MTX Cold Sores

[TheBoys]

Feeling sorry for myself today. Had to get my head a shave all over ( number 1clipper) as my bald patch grew and hair thinned. Now on my third cold sore in two months with sore eyes ( one bloodshot) i m not a healthy looking sight. Wont go out today and it seems I m staying in at least two days a week now.. wont seemy rheumy until feb. He wanted to see me in December but earliest appointment is end of Feb.. no bloodtests until then either i guess. Honestly i feel wrecked sometimes it seems hardly worth the effort to contemplate all this. I ve found i just sit here eating sweets eg chocolate as have a craving for them all the time. My RA pains have eased... but at what cost

Ah well back to the tv....

[oldtimer]

Lots of people find the close buzz cut on men very attractive, and it's regarded (apparently!) as a sign of maturity and sophistication. So revel in it.

But recurrent cold sores are horrible - have you talked to your GP about them? My partner was put on a long term course of acyclovir when he had recurrent attacks and that seems to have done the trick.

Just because you are on an immune suppressant doesn't mean that you can't have what is routine treatment if you were not. It's making you depressed and negative thinking - we've all been there! But don't let it get to you, get even! I know that after all the years I've had it I still get angry, but I reckon that's healthier than letting it get me down.

[TheBoys in reply to oldtimer]

Tnx for that. Its picked me up

Paul

[NanaFifi]

Sorry to hear you’re feeling so down. If I was you I’d get myself off to my GP and ask him/her to do your blood tests. I’ve done this in the past and GP got in touch with my Rheumy and got me sorted out. Got to be worth a try? Good luck and sending a gentle hug.

[TheBoys in reply to NanaFifi]

Tnx for that..its good to have this site to lean on when we low xx

[Dobcross1]

Hi I'm on MXT and took a course of Lysine tablets (from Holland and Barratt) as I got cold sores when I increased the dose. Seems to have done the trick for me so might be worth a try! Good luck.

[TheBoys in reply to Dobcross1]

Tnx..i m going over the shops soon will get some...paul

[Matilda_1922]

I suffer with recurring cold sores with methotrexate.

Had acyclovir for 6 months no cold sore as now stopped cold sores have returned

[TheBoys in reply to Matilda_1922]

Hi..was that over the counter or on prescription?

[Matilda_1922 in reply to TheBoys]

Prescription from GP

[vonniesims]

I get bad cold sores . Dermatology put me on Acyclovir . I take it fot 6 months, then stop. When I get another sore I resume it for 6 months and so on. Have been doing this for a few years now and go about a year between episodes now

[Pooch22]

Hi I think you should be having bloods checks done more frequently your go should be checking them at a set frequency depending on meds

[TheBoys in reply to Pooch22]

Tnx for that. My rheumatology appt isnt until end of feb and one after that, in july or August prb..I d better askmy GP about some blood tests then as i ve nothing scheduled for tests at all

Maybe Barts hospital isnt as good or organised as it should be.

[Pooch22]

Your welcome if you check nice guidelines for your meds it should/may help, even if a little confusing, but am sure you should be having regular bloods especially methotrexate. I am now on 3 monthly just for sulfasalzine and hydroxychloroquine. I think communication isn’t always great between departments or letters may have gone astray.

Good luck

[Pooch22]

You should get a book on methotrexate to monitor results but that may have been phased out now .

[CarolyneJA]

Folic acid 5 mg a day! Hair should grow back, and other symptoms ease too.

[TheBoys]

I only get it once a week lol

[Jemmel]

I take folic acid every day barring the day you have folic acid.

Also got some biotin tablets from Amazon for hair thinning. Seems to help.

You defo should be having regular blood tests as you are on Methotrexate. Talk to your GP.

How about getting in touch with NRAS (National Rheumatoid Society) they give fantastic advice and will give you info on your local NRAS,who will support you and meet and talk to people who are diagnosed with RD. Take care

Gentle hugs.