New drug

[auldreekie2]

Hello everyone , hope you are all managing.

I am taking methotrexate injection 25mg once a week, I have been taking that since Nov, now I am also on xeljanz ( tofacitinib citrate) tablet I take that twice a day every day, is anyone on this tablet and does it seem to be working?

[KittyJ]

If you put the name into the search box and filter for NRAS then all the posts about it will come up 😊

[jacbub103]

I have been on it for 18 months, life changer for me , I am now living my life again after 3 years of trying all other drugs for RA .

[auldreekie2 in reply to jacbub103]

Thank you jacbub103 that sound positive, I’m still waiting to live my life again after 4 years, so hopefully I’ll be lucky like you.

Glad you have found a drug that works for you xx

[auldreekie2 in reply to jacbub103]

Hi jacbub103,

Getting back to you about our tablet, xeljanz that we are taking, what it is that’s me on it for 5 weeks now , i do not feel any different .

The RA nurse said I will feel it working in about 3 weeks I am just the same.

Now what strength are you on? I am on 5mg so in a day 10 mg that I take, so I was wondering if there was different strengths, I go in September to the hospital, for my review on how this is working, so far no.

Thank you and hope you are doing ok, and enjoying this lovely weather.

I know here in scotland it’s not to last.

[jacbub103 in reply to auldreekie2]

I take 5mg twice a day = 10mg

I started taking it in December 2018 and it was gradual process a little better each day by the end of March 2019 I still had a few of aching parts but by September 2019 every joint was good , no aches or pains , if I was going out for the day I would take some ibuprofen. December 2019 I completely stopped that ibuprofen and everything now is really good . It worked for me after trying 4 other treatments and as you know you have to be on them a good few months before really knowing wether they are going to fail. I hope it works for you and fingers are crossed 🤞 xx

[auldreekie2 in reply to jacbub103]

Hi jacbub103

Thank you for your reply.

I will just have to be patient lol.

Hope this works, as I have said I have been on about 14 different tablets and injections. So I always have my doubts.

Thank you anyway.

[Chrisk93 in reply to jacbub103]

Hi Jacbub103,

I am currently in the process you mentioned of gradually getting better each day/week, if the treatment is working I am happy to be patient however I am worried about long team joint damage whilst I am waiting for the full effect of the Tofacitinib.

We’re you taking/given anything in the meantime whilst waiting for the full effect?

[biscuit147 in reply to Chrisk93]

I have RA damage due to the fact it took 3 years to find this drug , but since being on this drug no more has occurred.

[Wooden_shoes]

After 3 other medicines which caused me severe headaches and no relief this one is great, no side effects, just 2 little tablets a day and more effective than others!