I've done elevation and ice and painkillers but I tried a bandage which was so painful. The worst pain was last night when I laid in bed and tried to straighten the leg fully and trying to go upstairs... just annoying when I've felt do well. Maybe I've overdone it trying to keep going during lockdown .

Go to A&E darling and get it sorted out. That is what you would be telling me now won't you my darling. Hugs.xxxx

allanah
allanah in reply to sylvi

Yes but it's been 3 days and they want 24 hrs. Also my hospital is in a high covId area and I've heard tales of the waiting room not really social distancing well. So that puts me off..

sylvi
sylvi in reply to allanah

Put your hasmet suit on girl and go to the hospital. xxxx

allanah
allanah in reply to sylvi

Would a halloween witches costume do? lol 😂

sylvi
sylvi in reply to allanah

Definitely that would scare anyone off and if your wearing full make-up all the better.lol. xxx

I would also agree don't leave it to chance go to A & E at least they can have a look. Let us know how you go wont you x

allanah
allanah in reply to Pippy25

I will. I do worry it might need treating but the risk of covid there is high. Balancing act. I'm half hoping resting it will make it go away!

Pippy25
Pippy25 in reply to allanah

I felt a bit anxious going to the hospital today knowing I was going to be there a while. but like you had to balance in my mind it was better to go now than cancel and leave it any longer. I really hope it settles and that your rheumy calls too.

allanah
allanah in reply to Pippy25

Strangely I'm not concerned about my monthly blood then monthly infusion at the rheumy department cause I caused merry hell at the hospital when there was no infection control or signage, however they listened and that got put in place and I felt safe. I've just heard bad reports about a and e being over busy.

Hi allanah. A&E if you want it sorted quickly, if you leave it too long you could risk damage occuring. They may X-ray it to find out what's causing the problem. How did it happen?

allanah
allanah in reply to springcross

I dont know. I was away in our van . Walked along the beach a bit but then it just started to " catch" then got worse so I cant walk .

springcross
springcross in reply to allanah

Was it a pebble beach?

allanah
allanah in reply to springcross

Yes big Rocks

springcross
springcross in reply to allanah

Problem with that is whilst walking on big pebbles, you can go over on your foot and not really notice particularly if you're chatting along with someone, so if you did that, it might have jerked your knee without immediate reaction - if you get what I'm trying to say!!!

allanah
allanah in reply to springcross

Ah yes xxthanks x

springcross
springcross in reply to allanah

Sorry, it was a bit gobbledygook! 😁

allanah
allanah in reply to springcross

No. I got it !

Oh goodness so sorry to read you are in such pain; It seems like you've exhausted all your regular options of getting help. Do you think it would be worth ringing 111 for help or is it beyond that ?

Looking like A&E is a real option , take care x

I'm going to see if rheumy rings tomorrow. If not 111 and then I wont feel bad if they recommend a and e x thanks xx

Poor you. But I am impressed that you can get access to your rheumy. No helpful suggestions, I'm afraid.

allanah
allanah in reply to Jora

The word " might" was my worry!

I would seek some help if it doesn't improve too.

allanah
allanah in reply to Mmrr

If rheumy isnt in touch by 4pm I'll go see a and e !

Hi Allanah

Sorry to hear about your knee. Sounds

bl***y painful!

Like other posters, I would probably recommend A&E (if you can face it), should your Rheumatologis not contact you. I think it's appropriate too as your pain came on following walking on pebbles, so I imagine there is a chance it could be something that's happened "accidentally?" Also, it doesn't feel like your usual rheumatoid pain by the sounds of it. Regarding the 3 day delay, you have waited to see if it settled down first, but it hasn't. Seems very reasonable. I've had to do something similar a few times with repeated stress fractures.

One more thought, would there be any chance of trying to phone A&E before you go to check how busy it might be? Don't know if that's possible, the idea just popped into my head!

