I have been advised by MandiS (see comment in this thread) that there is an updated flow chart. It still puts me in the sheilding group tbh, but please check their post š
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Moomin8
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That is different to the chart for points on the Rheumatology webpage... confusing!
According to this link I have a score for self isolation and social distancing at my own discretion. rheumatology.org.uk/Portals...
But the NHS Leeds chart shows I should be shielding due to biologic drug infusions, recent flares, and taking Prednisolone for several months too, even though it is 5mg and has been at that level for since 3rd March.
That's what I thought tbh... but it was published today.š¤·š»āāļøI really don't want to confuse anybody though... Should I take it down or leave it up?
Leave it up... I might be more inclined to believe the stricter one, for my own safety! š
Just two weeks ago, the British Rheumstology site described those on biologics as āhigh riskā. I had already begun strict social distancing (no visitors) and my son goes out for my prescriptions and groceries. I really donāt fancy āshieldingā at all.
You are fortunate to have an appointment, and not cancelled.
Iām due a review anytime but no word on it. Iād be happy with a phone or video review. If my blood test in two weeks is cancelled, I will push for some kind of review.
Re shielding: I am doing a mix of strict social distancing and self isolating. Nobody allowed in to see me, Iām not visiting anyone, not going anywhere except one daily walk for exercise and fresh air. No garden and am in a first floor flat, really need out more but staying safe.
If I get a letter, I will do full shielding though it will be a big stress. Might trigger a flare... hope not! I have an exercise bike and plenty to occupy me. Not like solitary confinement in a prison or hostage situation. We will get through it.
I agree with the level of confusion - I can rate myself between low to highest within a few minutes, using the two BRS tools and the one from Leeds. I am fortunate that it doesn't really make a blind bit of difference but I can see from the posts that it is creating signficant angst among the group who are having to think about returning to work. There is the moderate subset, where strict social distancing would apply. To ask them to return to work seems completely inappropriate. I think it true to say all are overwhelmed. What times! Keep safe.
Iāve not had a letter but according to the chart Iām the pink due to recurrent infections (8 urine infections last year) and methotrexate. Due back to work Tuesday after a weekās annual leave. Donāt know what to do. Any advice would be appreciated
Hi, I haven't had a letter yet - I am in the pinkāŗBut it has been suggested that there is a backlog so I'll wait until 30th March before I enquire. You could ask your GP about not returning to work?
I rang today and was told GPs arenāt doing any kind of letters for this and itās down to the employer!! I said surely that canāt be right they not medically trained, but that was the answer I got . No idea what to do
I'm sorry to hear that you weren't able to get the answers that you need. Are you a key worker? If not, are you able to work from home? I have a clinical nurse phone number who I can call to ask about certain things but I'm not sure if that's operating atm - I haven't had to call tbh. The letters don't come from the GP though to be fair. I did book a call with my GP to update him on exactly what meds I'm on though. He said to wait until 30th March at least to see if I get a letter but advised that I should sheild due to my meds.
I also have a Rheumatology nurse phone line which I may try on Monday. I work in a small office for a charity which supports adults with autism and various special needs doing admin, wages etc. Not possible to work from home. Iām almost sure Iām going to go in until I hear otherwise. Possibly classed as a key worker. Thanks for your replies . Take care xxx
Can someone help me Iām confused ( very easily done ) on on mtx and biologics I also have been on steroids which I finish ghis week so the dosage went down each week to one tablet a day now which finishes tomorrow, I also am on two tablets for blood pressure . I have seen so many charts and was thinking of going back to work next week as I havenāt had a letter and I really thought that would of told me but if I donāt receive one tomorrowās I would of thought I was ok .
According to this chart, you are like me... shielding. But I am only doing self isolating with strict social distancing till a letter forces me to abandon one daily exercise period in fresh air. š„ŗ
I received one flow chart today which is quite different to yours. The information seems to have changed please look at my other post for the information
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