More surgery and a new condition 😢 : Hip replacement... - NRAS

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More surgery and a new condition 😢

LesBev profile image
26 Replies

Hip replacement number two and I’m two weeks post surgery. No biological now for two months and everything hurts. Also, been on steroids years and after being quite ill in hospital seems I have adrenal inefficiency. It was scary to come home alone after major surgery with a new condition, boxes of steroids and an emergency inter muscular injection kit! How am i meant to build up a syringe, fill it from an ampule and inject my thigh when my hands are rubbish? Roll on spring and warmer days. It’s rubbish when your home feels like a cage 🙄

It will get better I hope so a big hug to all of you having a challenging day today X

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LesBev profile image
LesBev
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26 Replies
sylvi profile image
sylvi

I sure know how you feel darling I have hardly gone out since the new year came round.xxxx

LesBev profile image
LesBev in reply tosylvi

Hi darling, you def know what this all feels like! We can hope for an early spring then summer and lots of your super flowers pictures to cheer us up.

Lx

sylvi profile image
sylvi in reply toLesBev

Oh darling you know how to cheer an old gal up. I have just planted three primroses in my back garden that my dh brought back from the garden centre yesterday.xxx

Kalimers65 profile image
Kalimers65 in reply tosylvi

I bought some primroses yesterday too. Aren’t they wonderful cheery little flowers!

sylvi profile image
sylvi in reply toKalimers65

I have a lot in my garden and I always buy more every spring.xxx

Kalimers65 profile image
Kalimers65 in reply tosylvi

I think I will buy more too as this little pot cheered me up a lot .

LesBev profile image
LesBev in reply toKalimers65

Ok I’m inspired.....I’m online to find some sunny plants to order, that’s the problem with being stuck in, too much online shopping! Ouch (that’s my bank account saying stop now!) x

Kalimers65 profile image
Kalimers65 in reply toLesBev

I also get packets of seeds LesBev like marigolds and love in the mist. They’re much cheaper and it’s lovely to watch the miracle of seed to flower. Much cheaper too, plus they’re ‘ your babies’! Gardening even if in very small bursts is very therapeutic.

Gigi71 profile image
Gigi71

Can you get in touch with your GP for help. Our area has an enablement team who can come out to help you. It’s NHS run and just for the short term. I have used them after major ops. They help with personal washing etc, they also have community nurses to administer medication. Hope you can get some help. X

LesBev profile image
LesBev in reply toGigi71

Hiya, good idea and thank you. It’s a worry when it’s a new condition and as we all know, we’ve got enough to deal with already! Take care and have the best weekend poss...Lx

Gigi71 profile image
Gigi71 in reply toLesBev

Unfortunately it seems to happen when we have RD. I’m on low dose steroids. Do you have a thyroid condition too. Thank you for your wishes and the same to you. X

LesBev profile image
LesBev in reply toGigi71

So far I don’t think my thyroid is a problem but with RA who knows what the future will bring. I was trying to wean off steroids after being on them 4 years but it seems that may not now be possible.

Why do doctors leave you on them so long when this can happen! Grrrr!

Thank you for replying to me, I love the support we all get on here x

Gigi71 profile image
Gigi71 in reply toLesBev

I’ve been on them 34 years and when they put me on a bio med 12 years ago, they wanted me off them, but I resisted. So I can’t blame them entirely, unfortunately I have skin problems, osteoporosis and waiting for a spinal op. When I was dx 34 years ago, I was bombarded with steroid injections in most of my joints as they believed this would help. I am left on them now as it’s too late. This forum is a wonderful help I agree with you. Please take all the help you can get. X

I’m sorry your having such a bad time even harder when on your own. Hope you recover quickly so you can get back on the Biologic. I certainly am not as bad as you but I’ve had a stubborn chest infection and going into 3 rd week without Biologic and boy can I tell . 2 months must be a nightmare . Here’s to a good recovery x

LesBev profile image
LesBev in reply to

Thank you, we are so lucky to be able to reach out to each other on here. I hope you feel better very soon. Lx

charisma profile image
charisma

Hi LesBev, I’m not at Replacing joints stage but know it is a big, daunting operation. You need help and support at home.

I’d not be able to assemble the injection either. Also, waiting for infusions to work, if they will, began December, so on steroids but trying to keep to low dose. Been like this since June.

There must also be recommended action for treating adrenal insufficiency... or is it not permitted post op?

A friend had hip replacements so I know you need a lot of help, hope you get it!

LesBev profile image
LesBev in reply tocharisma

Thank you so much. It sure is a challenging time! I’m so lucky to have support from you and everyone, it means a lot! X

springcross profile image
springcross

Hi LesBev. Sorry to hear about your problems, what a nightmare and so much for one to cope with. Hope you feel better soon and that you are able to get the help you need. x

LesBev profile image
LesBev in reply tospringcross

Thank you springcross, it is hard but as a lovely friend of mine said during treatment he did not survive.........Never give in, never surrender!

Stay warm and safe honey x

springcross profile image
springcross in reply toLesBev

You too. x

Mmrr profile image
Mmrr

Sending you best wishes 💐🌷🌼🌻🌺🥀🌹🏵⚘

auldreekie2 profile image
auldreekie2

Sending you big hugs and lots of love♥️❤️💐.

I don’t know what you are going through, I am just going by my own pain.

I was on a high dosage of steroids, glad I am not on them anymore , just had cataract fast growing done a few weeks ago, due to steroids they told me, as I got it when I was 54.

Still not got my pain under control yet, after 4 years, now it’s my hip.

I do not go out because of pain and tiredness.

So LesBev my thoughts are with you.

With having RA I have to be a brave wee soldier 💂‍♀️

You take care, and get in touch with your doctor, see what they can do to help. Xxx

LesBev profile image
LesBev in reply toauldreekie2

Aww thank you so much honey, that’s a lovely reply and I really appreciate it. You are going through it too! I’ve had to resort to morphine patches I change every week, they do take the edge off. Have you tried them?

Stay strong and know you are in my thoughts.

Biggest hugs and although we don’t get out much our thought are with each and every one of us! Lx

Iluvgardening profile image
Iluvgardening

Bless your heart! Prayers your recovery is quick and complete. So sorry you are having a bad time. I live in Texas and we have mixed weather weekly, which my body doesn't like at all. We have temps in the 30's one day and 70's two days later🤪 I too am ready for Spring & summer😊take care of yourself. I have had two knee replacements and a lumbar fusion and hoping not for a hip replacement. Trying to hold off as ling as I can.

LesBev profile image
LesBev

Hi there, that weather sounds a challenge honey with our condition. You have had a hard time but I’m smiling as we will both end up bionic!

I live in York, UK, and I’ve woken up to a few inches of snow this morning. It’s pretty but I’m def staying in with the heating on.

The daffodils had just started to open in my garden and now they are hanging their heads with the weight of snow.

As you say, roll on spring. Do you every get snow in Texas?

Stay safe and sending you hugs and warmest wishes for a pain free day.

X

MargaretStirling profile image
MargaretStirling

Hello lesbev. I know how you feel but your steroids are no use over time they will weaken your bones. Ask your Dr to give you the strongest patches she can provide you with they will help pain and will be better for yourself than steroids

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