Best of luck x

allanah
allanah in reply to Kags1068

Good idea. I'll try that

Kags1068
Kags1068 in reply to allanah

Good luck😉

If you think it’s a nerve, maybe a physio or chiropractor. Maybe you have a friend that could recommend someone?.

allanah
allanah in reply to Esmereld

Could be ....

How about an osteo? I might even be able to ask someone to speak to you as you’re in Yorkshire I think. Osteo sand physios are my client base as I have a few in Yorkshire. I’d suggest osteo rather than a physio.

I'll see if the doc calls me and then look into osteo x

Ooh! I am no expert but that sounds like cartilage to me.

allanah
allanah in reply to Sheila_G

Yikes xx

Sorry to hear about your knee Allanah, sounds very painful, how is it this morning?

allanah
allanah in reply to Monkeysmum

Still hurts. Left a message on the helpline to say contact me x

Monkeysmum
Monkeysmum in reply to allanah

Hope they call soon. Fingers crossed at this end. Xx

allanah
allanah in reply to Monkeysmum

And here . But if not I'll call gp then go to a and e

Monkeysmum
Monkeysmum in reply to allanah

Good luck. Keep us posted. X

allanah
allanah in reply to Monkeysmum

Lol the saga of Allanahs knee continues ...

It sounds to me like you’ve damaged your ligament. I managed to tear mine with a small stumble but my knees had been in a bad way for quite some time which is why it gave way. Unfortunately it took six weeks to heal and required a full leg brace fitted by A&E and after about two weeks of wearing that I had to start physio which was fun as I still wasn’t able to weight bare. Hey ho fixed it but if it’s badly damaged you could need surgery. Not trying to scare you but do yourself a favour and get it checked out you’ll be glad you did I’m afraid a trip to A&E is probably warranted might be a plan to see if you can get a pre-booked appointment because in our area they do an urgent care centre within the A&E department a bit like an out of hours service but for people who need stitches and x-rays etc so would be better than sitting in a department for hours. My problem was that I couldn’t straighten my knee without screaming the place down and couldn’t stand up and put any weight on it too so sounds similar to your issue check out ACL and see if your symptoms fit.

allanah
allanah in reply to Leics

Thanks that's helpful

Leics
Leics in reply to allanah

If you’ve torn your ACL then you’re going to need an X-ray or better still a scan but good luck with that. If you’re having issues with getting advice over the phone get in the car and go down there. 111 in my experience is a waste of time you might never get a call back from them ever and they won’t give advice over the phone either. I’d cut my losses and find out from a visit to A&E what the damage is. It’s a shame your GP can’t arrange an appointment in A&E for you I’m sure they could manage to get you in pretty quick with just one phone call. Most people me included feel that they don’t want to be a bother on emergency services but if you can’t walk and you’re in lots of pain it’s not going to go away by itself or it’s very unlikely to.

allanah
allanah in reply to Leics

Called a and e ... " we dont give any medical advice over the phone "

Neonkittie17
Neonkittie17 in reply to Leics

I hope your knee continued to be stable now 💗 I had damaged inner knee ligaments but they were a really obvious pulling pain. Well even more so as the guy who did it put his full force on my knee!! I had to swing between two sticks for weeks but I didn’t need a realignment op. My physio managed to strengthen it all with non weight bearing exercises and hands on massage and gentle manipulation. x

Leics
Leics in reply to Neonkittie17

Yeah I got away with a leg brace which was very difficult and bought myself a frame coz my hands wouldn’t cope with crutches or sticks. Physio tension band exercises helped but seemed to take ages I have lots of issues and soreness when my R.A. is bad so have to really watch it. Still don’t know to this day how I managed to do it coz it was a nothing stumble just had enough of the inflammation I think. Still do exercises through gritted teeth when it’s very sore. But then again I broke my collarbone picking up a coffee when I had a frozen shoulder so par for the course lol.

allanah
allanah in reply to Leics

Owwwww!

We have to ring AandE before you go they might give you advice as well as help. Good luck. 👍🏻

allanah
allanah in reply to Green230461

Nope. They said " we cant give advice over the phone!"

