Just a quick hello, I’m back!: Hi All, I hope that... - NRAS

NRAS

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Just a quick hello, I’m back!

sjhewitt42 profile image
25 Replies

Hi All,

I hope that you’re all keeping well and are managing to keep positive through this troubling and uncertain time. How the tide can change so fast, it’s a crazy world we’re living in right now and I hope people can just be kind if nothing else.

I thought I would look in and say Hi, there are many of you still ‘here’ which is lovely to see.

I’m still taking Baricitinib and Azathioprine along with the usual cocktail of painkillers and steroids to get through but in general, pain apart, life is ok and still busy with my 3 boys and great softie of a dog! Looks like some family time is on the cards over the next few weeks...

Love to all,

Sarah xxx

25 Replies
Summerrain14 profile image
Summerrain14

Hi Sarah, lovely to have you back. I am fairly new to this lovely forum. Been an absolute life line. x

Gail

sjhewitt42 profile image
sjhewitt42 in reply to Summerrain14

Thanks Gail. It’s been around a year since I was on here but the support is fab and much needed for many xx

Summerrain14 profile image
Summerrain14 in reply to sjhewitt42

The support is fab on here. In the recent months I have had lots of great advice and support. I am fairly newly diagnosed with RD and just making some small life changes to help me adapt,

Just reduced my work hours to 28 this week and just started some counselling and CBT too.

I’m currently working from home so time to get dressed and get my work head back on. xx

sjhewitt42 profile image
sjhewitt42 in reply to Summerrain14

It’s hard with RD because sometimes you can move mountains and other times you can’t get out of bed.

Hope the counselling and CBT helps...

I’m working from home too and must get my work head on if I could just be bothered to get out of my PJ’s 😂 How I’m going to stay focused I just don’t know!!xxx

Summerrain14 profile image
Summerrain14 in reply to sjhewitt42

😂 staying focus is going to be a challenge for me too. 😂. It is a whole new life with RD. I am having to learn to take each day as it comes. Easier said than done sometimes x

sylvi profile image
sylvi

Sarah excuse my ignorance darling but where have you been. My memory is so bad I can't remember what I did yesterday. Aside from that good to have you back.xxx

sjhewitt42 profile image
sjhewitt42 in reply to sylvi

Hi Sylvi, lovely to see you’re still around. I haven’t been anywhere just being busy with life! There was quite a bit of confrontation on here for a very short period but I’m glad to see that’s all gone now and the true lovely people remain. Looking forward to seeing your lovely pictures once more. 😘

sylvi profile image
sylvi in reply to sjhewitt42

I stopped posting also for much the same reasons darling. There was some nastiness about me posting all these flowers and Christmas photos saying that it was a site for ra not the stuff I was posting. I thought I was cheering people up which upset me so I stopped posting. Even now I don't post as much as I used to. I used to post everyday with the photos I took. I don't do that now. I might post a few at the moment during this time of crisis though.xxxx

Dspooky01 profile image
Dspooky01 in reply to sylvi

I enjoy them, RA is not just about pain and medication, it’s about life and how we can enjoy it. Keep posting and carry on!

sylvi profile image
sylvi in reply to Dspooky01

Tank you darling. Flowers do wonders for our mental health don't you think.xxxx

Dspooky01 profile image
Dspooky01 in reply to sylvi

Flowers, wildlife and the natural world!

sjhewitt42 profile image
sjhewitt42 in reply to Dspooky01

Anyone who can watch a nature program without smiling has something wrong with them, in my humble opinion of course! x

sjhewitt42 profile image
sjhewitt42 in reply to sylvi

I remember.. you’re photos were always cheery and let’s face it, with the darkness that this stupid disease can bring at times if we can all cheer each other up there’s no harm in that. Miserable sods! 😀

nomoreheels profile image
nomoreheels in reply to sylvi

You keep posting Sylvi. You know how those who care love your pics & we need to keep an eye on you! x

sylvi profile image
sylvi in reply to nomoreheels

I will try and post more often then my darlings. I may sound strong, but I am not as strong as I could/should be, especially when my health is at its lowest.xxxx

nomoreheels profile image
nomoreheels in reply to sylvi

We know. x

Sheila_G profile image
Sheila_G in reply to sylvi

Hi Sylvi. I remember you from a long time ago too. I stopped posting for similar reasons but always loved your floral posts. They brightened my day. I hope you are keeping fairly well and looking after yourself in these troubled times. I am glad to be back on here again. x

sylvi profile image
sylvi in reply to Sheila_G

Welcome back Sheila, it was not a nice time. ow there seems to be a nice lot of people now thank goodness.xxxxx

rab1874 profile image
rab1874

Nice to see you back at this difficult time for us all ,we’re all in this together xxx

sjhewitt42 profile image
sjhewitt42 in reply to rab1874

Thanks, and yes we sure are. We just all need to be kind to each other and ourselves x

nomoreheels profile image
nomoreheels

Lovely to see you pop back on Sarah. Pleased things are ok, we all need to be as well as we can be just now.

sjhewitt42 profile image
sjhewitt42 in reply to nomoreheels

Lovely to see you’re still here my lovely. 😘

Shalf profile image
Shalf

Great to see you back. The door is now securely bolted. Your not getting out again🤩

Seriously Sarah, good to hear you and the boys are fine. xxx

sjhewitt42 profile image
sjhewitt42 in reply to Shalf

Awww I’m so glad you’re still here Suzie. I’m more than happy to be on lockdown with you. 😍xxx

Shalf profile image
Shalf in reply to sjhewitt42

Aw how sweet. That would be nice. Few wines and a chat 🥰

I really miss everyone that leaves but I also had a bit time away for similar reasons as yourself. There are nice people who have joined over the last year and the forum is much friendlier. My photos ( like Sylvi) caused quite a stir but I ( and the admin) thought it was great! So did numerous members as well as yourself. Hopefully members who enjoy being not so nice realise that this attitude makes people leave the forum. Not very good that.

I hope you stay around as your input has been missed.

Lots of love xx

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