Tofacitinib : Hi been prescribed tofacitinib for ra... - NRAS

NRAS

36,607 members45,226 posts

Tofacitinib

Trace1974 profile image
7 Replies

Hi been prescribed tofacitinib for ra anyone been on it and side effects.thanks

Written by
Trace1974 profile image
Trace1974
To view profiles and participate in discussions please or .
Read more about...
7 Replies
KittyJ profile image
KittyJ

If you type Tofacitinib into the search bar it will come up with all the previous posts about this drug 😊

rab1874 profile image
rab1874

On my 3rd jag tonight not working yet still a lot off fatigue in the mornings

Trace1974 profile image
Trace1974 in reply to rab1874

Hi I am hoping little side effects as orencia caused kidney infections.thanks

Yogi-bear123 profile image
Yogi-bear123

I’ve been on it for about 6 months now... no side effects and pretty good control. Good luck with it... after failing 4 biologics mainly because of side effects ... it’s been a bit of a relief! Would probably have more control of the disease if I could tolerate low dose methotrexate with it but sadly my liver hates M. !! Good luck.. it has been a bit of a life saver!!!🤞

Teatrees profile image
Teatrees in reply to Yogi-bear123

I have to agree with you, although I still get tired and occasional flare too but this drug has suited me the best after trying about 8! As you say a bit of a life saver walking around better. I came of it for 5 weeks with a virus at Xmas and ended up using a stick.

Rheumagal profile image
Rheumagal

I just started this one as well.

Not too bad so far. Some tummy upset, headache but nothing too overwhelming.

My rheumy nurse says there will be breakthrough side effects for the first couple of weeks as my body adjusts but she had really good things to say about it. Looking forward to some relief!!!

Beth72 profile image
Beth72

Iv been prescribed tofacitinib started this morning two tablets a day I hope they work 🤞good luck everyone

You may also like...

Xeljanz / Tofacitinib

on Leflunomide / Arava since October but I have been flaring to frequently so doctor thought it was...

Update and new biologic is TOFACITINIB

decision to change. I have been nearly two weeks meds free - it has been up and down, (honestly...

Yet another new med Xeljanz TOFACITINIB

cold so advised not to start until better. Its been odd being off all meds for about 6 weeks.......

Starting Tofacitinib to replace Benepali

I have Sero Positive RA for 46 years and been through all the treatments, now biologics not working,

Taken off baricitinib to try tofacitinib

these tablets instead tofacitinib has anyone been on these and had good results because iv tried...