Called 111.im allowed a call back sometime today !

Neonkittie17
Neonkittie17 in reply to allanah

Any luck yet? 🙏x

I know the feeling. I get this regularly ever since I dislocated my knee as a kid. Its super painful. I can get mine sorted myself but if was you I would defo go to a&e. You might need your knee re-allining.

allanah
allanah in reply to Angjoplin

Sounds painful either way !

So my rheumy has my notes and will call, ...no not happened

111, we have arranged a call back for you ...no not happened 😭😭

So I called my gp. So they will call me tomorrow....😭😭

J1707
J1707 in reply to allanah

Nooooooooooooo!!! 😱😥poor you

I had something similar when an orthotist damaged my inner knee ligaments (MCL) and did something to a nerve too. I felt the damage though very much when he pressed down on it.😑 Was swinging between two walking sticks for months with a damaged ligament. I don’t think this sounds like what you have though. Sounds more acute. Might you have twisted it recently or carried something heavy putting pressure on it? .. and not thought anything of it? .. although if it was a tear you’d feel that. It sounds like when the knee gets swollen with RA and your nerves get pressed on as I have that with the Baker cyst at the mo but not stopping me moving but telling me it wants a steroid shot bur not allowed one at the mo. Have you a BC behind your knee still which may be referring pain further round? Hope you can get some relief. x

allanah
allanah in reply to Neonkittie17

I do get bakers cysts and get steroids into the joint. But this feels different to that. Thanks x

Neonkittie17
Neonkittie17 in reply to allanah

Does sound like a nerve. Hope you get someone calling you back soon. X

allanah
allanah in reply to Neonkittie17

Me too !!😂

Neonkittie17
Neonkittie17 in reply to allanah

Keep at em if they forget. x

allanah
allanah in reply to Neonkittie17

Fed up.!

Oh goodness me what a nightmare with this ongoing saga. Why can’t people do what they say? It drives me mad hearing please do call your GP, health care teams etc as the NHS is still open. 🤷‍♀️. I really do hope a call comes tomorrow. It will be like buses and all three will come at the same time. 🙄 x

allanah
allanah in reply to Summerrain14

Yes thars what's making me cross...

Summerrain14
Summerrain14 in reply to allanah

I really am hoping for a call back to happen for you tomorrow and one that is useful and gives you a positive way forward. 🤞🏻

allanah
allanah in reply to Summerrain14

So call backs dudnt happen so after 11 hrs of waiting I recalled 111. I told them I've waited all day for a call back ...we dont have your call .... grrrrrrrrrrrrrrrrrr😱 so they put me onto a doctor who said go to a and e ...I said I could have done that today !! Anyway a and e tomorrow morning for xray and check ......

Summerrain14
Summerrain14 in reply to allanah

Here is hoping all goes much smoother on your visit to A&E tomorrow and you get some answers. Honestly I know we need patience but navigating the health care system is like a game of the Crystal maze! 🙈

allanah
allanah in reply to Summerrain14

Yes I understand covid and busy etc. But this is just ridiculous!but I dud sit on it 3 days as I know they would say ice rest elevate it or its RA!! So if they say that tomorrow I may scream lol 🤯

Monkeysmum
Monkeysmum in reply to allanah

Just wishing you good luck at A and E Allanah, hope the wait is not too long and they do something to help your pain. X

It’s sure taken a lot of time and ringing around must have drove you mad 😡. Hope you get some answers tomorrow after being messed about. Keep us posted what they say. If it’s any consolation I rang rheumy nurse helpline yesterday and they’ve got me an urgent appointment for Friday next week or so I thought but consultant secretary rang me today and said there’s no sign of any appointment that’s been booked for me. Hoping that it’s just that the booking office haven’t got around to it yet so it’s not on the system. I was hoping to get some help and at least a way forward with new biologic but not sure it’s going to happen. No appointments with consultant whatsoever at least 3-6 months according to his secretary 🤬🤬 any ideas where I go from here ? lol looks like I’ve probably got another six months without medication. I wouldn’t mind but it’s such a risk for me to go to the hospital as I’m extremely vulnerable my husband will do his nut but I haven’t had the courage to tell him yet think I will butter him up with a nice coffee and biscuit and bite the bullet tomorrow.

allanah
allanah in reply to Leics

My rheumy is generally very good but hes been on holiday

I dont think. it feels like an "RA" knee , but well you never know ...

