Tofacitinib : Hi been prescribed tofacitinib for ra... - NRAS

NRAS

37,229 members46,073 posts

Tofacitinib

Trace1974 profile image
7 Replies

Hi been prescribed tofacitinib for ra anyone been on it and side effects.thanks

Written by
Trace1974 profile image
Trace1974
To view profiles and participate in discussions please or .
Read more about...
7 Replies
KittyJ profile image
KittyJ

If you type Tofacitinib into the search bar it will come up with all the previous posts about this drug 😊

rab1874 profile image
rab1874

On my 3rd jag tonight not working yet still a lot off fatigue in the mornings

Trace1974 profile image
Trace1974 in reply torab1874

Hi I am hoping little side effects as orencia caused kidney infections.thanks

Yogi-bear123 profile image
Yogi-bear123

I’ve been on it for about 6 months now... no side effects and pretty good control. Good luck with it... after failing 4 biologics mainly because of side effects ... it’s been a bit of a relief! Would probably have more control of the disease if I could tolerate low dose methotrexate with it but sadly my liver hates M. !! Good luck.. it has been a bit of a life saver!!!🤞

Teatrees profile image
Teatrees in reply toYogi-bear123

I have to agree with you, although I still get tired and occasional flare too but this drug has suited me the best after trying about 8! As you say a bit of a life saver walking around better. I came of it for 5 weeks with a virus at Xmas and ended up using a stick.

Rheumagal profile image
Rheumagal

I just started this one as well.

Not too bad so far. Some tummy upset, headache but nothing too overwhelming.

My rheumy nurse says there will be breakthrough side effects for the first couple of weeks as my body adjusts but she had really good things to say about it. Looking forward to some relief!!!

Beth72 profile image
Beth72

Iv been prescribed tofacitinib started this morning two tablets a day I hope they work 🤞good luck everyone

Not what you're looking for?

You may also like...

Tofacitinib

So I’m on week ten of this drug and I have to say I feel worse than before. My bloods remain the...
ArcherDee profile image

TOFACITINIB

Hi all, Just wondering if anyone is taking Tofacitinib alongside Methotrexate injections and if it...
14penny profile image

Xeljanz / Tofacitinib

Doctor just switched me to Xeljanz I’m supposed to start Saturday & I’m feeling anxious. I was on...
SassyRA profile image

Update on Tofacitinib

Happy Friday all. Thought I would give it a while with this bioligic they have put me on to...
Hessie5 profile image

Update and new biologic is TOFACITINIB

I shared with you all that I was off Baricitinib due to white blood cell count being too low. My...
Hessie5 profile image

Moderation team

See all
KateL-NRAS profile image
KateL-NRASAdministrator
Donagh-NRAS profile image
Donagh-NRASAdministrator
Nicola-NRAS profile image
Nicola-NRASAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.