Thursday - Why is stiffness not referred to as painfu... - NRAS

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Thursday - Why is stiffness not referred to as painful seizure of the joints!!

Brushwork profile image
13 Replies

It is becoming abundantly clear that Metoject is not controlling my RA! I am due to up the dosage today - so we shall see how that goes.

As yet, I have continued to avoid taking the Prednisone but I fear I may have to give in to it. Mind you, I am only taking one Naproxen daily too, so should increase that first, perhaps.

It is a wet morning, again.

Bring me sunshine... the world always feels better with a bit of sun.

Stay safe and go gently through the day

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Brushwork profile image
Brushwork
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13 Replies
Ruth12345 profile image
Ruth12345

Yes please bring on the sunshine.

Sorry you not improving

Mmrr profile image
Mmrr

I hope the increase works for you.

AgedCrone profile image
AgedCrone

I doubt one Naproxen would help.... why don’t you ask your rheumatology nurse to speak to your consultant and see if he can offer you a more effective analgesic?

springcross profile image
springcross

HI Brushwork. Sorry to hear you're having to increase the MTX - I hope it works for you this time. You stay safe too. x

Happy5 profile image
Happy5

Hope increase in MTX goes ok know how yuck it can be. :(

On a highish dose already and wondered why hands not brill?

Turns out it's a double whammy of osteo arthritis in my hands not helping. Hey Ho

Ah sunshine comes in many forms I often sing to my grandson " You are my sunshine ........

Stiffness is the bane of my life. Sometimes worse than pain to be honest. I'm sorry you are experiencing it. Steroids help me, but only short term sadly.

Boxerlady profile image
Boxerlady

I might be talking about a different issue so might not be relevant - apologies if so - but while I was waiting for the DMARDS to kick in and was having pain and swelling problems, the rheumy nurse advised me to take pain relief (in my case ibuprofen and paracetamol) regularly (3 times a day which is the maximum) rather than just when I felt I needed it as it builds up in your system. This really helped me and I'm now experimenting with cutting it down (as she suggested) as it feels like the DMARDS are really kicking in.

I didn’t get any serious relief from mtx until I was on 25mg - took me 8 and a bit months of working my way up to see any major improvement. It wasn’t until I was on 20mg with a small dose of Leflunomide that I could get off the pred, and that was about 5 and a bit months post diagnosis. Still not completely there, and I think I’m probably headed for a med change, but the point is that arthritis sucks from both a disease and finding the right treatment perspective because of how long the process can unfortunately take. As per boxerlady’s reply, I would also advocate regular pain relief - if you’re not taking the maximum dose you personally have been approved by the medics, put it up and see what happens.

Brushwork profile image
Brushwork in reply to

I'm stubborn too, I have been trying to manage with the minimum while having been prescribed 500mg twice a day! My own worst enemy!! Ha ha

Boxerlady profile image
Boxerlady in reply to Brushwork

That's what I was doing - keeping pain relief to a minimum - but taking the nurse's advice has definitely helped. Once I thought about it, it made sense to take an anti-inflammatory regularly as I still had swelling - that was what she said that she wanted to see improved.

Nik8210 profile image
Nik8210

I know there are risks to everything we take but while they work out the best arthritis drugs I would speak to your gp and make the best use of Other options such as anti inflammatory drugs steroid injections etc

Brushwork profile image
Brushwork

I was having Kenalog/steroid injections last year, but they stopped being effective. I was prescribed Prednisone but have been trying to avoid taking it. Time to give in, me thinks. I also should speak to Rheumy nurse... Thanks

Brushwork profile image
Brushwork

Thank you all for your kind support.

This forum is a wonderful thing as are the lovely people who keep us all going by responding offering wisdom with a little light hearted fun and lots of care.

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