Rheumy appointment and answers.....

[sylvi]

Well we made an early start on getting home so i could go to my rheumy apt. Well he was lovely and we had an interesting apt. He spoke to hubby about allotments among other things,this came about because i said it was getting close for me to have to give up my garden which i don't want to do as i have lost so much. Anyway he is going to contact the pain management team again re; apt for me. He has ordered a new ultrasound scan on my hands. then he wants to see me in 3 months time. He says my back issues are now down to the pain team as he can't give me anything more for that issue. He said i am on the most drugs he can give me also,but he said to try patches again and see what happens. So here i am sitting here in chronic pain having taken all my drugs and waiting for a bit of relieve. I woke up in the night shouting out because of the pain in my neck.xxxxxx

[ruth_p]

Sorry you are in so much pain again, I wish something could be done for you. Sending out gentle hugs.

[Gigi71]

Hi Sylvia I can fully sympathise with you, my back pain is making life very difficult for me. I have an appointment with pain management next week, have been waiting since Febuary. The appointment came through the same time as my rheumy appointment, at different hospitals, with regret had to cancel that one, a very difficult decision. Can't take opiate drugs just heat pads, a little exercise and Naproxen, hoping for an injection. Hope you get seen soon sylvi. Hugs G X

[Ruth12345]

As you often say Sylvi, cant like as you in pain. Gentle hugs and as you know we all care.

[Gnarli]

I'm so sorry, Sylvi, that you have all this to cope with. Huge gentle hugs

J

[Mmrr]

Awe Sylvi sorry to hear this and hope your appointment with pain management arrives quickly.

[VeronicaF]

Ahh bless you, so sorry your in so much pain, sending you lots of love and big hugs, its not fair bless you

hope you get some relief real soon

[popsmith1874]

Sorry that your suffering just now Sylvi sending hugs xxx

[Hidden]

Sylvi I am so sorry you’re in so much pain. I don’t think any of the available painkillers adequately targets RD pain and maybe more research is needed into causes. I take tramadol for flares but only because it knocks me out & I can sleep for a bit not because it stops pain (bit like gas n air for labour pains lol: feel a bit trippy and in pain). I know you’ve had it for years (17?) does that mean you’re been through all the drugs (dmards/biologics) & nothing else they can try? Absolutely sucks, if so. Hugs x

[sylvi in reply to Hidden]

They tried me on biologics,but i got a chest infections and as quickly as they gave me it they took me off it.xxxx

[Hidden in reply to sylvi]

Sorry to hear that Sylvi, 🤞there’s something else for you soon xxx

[Rheumagal]

Sorry your in so much pain. Sending hugs and loving thoughts.

[Smiler53]

So sorry to hear that you are suffering so badly. I hope that the pain clinic can help in some way when you get to see them. You love your gardening so much, it would be awful if you had to give it up. But I'm sure you won't give in to it without a fight. You are such a determined person. So keep on trucking Sylvi. Big hugs. X

[sylvi in reply to Smiler53]

No i am not going to give up without a fight. I am using little stools to sit on out there. The charity shops are doing well our of me when i buy something that will help me continue gardening. My life seems to be long struggle at the moment.xxx

[Smiler53 in reply to sylvi]

That's what I love about you Sylvi, you've got such grit. ☺ x

[nomoreheels in reply to sylvi]

You need a mini 'tractor' like I have Sylvi. I posted about it recently. It's a whizz in the garden. x

[sylvi in reply to nomoreheels]

I don't have a big enough for a tractor of any size darling,but a great idea.xxxx

[nomoreheels in reply to sylvi]

It's only diddy, like a kiddies ride along. Saves my knees & back.

[sylvi in reply to nomoreheels]

My garden is no more bigger than a hankie darling.xxxxx

[nablur]

Sorry for the pain. I really understand that!

I hope the pain clinic is helpful. I’ve done the program before and last March they wanted

Me to do it again. I said no.

I

[stbernhard]

Poor you, I hope you get some relieve soon. Big hugs.

[Dixiedeane147]

Sorry you’re in so much pain

Sending you a hug x

[nomoreheels]

Sounds like a good appointment Sylvi, fingers crossed the pain team come up with something to help ease your pain. If you try them I hope patches help this time, they help me. Constant pain is difficult & in spite of it I think you cope well generally, depression is often an unwanted partner to chronic pain. x

[sylvi in reply to nomoreheels]

Oh yes your right about depression and i suffer from it from time to time.but i do have a lot of tears.xxxx

[Shalf]

Lovely Sylvi, one day I hope you waken up pain free! I wish we all could. It's so annoying! Where is that genie that grants us three wishes? Can you imagine that! I loved all they kids stories. Life is so peaceful in Wonderland May your dreams and wishes come true.. Xx