I'm getting my benepali stopped to go on humera - NRAS

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I'm getting my benepali stopped to go on humera

mbw159 profile image
11 Replies

Hi my rheumatologist is changing my benepali injection to the biosimiler of humera can I ask people if they have gone on this and what your thoughts are does it work iv been in a lot of pain so the benepali isn't working he said so have to go for chest xray & have bloods done

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mbw159
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11 Replies
James53 profile image
James53

Hi

How long were you on Benepali?

I have been in Benepali for coming up on 3 years. Still works for me mostly although some episodes of increasing pain. Just wondered if it was losing effect in your case.

Sorry I can’t help re Humira.

Hope you get sorted out soon.

Best wishes

mbw159 profile image
mbw159 in reply to James53

Iv been on it for 2&half years I was on enbrel befor but had a bad reaction I no benepali is a biosimiler but it didnt give me a side effect I'm just hoping humera doesnt

James53 profile image
James53 in reply to mbw159

All the best, hopefully the change will work out well. It does seem that some meds work well for some but not others! Strange eh

KittyJ profile image
KittyJ

If you put the name of the biosimilar into the search box and filter for NRAS then all posts regarding it will come up 😊

I havnt been on it but one of my best friends had great success on it. She lost her limp after just 1 injection.

Keep pisitive

My fingers and toes are crossed for you.

Kiki x

Soundofmusic52 profile image
Soundofmusic52 in reply to

Scary hope I don’t 😫

in reply to Soundofmusic52

What do you mean it was a positive thing. She had a limp then she didn't. 👍

mbw159 profile image
mbw159

Thank you for your kind words xx

tishey profile image
tishey

I was on Humira for 6yrs and was a wonder drug for me, started working from the first injection, was given with a small 10 mg dose of Methotrexate and I was in drug induced remission until I got breast cancer last year and all my R A drugs had to be stopped. My R A is back with avengeance now my chemo is over am on steroids at moment to try and damp it down. Sadly I can't have Humira again, they are talking about Rutuximab infusions when I can get a face to face appointment.. I hope they work well for you when you start them.

mbw159 profile image
mbw159

Thank you I'm sad to hear you got breast cancer & hopefully all is on the mend for you witit if it's not one thing it's another isn't it love iv heard a few on the rituximab infusion and it works well for them so fingers crossed it works for you

Bessieboo1 profile image
Bessieboo1

I was on Benepali which stopped working after about a year, I was then put on Imraldi which is a bio similar to Humira. I have been on it now for 18 months and I have found for the last 5/6 months that my symptoms are only being controlled for a week at the most and then I have to try and get through the 7/8 days until my next injection. My consultant has said once things have improved regarding Covid 19 they will change me to something else but are reluctant to do it at the moment. Good luck with the new meds. Xx

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