Just looking at News on TV and wondering if we RA patients are considered to be in the ‘shielded’ group? It sounds very drastic - implying this group has to stay indoors for the next 12 weeks? Surely we can wander into our garden, provided we don’t mix with other people/groups?
What are your interpretations on this.
I’m hoping not. It specifically says some, not all immunosuppressant medications. I take methotrexate and Humira so I’m being very cautious anyway but would be still nice to have confirmation we’re not considered that ‘high risk’.
Yes, more specific confirmation would be mighty good because it’s frightening.
Sometimes Boris and co instructions can appear vague. To stay in your house and not go out at all can’t be healthy, anyway, surely?
Hi it seems likely many of us will be depending on what meds we're on and how immuno suppressed we are. The minister mentioned there was a list of meds online now prior to people receiving a letter. I've looked online at gov.uk but couldn't find it. Anyone?????
Azathioprine
• Mycophenolate (both types)
• Cyclosporin
• Sirolimus
• Tacrolimus
Hi I had a look gov.uk/corona and could not find the list.
It’s a bit ambiguous isn’t it? If you look at the nhs rheumatology guidance (link below) it says most people on biologics are considered high or very high risk. Bit boring if we do have to stay at home for 12 weeks!
england.nhs.uk/coronavirus/...
I know if u look at that we are high or very High , but then I look at different s websites and it says we are at risk , I suppose we will just have to wait and see but my rhumy doc told me I’m high risk and I’m on mtx and biologics unless something has changed over the weekend .
Yet on other sites RA isn’t given a mention when talking about high risk.
Why can’t we go into our own private garden?
Hi lilley22
I’m hoping we’re not on the list but if you are, you can still go into your own private garden.
And my private garden is looking nice and tidy now just think what it will look like in 12 weeks
I look forward to seeing a picture of it!
Phew! Well thanks for that, CarolineGN. Boris did make it sound like the ‘shielded’ must ‘stay indoors’ and that is it...
We can?
Self isolating in your own home would include your own private garden. It’s the interaction/proximity with others that would be the issue. I don’t have a garden but I do have a nice balcony with a wonderful view. I’ll see if I can put some pots on the balcony. Perhaps I’ll have a go at growing some tomatoes.
And get some chickens
There is no list of meds unfortunately. Checked as soon as he said that. Nada.
See Victoria, from NRAS's pinned post from the other day. It very much depends on which drugs you are on.
But, yes inevitably some of us will be in the high risk group.
My understanding is private gardens are absolutely ok. We are encouraged to go out into them.
I don't think that going in your garden is an issue, as long as you are not out there with others other than people you live with. Social distancing and stopping social contact is the thing
Thanks Thingybob for your reply.
That was my understanding too. Also, as Marie says those in charge are encouraging us to get into the fresh air.
It’s still contradictory and vague.
Also, listening to the News report earlier - there were bits when I thought - have you just made that one up, on the spot? The woman on the end was vaguely nodding her head in agreement to a leading question from journalist as if it’d taken her by surprise.
Wig, hat & dark glasses🦹🎩🕶
If I get the letter...you will find me in a darkened room,,,,sobbing!
I was just thinking the same! 🙏
twitter.com/rheumatologyuk/... I think this is the clarity we have been awaiting
I was given to believe that you have to go into isolation if you are on Methotrexate or prednisone both of which I am taking. I am also taking Leflunomide and was told that is also on the list.
We can go into our own gardens as we are not mixing with other people there.
I know it was be difficult to stay just in our own house and gardens for 12 weeks (and possibly longer) but surely if it means that it could save our lives then it will be worth it.
I am looking at it in the way of getting some of the things done that I have said I would do if I had the time. We at least have social media now which makes it easy to interact with others. I will have time to catch up with reading and read all the masses of books I have but have never read, do some card making, get masses of photos put into albums, decorated and labeled, watch DVDs and anything good on TV, get back to playing the guitar and keyboard and many other things. It is up to us to find things to do.
I’m sure we will, thank you.
'Shielded' letter
Group meetings this week!
