Talk with rheumy

[allanah]

So my rheumy here in the north said he is writing the "risk " letters , he was then told some of the guidance changed on tuesday so its put them back with the amount they could do. Hes now written the over 70s age group ones then will start on others.

Interestingly he said a lot of research is being done on RA drugs and covid so hes hoping that might help the fight.

Cant have my drip for another month due to low, white cells too low ...darn it ! Plus the rheumy here are doing on call at weekends , bless them x

[stbernhard]

More white wine?

[allanah in reply to stbernhard]

Red please

[AgedCrone]

But now we are all grounded - unless someone needs a letter for their employer- why are letters now necessary?

We all know our own Individual situation & there is well enough information ...even with named drugs on the BSR...Risk stratification of patients with autoimmune rheumatic diseases.....notice.

After all .....those 1.5 million letters weren’t sent out having researched individuals were they?

[KittyJ in reply to AgedCrone]

Totally agree AC, things have changed since we were told about ‘the letters’

[allanah in reply to KittyJ]

It's a lot of folks to identify!

[AgedCrone in reply to allanah]

Which they won’t be doing......so read all the info & you will know what to do.

[Buckybri in reply to KittyJ]

I know I was told by my rhumy nurse that I was high risk and would receive a letter next week that was this week , so I told my work what I was told and now I don’t have a letter to show them , it’s making me out to be a lier

[AgedCrone in reply to Buckybri]

Go on line & print a copy of the British Society of Rheumatologists Risk stratification of patients with autoimmune rheumatic diseases.

That together with your prescription provides all you need to show to your boss.

[Buckybri in reply to AgedCrone]

Where do I find this ?

[AgedCrone in reply to Buckybri]

You go in line to BSR,

[allanah in reply to Buckybri]

Go to top of this page, go to home, then pinned post by Victoria our NRAS administrator. Loads in there . Or go on NRAS.org.uk website....loads on there too . Look at my post from yesterday , I posted it .

[Buckybri in reply to allanah]

Thank you

[allanah in reply to Buckybri]

Ive just posted a up to date one from leeds hospitals that plus your prescription will show some evidence until the overrun staff get letters out. I actually got one from my GP though , called and asked!

[AgedCrone in reply to allanah]

I doubt very much Allanah if they are going to send out individual personal letters to everyone 1.5m.

I haven’t even had the original letter & from everything I read I qualify on four counts....so I am looking after myself .....& really hoping no more NHS staff are infected....& that the much needed ventilators come on line very soon.

At times like this we really do have to take personal responsibility.... read all the information, & take the appropriate action.