Barasitinib: Hi everyone, so lovely to get so many... - NRAS

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Barasitinib

14penny profile image
28 Replies

Hi everyone, so lovely to get so many comments on this drug as to whether to take it or not but it has just been delivered and frightened to start it as there seems to be another wave of this wretched virus coming - should I just take the plunge and start it ? Would love to hear if others are continuing it as my rheumy said it is my choice.

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14penny profile image
14penny
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28 Replies

I’m due to start the same drug in the next 3 weeks. I believe flaring and active disease is more dangerous. I will start baricitnib and I will take extra care .

helixhelix profile image
helixhelix in reply to

Yes, it does seem that is what people are thinking now. Especially if under 75.

14penny profile image
14penny in reply to

Fantastic my second day and you know what maybe its placebo effect but I feel slightly free and lighter today fingers crossed for you|

in reply to 14penny

👍so promising. Hope it continues x

nomoreheels profile image
nomoreheels

Well, that’s not too helpful of your Rheumy is it Anny?! If it was me I’d rather take my meds & do as we're advised re COVID as having RD uncontrolled worries me more just now. I think baricitinib was considered as treatment though not sure what the end decision was, whether it was good or not, but nevertheless I’m taking my meds unless told not to by my Rheumy so as yours hasn't maybe that's the answer?

Neonkittie17 profile image
Neonkittie17 in reply to nomoreheels

Me too .. we don’t want high inflammation in our bodies due to our R.A. meds not working. X

14penny profile image
14penny in reply to Neonkittie17

I agree x

paulogribiz profile image
paulogribiz

Started thid 3 days ago, instead of the imraldi as the metho + sulpha + miraldi was not keeping it in check, seems ok so far but the colder tempsare having not so nice afffects :/

Still on the the 25mg methotraxite + 2x2 tabs of sulpa tabs each day.

sylvi profile image
sylvi

When i was on it it worked quite well. Bite the bullet and take the drug. If you get a infection you will have to stop it if your on antibiotics..xxx

14penny profile image
14penny in reply to sylvi

Taking it now as fed up with pain Thanks and good luck

Susan55 profile image
Susan55

Hi, I also worried about continuing with medication for R.A. but decided in the end this virus will be with us for sometime yet and we need to Look after ourselves so I continue with my Medication as advised by the R.A. team.

Good luck with yours I really hope you get some positive results from it x

14penny profile image
14penny in reply to Susan55

Thanks I am taking it and looking forward to some relief| Good Luck

HamHammy profile image
HamHammy

I was anxious about starting methotrexate with me being a teacher and having 30 pupils age up to 18 in my class (I am already on Benapali and steroids). However my rheumy said the covid will likely be around for a long time and that was too long for me to deteriorate so I took it. Hope that helps

14penny profile image
14penny in reply to HamHammy

Thanks that is really helpfull and good luck |

Darwin profile image
Darwin

Hi the thing about baracitinib is that it’s out of your system in a day abs I know that’s true because I forgot to take it a couple of days ago and I could tell with the pain. I had covid symptoms in June my taste went weird and I had a bad cough that lasted 6 weeks I had to come off it for three weeks to take antibiotics and ended up in a massive flare. I had a covid test that came back negative but I’ve since had an antibody test that came back positive. I have had all the DMARDS and this is my 7 biologic although I don’t think baracitinib is classed as a biologic and this is the one I’ve been on the longest and has worked the best with none of the bad side effects I had from the others. Good luck with it xx

14penny profile image
14penny in reply to Darwin

Thanks I am looking forward to it working and good luck to you|

Chrissycl profile image
Chrissycl

Don't know if this helps but I read this about Baricitinib.

sifted.eu/articles/benevole...

14penny profile image
14penny in reply to Chrissycl

Very interesting thanks for reply|

Pinkplum profile image
Pinkplum

I’m started Baricitinib 11 days ago, and to be honest was glad to start it, hoping it will be a game changer 😊

in reply to Pinkplum

No side effects Pinkp?

Pinkplum profile image
Pinkplum in reply to

None what so ever so far, hopefully will stay that way 🤞🏻

in reply to Pinkplum

Brilliant.. hope it is the one x

Pinkplum profile image
Pinkplum in reply to

I hope so x

14penny profile image
14penny in reply to

Thanks x

14penny profile image
14penny in reply to Pinkplum

Me too and Good luck with it

Green230461 profile image
Green230461

I have been taking this for eight weeks now. Not sure if it has made a difference yet but could not continue with current pain level. Already had a shoulder replacement so bones are already creaking to a halt. We can’t lose much more so go for it 😉

14penny profile image
14penny in reply to Green230461

Thanks 2nd day fingers crossed x

Green230461 profile image
Green230461

Best of luck with it. My knee is still very painful but looks less puffy so I hope it is starting to kick in. Hope it goes well for you too

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