The Rheumatologist is thinking I should start taking Sulfasalazine. I have had RA symptoms and my blood results show inflammation consistent with RA. However she cannot diagnose me as I don't have any swelling nor redness when experiencing a flare up.
As the sypmtoms and the pain are making my life difficult, she thought I could try taking Sulfasalazine and see whether this would help me.
Have any of you taken or are taking Sulfasalazine? On reading up, it looks like 80% of patient experience no side effects. I am curious though to hear the experience of people who are taking this drug.
Thank you all for your support
Hi Greencat96. I take Sulfasalazine and have been on it since July 2019. When starting on it I felt a bit nauseous as my body was getting use to it but that was the only side effect I had and that settled pretty quickly for me. We all react differently to the medications so my advice is if your rheumatologist is offering it then it would be good to try as your symptoms and pain are impacting on your daily life. x
Thank you Summerrain. It is good to hear your experience. It will help me not to feel too panicky if I experience nausea.
I am finding not being diagnosed really unsettling and feel anxious about taking medication. But it is more frightening to be in pain, to not be able to move my shoulder or my hip and to periodically not be able to work.
I have to be a little bit brave but I am not very good at it!!!
I completely understand how unsettling it is not having a diagnosis. It can take a while to get a diagnosis as it did with me but Sulphasalzine was the first medication I was started on when it was clear I have some form of inflammatory arthritis now diagnosed as RA. Your blood tests and your body are showing that you have inflammation which is really draining to deal with daily so no harm at all with trying the medication as it may help to get to a diagnosis for you as well as give you some much needed relief. Feeling anxious about taking the medication is so natural too and we all feel this way about our medications and just have to put our trust in our rheumatologist with their advice. I really do feel for you and understand how you are feeling. You will hear good and bad about any medication and all we can do is try it and see if it helps isn’t it? We are all here to listen and support in any way we can, be kind to yourself as you are so brave for trying to find a way to give you some quality of life. I am not wording this well at the moment. Mornings are never my best time to make sense. 😊. x
I am very grateful for the kind words and support. I don't understand why it helps but knowing your feelings, anxieties are also felt by others, really does help. It makes me feel braver and gives me strength.