THE LETTER: Although my hub is BLF - I spotted a thread... - NRAS

NRAS
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THE LETTER

Ern007
Ern007

Although my hub is BLF - I spotted a thread on hear.

People on cancer treatments by and large bot not all will receive a letter.

THE LETTER HAS NIL TO DO WITH THE TEXT MOST OF US HAVE RECEIVED.

QUOTE: A copy of the letter sent to patients can be found in Annex 3. The patients of your

practice that have been contacted can be identified through an “at high risk” indicator

code that has been applied to each patient record by your clinical system supplier.

Your supplier will inform you of the code they have used, which should be treated as

temporary until a definitive list of COVID-19 ‘at risk’ SNOMED codes is released.

Your GP System supplier will also provide a report that will list those patients that

have been centrally identified as being at high risk. You should have this by 23

March. We ask that you review this report for accuracy and, where any of these

patients have dementia, a learning disability or autism, that you provide appropriate

additional support to them to ensure they continue receiving access to care.

We have taken a two-pronged approach to identification of people on

immunosuppression therapies sufficient to significantly increase the risk of infection

(category 5). All patients on the following medications have been centrally identified

and will be contacted via the letter:

• Azathioprine

• Mycophenolate (both types)

• Cyclosporin

• Sirolimus

• Tacrolimus [UNQUOTE]

Hope this helps..

england.nhs.uk/coronavirus/...

5 Replies
oldestnewest

Are those drugs ordinary DMARDs or some types of JAK Inhibitors and biologics? I don’t recognise any and I have tried 4 DMARDs and two biologics including drug infusions intravenously.

I’m waiting to see if a letter arrives, or a text, by Saturday. Meantime, self isolating ie not going out except one exercise walk per day with lots of distance when I see anyone nearby. My son is getting my prescriptions and groceries too.

Thanks for posting.

Ern007
Ern007
in reply to charisma

Ciclosporin, also spelled cyclosporine and cyclosporin, is an immunosuppressant medication and natural product. It is taken by mouth or by injection into a vein for rheumatoid arthritis, psoriasis, Crohn's disease, nephrotic syndrome, and in organ transplants to prevent rejection

Kags1068
Kags1068
in reply to charisma

I've been on Cyclosporin for 24 years, and received the letter today (posted about it earlier)😊

Thank you my nephrologist said about AZA this morning.

Its so confusing.Are we meant to assume that all other immunosuppressants are not going to be included.Oh well I'm self isolating just to be on the safe side.

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