Leics
Leics in reply to allanah

Very true my consultant is on annual leave too and I really need to see him and not the nurses because as good as they are they don’t know my situation as far as my zero immune system is concerned so would need immunology’s input too. I blooming well give up. Really hope you get sorted out tomorrow and they do something to help because three days with your knee being like that must be hell. Even if it’s a steroid shot or just a short term brace or strapping and a follow up with physio. You’re definitely doing the right thing going to A&E. Good luck 🤞

allanah
allanah in reply to Leics

You too xxx

So I feel stupid.

Its soft tissue injury with inflammatory response. Maybe ligament tear so if it's still sore in 2 weeks go to gp. Home and rest . What a waste of everyone s time 😭

J1707
J1707 in reply to allanah

No no no.. we are not medics so don’t feel stupid. It doesn’t help that we have a disease that the medics don’t understand never mind us. What would be stupid would be to leave it. Your in pain for days it didn’t feel right what if it was more serious.Getting help was the right thing to do. I’m glad it’s not has bad as you thought x

Monkeysmum
Monkeysmum in reply to allanah

I don’t think it’s a waste of time at all, it could easily have been something else which required more prompt action. Compared to some of the things which you hear stories of people turning up to A and E with it was very serious indeed! And you had spent two days trying to get medical attention from anywhere else but A and E....

allanah
allanah in reply to Monkeysmum

I think they are wrong. In agony tonight. I'll give it a few days and try see gp or rheumy if no improvement...

Monkeysmum
Monkeysmum in reply to allanah

Oh no, I’m sorry to hear that. Did they do any x-rays or scans at all? Us RD people are used to dealing with pain so if you are in agony then it must be bad. Hope you can get some sleep xx

allanah
allanah in reply to Monkeysmum

They stayed me but I know it's not bony as I had no trauma. But they said go back in 2 weeks to gp if not better. I think it's a ligament..

Monkeysmum
Monkeysmum in reply to allanah

I tore a number of ligaments in my foot several years ago, and it was very painful. Did they give you crutches to use or anything to protect your knee in the meantime ? It was only after several months of my foot not healing properly that I was told it should probably have been in a boot!

allanah
allanah in reply to Monkeysmum

Nope they heard Ra and I heard the nurse say oh shes got RA in her knee. I asked her to come into the room and explained RA is systemic and often symmetrical and your leg doesnt normally give way. But as they are professional I then left it ....

Monkeysmum
Monkeysmum in reply to allanah

Oh how frustrating allanah, if the pain level stays this high all weekend I think I’d be contacting the GP Monday, never mind two weeks! Xx

allanah
allanah in reply to Monkeysmum

Feel the same xx thanks x

Oh that’s pants for you Allanah sounds like you weren’t treated properly at all 🤬. If you’re still in lots of pain after the weekend please go back and see someone else a ligament tear needs treatment not ignoring. You definitely did the right thing going to A&E and you weren’t wasting anyone’s time. Blooming labels they give you when you have an autoimmune disease they should have scanned it or X-ray’d it at the flipping minimum. Very shoddy don’t leave it even if you only see your GP on Monday they can refer you to someone who will check it out properly not just ignore it as a symptom of R.A. in the knee. It took nothing for me to crack a collarbone lifting a coffee coz of an ignored frozen shoulder and a small stumble tore my ACL so it’s not just because you have R.A. in your knee that you’re feeling so much pain there’s quite obviously something else going on.

allanah
allanah in reply to Leics

Thank you x

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