Tocilizumab

[Simsey]

I'm interested in everyone's opinion

My doctor is seeing if I'm suitable

[KittyJ]

If you put that into the search box and filter for NRAS then all the past posts about it will come up 😊

[Gnarli]

If your doctor thinks it suitable for you I'd go with it

[ruth_p]

This has been the best biologic for me, I’ve been on it for 5 years now.

[Amandajane64]

This drug has been a godsend for me. I became really poorly 2014/15 trying various other meds that either didnt work or had horrible side effects. I became almost bed ridden, had to use a wheelchair, lost 3st in weight i was like a weak frail old lady. Started tocz dec 2015 and havent looked back. Im not back to how i was before i became ill and dont think that will happen because the damage has been done. I need to use walking aids, had to have a walk in shower fitted and a stairlift but like everyone some days are better than others. I hope this drug continues to keep working for me because the thought of going back to being so unwell scares me. Like all meds its scary reading but if it gives you some quality of life back then its worth trying. I hope its sucessfull for you.🙂

[Simsey in reply to Amandajane64]

Thankyou for your reply, before my diagnosis I also lost around 3 stone, was in bed most of the time and had to use a wheelchair to go any distance

I am taking methotrexate and salazopyrin, but really it's the steroids that have kept me going

I have to wait to see if I'm suitable for tocilizumab and have at the moment no steroid back up... I'm in a lot of pain so I'm holding on to the hope that this will help x

[Amandajane64 in reply to Simsey]

I can totally relate to how you are feeling. I really hope you can start on tocz soon and that it works for you. Its not a miracle drug and wont cure you but it does give you your life back. You just have to adapt to what you can and cant do once you are in recovery.

I have days when i feel angry and sad for the things i cant do anymore, i miss being able to dance and playing on the beach with my grandson, but i count my blessings im still here to see my family grow up and try and make the most of the things i can do. 🤞💜