Tofacitinib : Hi been prescribed tofacitinib for ra... - NRAS

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Tofacitinib

Trace1974 profile image
7 Replies

Hi been prescribed tofacitinib for ra anyone been on it and side effects.thanks

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Trace1974
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KittyJ profile image
KittyJ

If you type Tofacitinib into the search bar it will come up with all the previous posts about this drug 😊

rab1874 profile image
rab1874

On my 3rd jag tonight not working yet still a lot off fatigue in the mornings

Trace1974 profile image
Trace1974 in reply torab1874

Hi I am hoping little side effects as orencia caused kidney infections.thanks

Yogi-bear123 profile image
Yogi-bear123

I’ve been on it for about 6 months now... no side effects and pretty good control. Good luck with it... after failing 4 biologics mainly because of side effects ... it’s been a bit of a relief! Would probably have more control of the disease if I could tolerate low dose methotrexate with it but sadly my liver hates M. !! Good luck.. it has been a bit of a life saver!!!🤞

Teatrees profile image
Teatrees in reply toYogi-bear123

I have to agree with you, although I still get tired and occasional flare too but this drug has suited me the best after trying about 8! As you say a bit of a life saver walking around better. I came of it for 5 weeks with a virus at Xmas and ended up using a stick.

Rheumagal profile image
Rheumagal

I just started this one as well.

Not too bad so far. Some tummy upset, headache but nothing too overwhelming.

My rheumy nurse says there will be breakthrough side effects for the first couple of weeks as my body adjusts but she had really good things to say about it. Looking forward to some relief!!!

Beth72 profile image
Beth72

Iv been prescribed tofacitinib started this morning two tablets a day I hope they work 🤞good luck everyone

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