Benepali side effects

[Taffsmum]

Hi,

Has anyone suffered from dizziness and lightheadedness with Benepali?

I’m three injections in and feeling a bit ‘drunk’ and heady today.

Xx

[Mmrr]

I started well on beneplai, it seemed to work almost immediately, I had 5 weeks without an issue and was feeling as well as I had done for a long time. Then boof, it all seemed to turn around within a few hours and the side effects began; fatigue; a bit heady and dizzy; generally feeling icky at times and my joints started to become achy and swollen again. Some weeks I was quite miserable for a day or two after injecting. I stopped taking it after 15 weeks. I'm now into my second week of Baricitinib.

[Taffsmum in reply to Mmrr]

Thank for your reply.

And there was me three weeks in so far so good 👍. The dizzy/lightheadedness lasted for 4 hours ending with a headache. Feel ok today. Only joints playing up at the mo are my fingers which are quite swollen. I’m just keeping a log of each day and how I feel. I’ve got routine blood tests in a couple of weeks. Only time will tell.

Good luck with the Baricitinib. Is that a bio similar too?

[Mmrr in reply to Taffsmum]

I hope benepali works well for you, as said the first 5 weeks were good for me with it.

Benepali is a fairly new to the market biologic, tablet form, but I'm not doing well with it either. Just about to postal query.

[Quee]

Never heard of it. Is your RA real bad? How often do you get injections?

[Taffsmum in reply to Quee]

Hi,

I’ve had RA for 18 years, been in remission taking enbrel for about 10 years, then they switched the drug for a bio similar. Time will tell.

[Victoria-NRAS Partner Moderator NRAS]

Thank you for posting this. I am really sorry to hear that you have had this problem with your medication. Are you aware of the yellow card scheme? It is run by the Medicines and Healthcare products Regulatory Agency (MHRA) and is a way to officially report side effects/adverse reactions to any medicine, vaccine, herbal or complementary remedy in the UK market. It is also a place where you can report issues with a medical device and report defective or counterfeit medicines. If you live in the UK, you can report any of the above issues through the scheme here: yellowcard.mhra.gov.uk/ Your healthcare team will be aware of the scheme and are also able to report these issues on behalf of their patients.

Not always easy to know when something is a side effect and when it's unrelated, but worth reporting as a potential side effect.

Victoria

(NRAS)