Water infections

[Lilahloo]

I have been taking Jyselica for rheumatoid for 4 months but been having water infections. Has anybody else been using filgotinib and had water infections.

[medway-lady]

Question is is it a repeating infection or one not responding to the antibiotic prescribed? I have had UTIs and without symptoms just blood in urine. RA med stopped and changed and it carried on so saw a urologist they did a cystoscope and lots of tests and antibiotics by injection and the RA med wasn’t responsible it was just coincidence. So I’d suggest you ask your GP for a sample to go to path lab and make sure the antibiotic actually works. You can help yourself a bit by drinking a lot of water, to flush out the bacteria. Which does work and drink cranberry juice but I was told if 10 women had a urine test then at least 5 will have a silent infection and it’s not good to take too many antibiotics. But it’s vital to know which bacteria is causing a problem, then a course of treatment can be worked out. I’ve got an MRI coming up because my blood is more likely to be due to a damaged blood vessel in my kidney and the infection is silent. These things do make life more interesting !,,, lol Do seek a referral if you have symptoms etc but it may be just coincidence and getting the right antibiotic could resolve the situation.

[Blodynhaul in reply to medway-lady]

Thanks Medway-lady, that's really helpful as I've had blood in my urine (microscopic) at least for the last 2 months so now being investigated & been trying to find out if related to the Filgotinib I've been on for 20 months. I have a whole range of chronic issues since being on it & trying to get to the bottom of things. Do hope they can identify your problem now & sort it out. Seems hard sometimes whether to blame the drug or not. I suppose it can still be an indirect cause by weakening the system and allowing more infections & other ailments.

Good Luck! would be good to hear how you get on, thanks!

[medway-lady in reply to Blodynhaul]

I photo the loo as often can’t see pan becuase it’s red with blood but I feel great. Anyone who nicks my phone is going to get a shock! Lol it might be a good idea to do that as 1 drop of blood can turn a bucket of water pinkish. I’ve been told now that rarely but it does happen when I had the kidney biopsy 6 years ago it’s probable they nicked a minor blood vessel. It’s not a huge issue and I’m to decide if I want an MRI or investigative surgery to prove it or just leave well alone as they did a special blood test last month to see if there was any cancer cells and there’s not. So I’m gonna leave alone for a few months now and see what happens. I take Hiprex every day which I think stops anything getting worse and my Nephrologist said he thought that was sensible as I’m well. Xx

[Blodynhaul in reply to medway-lady]

Thanks very much M-L for that feedback. Sounds like you're doing the sensible thing and a relief it's not cancer etc. I'll do what you suggest & keep an eye on the colour, though when I gave a sample in 2 months ago and this week the colour looked normal, but they tested something & said there's microscopic blood. Anyway - will sort out, even if it remains a mystery a bit like yours! GO WELL.

[Borrow56]

Hello

I have been on Jyseleca for nearly a year now but haven’t experience any water problems.

I have had RA for some years and tried many drugs but this seems to have fewer side effects. Good luck with getting answers with this problem.

[Blodynhaul in reply to Borrow56]

We're all different. I seem to have a lot of side effects! but very grateful it is doing its job in terms of controlling the RA, thank goodness. Go Well!

[Durrell]

Hi Lilahloo, I’ve been plagued over the years with UTIs only since being on biologics. I now take D-Mannose & it’s been a game changer for me. I don’t take all the time as & when, and always travel with it as it’s so often I get it when on holiday. I think it’s due to the change in routine etc. look it up, many women take it, though shop around it can be pricey. I have bought Aquapure but on a bundle deal. Hope this is helpful .

[Durrell]

sorry Lilahloo it bladapure not aqua pure, but there’s lots out there to try.

[Doodlereggie]

hi I have been on filgotinib for 4 months too but have had no water infections,in fact no side effects at all.However,I do not recall ever having had one,and do drink lots of water as I am diabetic.Must say after 20 years of ra,this is the best medication by far and am getting my life back thanks to filgotinib.Hoping last weeks bloods are ok so I can continue on it!Best of luck.Keep us posted how you get on over the year with this med.

[Wedgwood123 in reply to Doodlereggie]

I am now on Filgotinib have tried most of the other treatments, found this is the only one that has worked for me, I have found it to be a marvelous drug so far with no flare ups of my RA

[Doodlereggie in reply to Wedgwood123]

it is a miracle drug isn’t it.Trouble with me is a feel so well on it I tend to overdo things ,but just don’t care!

[Blodynhaul in reply to Doodlereggie]

Great to hear!

[Mmrr]

I have been on Filgotinib for many months now, but don't get UTIs.I have been getting random abscesses since taking it. Have you let your rheumatology team know ?

[Lilahloo]

thank you for reply. No I haven’t let Consultant know as yet just waiting to see if it happens again.

[Blodynhaul]

Hi Lilahloo, I've been on Filgotinib for 20 months & although have some chronic side effects, I've not had water infections, but the last 2 months there's been some blood in my urine, which is now being investigated. My first thought is that the drug is responsible, but I suppose it can be hard to identify the cause of things sometimes. We're more susceptible being on these immuno-suppressants.

I'll be interested to know how you get on, if it is shown to be due to the drug. Good Luck!

[Pastels]

hi there just seen this post sorry I’ve been slow to respond! I’ve been on Filgotinib for a while now and not UTIs so far. Best of luck sorting it all out.