Come off steroids and naproxen: I have come off... - NRAS

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Come off steroids and naproxen

Carolsos profile image
6 Replies

I have come off steroids, I was on 2.5mg off steroids. When I saw the consultant he says I have to come off the steroids. I just went cold turkey with them, but now am so fatigued and I ache all over! When I saw the consultant I said I was not in pain and I felt the best I have ever been and then he said you need to get off the steroids!

So now am in constant pain, my hands are so stiff all day. I also have had to come if naproxen suddenly because I am on antidepressants and cannot be on naproxen too.

But it's the tiredness that is getting to me. I have to have around 3hours as soon as I come home from work and then might have tea then back to bed until the morning.

Thanks for listening. Take care X

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Carolsos profile image
Carolsos
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6 Replies

I came off steroids as soon as I could due to the fact they mask a lot of pain or issues but at the same time make you feel good. Fatigue is a nightmare for many of us and sometimes worse than pain.

Have a chat with your Rheumy tram for suggestions but they will no doubt say rest. Rest is key with RA x

Your not on your own. Fatigue ( this word doesn’t even begin to explain it) it takes me unawares it can last a few hours or for weeks. It totally disables me . I can’t work or drive the world just passes me by till it burns its self out

AgedCrone profile image
AgedCrone

Speak to your rheumatology nurse she is well trained in this situation,& will be able to help you.

In fact in a few months time you will be very grateful you have been able to stop the steroids ......in the long term it is not a good move to stay on them

sylvi profile image
sylvi

You should never go cold turkey with steroids or any drug you take long term. I can't comment on naproxen, but I can about steroids and it is not a pretty picture.. I was so bad I had to restart them then wean myself off them slowly. It took me over three months to get off them last time. I have told my rheumy nurse to put in my records not to give me them again. I am less depressed off them and a lot calmer.xxx

Agoodlife profile image
Agoodlife

Alcaselzer helped me to get off Naproxen so did LD N. Which certainly takes down pain. The aspirin ( 340 mg i the morning with warm water k2 vit and coffee with cocmilk and ). pregnelone helps with getting down steroids. Liqurish root a good thing too. There is a I-Smart good product on especially efficient liqurish root that you take before meals that is worth to try.

Carolsos profile image
Carolsos

I have had no side effect apart from fatigue from the steroids. I was on 2.5mg for about 3years I did taper for 2weeks I took one table every other day that my consultant told me too.. but since coming off I have noticed my hands now hurt in the mornings and am constantly tired.

Thanks for listening

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